Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Board


Darby

Recommended Posts

stef-the-kicking-cuty Enthusiast

Hey you two,

I don't think, you have to be ashamed of having this Emetephobia. I do not have Emetephobia (I guess) :unsure: and I panick also, when I have to throw up or if I see/hear somebody doing this. In fact, it is pretty nasty. Uuuggh!

And when I have nausea and I'm like on the couch, I'm even afraid of moving, cause I think, it could happen every minute. Never heard of that Emetephobia though. Hm...

Stef


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Darby Apprentice
Darby, I still get nausea for no reason at all. Of course, I've only been gluten-free for 4 months, but i still get it all the time.

The stomach cramps and bloating I used to have pre diagnosis, though, are now gone. Overall I feel much better.

I wonder why you're still getting the nausea?? Unless 4 months still has not been long enough. How long do you think you've had the wheat problem overall? I wonder if you've done more damage and need longer to heal?

I woke up this am feeling extremely anxious and nervous about this whole thing. I keep trying to tell myself to just STOP IT and if I have celiac then I just make the change. If I'm still just wheat intolerant - I make the change anyway. What else is there to do - right!!

I guess I wouldn't feel as anxious if I didn't have this vacation coming up. But the Dr. said that if they don't have the results back by the time we left, she'd call me in Maui to tell me what they were.

Darby

missla3000 Rookie

I am horrified too of being sick - but I can assure you that either way you have your endoscopy, make sure they numb your throat really well - asking for more if you can still feel yourself swallow, and of course let them know you are afraid of being sick! Once you have swallowed some of the stuff will go down and once it hits your stomach you will want to just lay down anyway - so dont worry after that its almost over! I am 27 and I was shaking from head to foot when I went in - so much so I almost passed out - but now I know its not that bad...hope that helps! And its better that you know either way as you have the rest of your life ahead of you feeling amazing!!!

KaitiUSA Enthusiast
I wonder why you're still getting the nausea??

Sometimes it takes people a longer time to heal. I did not feel alot better until month 3 and I wasn't back to normal till a few months after that. Everybody has different healing times and some can be in weeks and others months. It depends on a number of factors

jknnej-I get the spray at the Vitamin Shoppe. We usually order it via phone.

Darby Apprentice
I am horrified too of being sick - but I can assure you that either way you have your endoscopy, make sure they numb your throat really well - asking for more if you can still feel yourself swallow, and of course let them know you are afraid of being sick! Once you have swallowed some of the stuff will go down and once it hits your stomach you will want to just lay down anyway - so dont worry after that its almost over! I am 27 and I was shaking from head to foot when I went in - so much so I almost passed out - but now I know its not that bad...hope that helps! And its better that you know either way as you have the rest of your life ahead of you feeling amazing!!!

So you can't swallow after they numb your throat?? What happens to your saliva??

tarnalberry Community Regular

I would feel nausea as one of my hypoglycemic symptoms. I don't have any particularly great fear of throwing up if I'm anywhere that has a bathroom, but I really really really hate how it feels. Making sure to keep my hypoglycemic symptoms at bay, of course, helps that.

BTW, when I was in college, and there was a nasty stomach flu going around (this one actually wasn't food poisoning!), the health clinic prescribed Tygan when I couldn't keep anything down for days. It worked wonderfully, and I would expect (since the clinic prescribed it) that it isn't too expensive.

jknnej Collaborator

Darby,

I don't know why I still get nausea. That's what I've been trying to figure out. I am taking Prevacid because my doctor thought it might be acid reflux.

I don't think I have hypoglycemia b/c eating sugar doesn't alleviate it.

They've checked my thyroid, I don't have diabetes and have checked regular blood work in general. They have no clue what's wrong. That's why I still need to get the endoscopy done.

I am 28 and have had stomach issues since childhood without being diagnosed, so maybe it will take me longer to heal; I don't know.

Or it could also be anxiety. The xanax from time to time really helps and it got me through my vacation. As long as I have my meds with me, I feel a little better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Darby Apprentice
Darby,

I don't know why I still get nausea. That's what I've been trying to figure out. I am taking Prevacid because my doctor thought it might be acid reflux.

