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Lightheaded Still

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Fields Newbie
Fields
Posted

I'm 58 years old and was self diagnosed in February with gluten intolerance. After losing 25 pounds, throwing up and diarhea daily; near fainting spells weekly, the doctor ran a battery of tests. MRI, CT, heart, ENT and blood work enough for a vampire. All were fine. Earlier I was being treated for acid reflux. After going gluten free, I improved dramatically and the acid reflux went away. I still have light headed spells daily but not to the extreme as before. My Neurologist refuses to believe that there is a correlation between Celiac and neurology. I am still tired but not exhausted. Does anyone else have the light headed problem? If so, did it ever go away. New grandmother needs encouragement.

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Lisa Mentor
Lisa
Posted

Hello and welcome!

I would suggest you find another neurologist, for one who is informed.

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I would suggest you get a full metabolic panel done to make sure you are not deficient in minerals or essential vitamins, as both when not in order, can cause your ongoing symptoms, B-12 and Folic Acid deficiency specifically.

JillianLindsay Enthusiast
JillianLindsay
Posted

Welcome, and I'm very glad that going gluten-free has helped with most of your symptoms :)

How were your BP & HR? I have vaso-vagal syncope episodes (a fancy way of saying "fainting") where my heart rate and blood pressure drop low enough for me to lose consciousness. Hypotension and bradychardia can definitely cause dizziness & lightheadedness. How was your blood sugar? Are you eating often enough? I'm also hypoglycemic and get very dizzy and weak if I don't eat regularly.

I can only speak from my personal experience :) I hope you get to the bottom of it soon & feel better.

Take care,

Jillian

I'm 58 years old and was self diagnosed in February with gluten intolerance. After losing 25 pounds, throwing up and diarhea daily; near fainting spells weekly, the doctor ran a battery of tests. MRI, CT, heart, ENT and blood work enough for a vampire. All were fine. Earlier I was being treated for acid reflux. After going gluten free, I improved dramatically and the acid reflux went away. I still have light headed spells daily but not to the extreme as before. My Neurologist refuses to believe that there is a correlation between Celiac and neurology. I am still tired but not exhausted. Does anyone else have the light headed problem? If so, did it ever go away. New grandmother needs encouragement.
Fields Newbie
Fields
Posted
  • Author

I went to the MAYO clinic in September and had the metobolic workup showing only low platelets for which I'll be retested in a couple of weeks. My lightheadedness has also been refered to as vaso-vagal response. I don't lose consciousness but must lie down immediately. My blood sugar has been fine as well. I generally have low blood pressure. I eat small meals every two hours which does help. Hoping that as time goes by this symptom will cease. Thanks for your response. Sorry you have the same problem but it helps to know I'm not alone with it.

ktnhsv Newbie
ktnhsv
Posted

My heart rate and BP have always been normal. But I've had lightheadedness daily for 11 years (I'm only 31), I also have BAD anxiety. I have not been diagnosed with celiac-yet. But I'm investigating. Because I have always had bad eczema, and a whole slew of symptoms come in the past 11 years.

Fields Newbie
Fields
Posted
  • Author
My heart rate and BP have always been normal. But I've had lightheadedness daily for 11 years (I'm only 31), I also have BAD anxiety. I have not been diagnosed with celiac-yet. But I'm investigating. Because I have always had bad eczema, and a whole slew of symptoms come in the past 11 years.

Get tested - it may be the answer you're looking for.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Rocks in your ears can cause you to be dizzy. My dd had this and the treatment was easy (but made her dizzy for a few hours). Our PT therapist said this is very common in people.

BPPV explained:

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Looking for answers Contributor
Looking for answers
Posted

Hi,

I've had trouble with dizziness for years. Every time I stand up too fast, I get really dizzy and everything turns black. I have to stop and grab a wall and then it resolves in about 3-5 seconds. Is this what you are experiencing? If so, I ended up finding out that I have adrenal exhaustion, which is a common side effect of gluten intolerance (because of the severe stress it puts on our bodies). I've been seeing a naturopathic doctor who put me on his regime for several months now and I'm experiencing fewer episodes every week. The adrenals control hormones and electrolytes, etc, so it's all inter-related. As a plus, turns out low cortisol levels (found with adrenal fatigue) also causes lethargy and sluggishness. I'm also so much more energetic now.

Eric-C Enthusiast
Eric-C
Posted

I'll add my standard answer.

Yeast.

I had lightheadedness and all of that too, along with neuropathy, all due to hypoglycemia, the cause of the hypoglycemia was yeast.

Probiotics and Candex fixed me up.

Because the balance in our systems is so screwed up it allows yeast to thrive.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
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      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
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      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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