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Doctor In Eugene, Or? (or Anywhere Within 4 Hours)

Sunshine-Lollipop

By Sunshine-Lollipop
in Doctors

Recommended Posts

Sunshine-Lollipop Newbie
Sunshine-Lollipop
Posted

Hello :)

I am in Eugene, OR, and have been searching in vain for a doctor who can help me.

I have not been officially diagnosed with celiac, but I have very severe reactions every time I eat even the smallest amount of wheat, and I have had a saliva test which confirmed gluten sensitivity at the very least. I had stopped eating wheat for a couple of years before I even had heard of celiac, so I can't get the blood test (I'm not willing to risk the reaction from going back on wheat just for the test).

One relative has celiac, and given the severity of my symptoms I am pretty sure I have it too (along with multiple other food allergies, and I have very low iron, etc.) My biggest concern right now is finding a supplement that doesn't tax my adrenals or contain any of the numerous numerous food triggers that I need to avoid.

I would be willing to travel if need be.. at this point my diet is so limited that I'm very concerned about nutritional deficiencies.. time is of the essence.

I need a doctor with a lot of patience, who can help walk me through this. I have seen a number of doctors and naturopaths who wanted to hand me a bottle of standard vitamins and/or herbs and be done with it.. but my allergic reactions can be so severe that I am very hesitant to try anything that isn't simple food unless I know that my doc will be there for me if I have a negative reaction. I need help untangling the mess of allergies that I have as well as figuring out whether I have any additional problems underlying this.

Any good referrals?

Thank you!

  • 4 weeks later...
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ilikepie Apprentice
ilikepie
Posted

I am also in Eugene. Unfortunately, I have absolutely no good recommendations for you. I have many allergy problems as well, and have seen MANY doctors. Unfortunately, non of them seem to think my chronic diarrhea and accompanying abdominal pains are anything to be concerned about. What I can say, is to never go to Kaiser Permanente in Salem or Portland. There will be no one of use to you there. Sorry I couldn't be of more help. Best of luck to you and please share if you succeed in finding someone who can help you!

celiac-mommy Collaborator
celiac-mommy
Posted

Char Glenn at Nob Hill Internal Medicine in Portland. She's a PCP but her specialty is Celiac disease and nutrition. She's amazing!

Alice in Wheatland Newbie
Alice in Wheatland
Posted

Char Glenn at Nob Hill Internal Medicine in Portland. She's a PCP but her specialty is Celiac disease and nutrition. She's amazing!

I can second that. She was my doctor until I moved to Salem and can't drive that far. I am one who is very ill due to Celiac and related/unrelated issues.

I was hoping someone knew of an affordable Natropath here in Salem?? I called one guy but he was NOT affordable!

I know the pickings are slim, but if anyone has any leads that would be great.

~Mercy

  • 4 years later...
Sunshine-Lollipop Newbie
Sunshine-Lollipop
Posted
  • Author

Thank you all for the recommendations!

Archived

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  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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