I don't think I have hypoglycemia b/c eating sugar doesn't alleviate it.

They've checked my thyroid, I don't have diabetes and have checked regular blood work in general. They have no clue what's wrong. That's why I still need to get the endoscopy done.

I am 28 and have had stomach issues since childhood without being diagnosed, so maybe it will take me longer to heal; I don't know.

Or it could also be anxiety. The xanax from time to time really helps and it got me through my vacation. As long as I have my meds with me, I feel a little better.

Again, we are so alike - its scary :) I spent the day today laying around on the couch and have been having a hard time eating because I'm nauseaus. Why.... because of anxiety over that stupid endoscopy!! I'm so scared of it. And I have to wait til Thurs. I'm going to call Monday am and see if they can't possibly get me in sooner. Not that I want to go thru with it BUT, it will be over with sooner. I'm afraid I'm going to make myself real sick over the worrying.

My husband finally said, "come on - get your dog and lets go for a walk in the foothills." It's only a couple of miles away. I feel better now - it really helped.

They told me to continue eating breads etc. so the test will be accurate and I've had some french bread and some graham crackers and I feel fine.

Shouldn't I be feeling sick after eating those type of foods??

I too have had stomach problems ever since childhood. My mom took me to Dr.'s when I was a kid and they did the barium x-rays etc... they finally just said that it was just a nervous stomach. No diagnosis.

I've always had some anxiety and that causes stomach upset and then the emet rears its ugly head - you know...

And I too feel better knowing I have meds on hand just in case.

I'm afraid that I will be sick or get sick in Maui but at least I'll have my meds with me. But still....

Today my husband said, "if you're too worried about going on vacation, we don't have to go." He's such a good guy- I don't know what I'd do without him.

But this vacation is a no-cancellation, no postpones. We would loose it all. I'll go. Maybe I'll just be fine. I remember we went to Oahu 2 years ago and I was terrified. That was our first trip in over 7 years. I was so nauseaus, I didn't think I would be able to go. I took my valium and I was like a zombie getting on the plane - LOL. Once we got there I was fine and I had never felt better while there. I didn't want to leave.

Last year we went to Maui and I was on my meds almost every other day BUT, that was because we were with my husband's brother and he is a very stressful person to be around - he's an old cranky fart. I wasn't comfortable around him.

Well, I've rattled on....

Darby

jknnej Collaborator

Foothills? Where do you live? I live in Arizona and we have foothills here, too.

You and I could be identical twins. My husband is the SAME way. He is so wonderful and takes care of me when I don't feel well.

Your test will be fine! If I can make it through a colonoscopy and I am a HUGE baby and emet, you can make it through, too. I promise when you get home you will say it wasn't bad. I was SO out of it during my test I didn't even know I had had a test at all. The demerol acts as an amnesiac so you won't even remember anything.

Until you go off gluten, you don't get an immediate sick reaction. It's more like feeling crappy all of the time. That's why eating bread doesn't make you feel bad. I used to eat English muffins whenever I was sick to my stomach and I swear they made me feel better...ironic, huh? Now I wouldn't touch one with a ten foot pole!

When I was a kid they told my mom the EXACT same thing; she just has a nervous stomach! We really could be twins!

Last night I had the mother of all migraines. I was SO sick I thought I would die, literally. Thank GOD for Imitrex. today I feel like a truck ran over me. I think these migraines are hereditary, my mother always had them, too. I didn't get them until 26; I'm 28 now. My mom said it was the same for her.

DONT cancel your vacation. I won't say don't stress about it because let's face it: we don't have that ability not to!! If you're anything like me you know that! you will have a wonderful time. It will be so relaxing and beautiful there and you will feel great. Even if you didn't, do what I do. I say to myself: no condition will stop me from living my life. Look at all of the people who have terminal illnesses that manage to carry on and live life to the fullest. I can do this!!! You can, too. I am glad I found you! We can really help each other get through things.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,161
    • Most Online (within 30 mins)
      7,748

    DAR girl
    Newest Member
    DAR girl
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
×
×
  • Create New...