Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pains When Do They Get Better


Diva1

Recommended Posts

Diva1 Enthusiast

Hello

Gluten free for 3 months now doing better but if I get glutened my symptoms seems worst than before the diet

and then the joint pains are incredible..hips to knees and neck...do they get better ..and will I get better

i feeling a bit depressed with all this....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Hi Diva1,

Are your joint pains all the time or are they only when you get glutened? If only when you are glutened then the most you can do is either drink some water to try to flush the system, sometimes it works sometimes not, take some L-glutamine. Again, sometimes helps sometimes not. Take a hot bath and curl up in your favorite pajamas and just try to wait it out. Sorry.

But if you have joint pains all the time try to eliminate all the nightshade vegetables, that will help some. If you get glutened the nightshade veggies will increase the pain. At least it did for me anyway. Hope you get to feeling better. Also, soy causes pain a lot too.

CarbQueen Newbie

I followed an elimination diet to determine which items were allergens. Once I eliminated those items all my symptoms cleared up.

I occasionally become glutened even with the best intentions. Those flares are unbearable. As my digestive system started healing the reactions to an accidental gluttening decreased.

It did start to get better. Hopefully, your flares will decrease in intensity.

Adelaide Crow Newbie

Just reading your question gives me some comfort because I'm not alone!! Have just been tested for gluten intolerance but I know that it what has been my problem for about 6 years now and I am determined never to have it again. I've been gluten free for two days and am still feeling terrible but will stick it out because (especially after my christmas gluten binge that enough is enough!!) In have really bad joint pains, exhaustion, eye pain, eye problems, occasional rashes and bumps, weakness and mental confusion/ anxiety. Its so amazing to see other people writing what Ive always suspected and every time i've been to the doctor felt like a complete looney trying to explain . . . even people's "glutened" reactions. anyway but im wondering now am i reacting to carageenan and sulfites (which i think i probably am) or am i just in gluten withdrawal because i still feel pretty bad. but i am getting the urge to go sniff bread . . . !! anway hope your feeling better.

adelaide crow

Diva1 Enthusiast

Just reading your question gives me some comfort because I'm not alone!! Have just been tested for gluten intolerance but I know that it what has been my problem for about 6 years now and I am determined never to have it again. I've been gluten free for two days and am still feeling terrible but will stick it out because (especially after my christmas gluten binge that enough is enough!!) In have really bad joint pains, exhaustion, eye pain, eye problems, occasional rashes and bumps, weakness and mental confusion/ anxiety. Its so amazing to see other people writing what Ive always suspected and every time i've been to the doctor felt like a complete looney trying to explain . . . even people's "glutened" reactions. anyway but im wondering now am i reacting to carageenan and sulfites (which i think i probably am) or am i just in gluten withdrawal because i still feel pretty bad. but i am getting the urge to go sniff bread . . . !! anway hope your feeling better.

adelaide crow

Thanks i guess we can comfort each other with our posting..this is a fabulous forum.

Hope you get better with time I guess patience is the key...

Diva

RiceGuy Collaborator

I found magnesium to be incredibly helpful for various body/joint/muscle pains. And I second the suggestion to avoid nightshades - they really brought on the pain in my case.

Fiddle-Faddle Community Regular

Many celiacs with joint pain find that dairy triggers their joint pain as much as gluten. Sad, but common. You may need to eliminate all dairy, not just lactose.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
tls527 Rookie

Another thing you can try for joint pain is to have your Vitamin D3 levels checked by blood work. My husband has been gluten free for about 8 years and still was having joint pain over entire body. Had blood work done and found out that his Vitamin D3 levels were low. Doctor put him on 4 weeks of vitamin D prescription and the pain is entirely gone. He has to stay on over the counter Vitamin D3 once a day but he no longer has any pain.

Tina in NJ

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.