Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pains When Do They Get Better


Diva1

Recommended Posts

Diva1 Enthusiast

Hello

Gluten free for 3 months now doing better but if I get glutened my symptoms seems worst than before the diet

and then the joint pains are incredible..hips to knees and neck...do they get better ..and will I get better

i feeling a bit depressed with all this....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Hi Diva1,

Are your joint pains all the time or are they only when you get glutened? If only when you are glutened then the most you can do is either drink some water to try to flush the system, sometimes it works sometimes not, take some L-glutamine. Again, sometimes helps sometimes not. Take a hot bath and curl up in your favorite pajamas and just try to wait it out. Sorry.

But if you have joint pains all the time try to eliminate all the nightshade vegetables, that will help some. If you get glutened the nightshade veggies will increase the pain. At least it did for me anyway. Hope you get to feeling better. Also, soy causes pain a lot too.

CarbQueen Newbie

I followed an elimination diet to determine which items were allergens. Once I eliminated those items all my symptoms cleared up.

I occasionally become glutened even with the best intentions. Those flares are unbearable. As my digestive system started healing the reactions to an accidental gluttening decreased.

It did start to get better. Hopefully, your flares will decrease in intensity.

Adelaide Crow Newbie

Just reading your question gives me some comfort because I'm not alone!! Have just been tested for gluten intolerance but I know that it what has been my problem for about 6 years now and I am determined never to have it again. I've been gluten free for two days and am still feeling terrible but will stick it out because (especially after my christmas gluten binge that enough is enough!!) In have really bad joint pains, exhaustion, eye pain, eye problems, occasional rashes and bumps, weakness and mental confusion/ anxiety. Its so amazing to see other people writing what Ive always suspected and every time i've been to the doctor felt like a complete looney trying to explain . . . even people's "glutened" reactions. anyway but im wondering now am i reacting to carageenan and sulfites (which i think i probably am) or am i just in gluten withdrawal because i still feel pretty bad. but i am getting the urge to go sniff bread . . . !! anway hope your feeling better.

adelaide crow

Diva1 Enthusiast

Just reading your question gives me some comfort because I'm not alone!! Have just been tested for gluten intolerance but I know that it what has been my problem for about 6 years now and I am determined never to have it again. I've been gluten free for two days and am still feeling terrible but will stick it out because (especially after my christmas gluten binge that enough is enough!!) In have really bad joint pains, exhaustion, eye pain, eye problems, occasional rashes and bumps, weakness and mental confusion/ anxiety. Its so amazing to see other people writing what Ive always suspected and every time i've been to the doctor felt like a complete looney trying to explain . . . even people's "glutened" reactions. anyway but im wondering now am i reacting to carageenan and sulfites (which i think i probably am) or am i just in gluten withdrawal because i still feel pretty bad. but i am getting the urge to go sniff bread . . . !! anway hope your feeling better.

adelaide crow

Thanks i guess we can comfort each other with our posting..this is a fabulous forum.

Hope you get better with time I guess patience is the key...

Diva

RiceGuy Collaborator

I found magnesium to be incredibly helpful for various body/joint/muscle pains. And I second the suggestion to avoid nightshades - they really brought on the pain in my case.

Fiddle-Faddle Community Regular

Many celiacs with joint pain find that dairy triggers their joint pain as much as gluten. Sad, but common. You may need to eliminate all dairy, not just lactose.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
tls527 Rookie

Another thing you can try for joint pain is to have your Vitamin D3 levels checked by blood work. My husband has been gluten free for about 8 years and still was having joint pain over entire body. Had blood work done and found out that his Vitamin D3 levels were low. Doctor put him on 4 weeks of vitamin D prescription and the pain is entirely gone. He has to stay on over the counter Vitamin D3 once a day but he no longer has any pain.

Tina in NJ

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.