Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wow!


camprunner

Recommended Posts

camprunner Apprentice

I've never had positive test results to Celiac and my doctor said that I "probably have a gluten intolerance". Anyway, I eliminated gluten from my diet (for the second time in my life) a little over three months ago. I've lost a grand total of 7 pounds this time because I know how to eat on the diet so my eating habits didn't change as much as one might think this time.

I was just looking at my facebook profile pictures and it's amazing to me. I have four.

1. Taken when I thought I was ADHD (quit medicine before seeing a more natural doctor and symptoms disappear everytime gluten is eliminated). You can tell I don't weigh much but there is obvious swelling in my face.

2. Taken this summer when not on a gluten free diet. My face is very swollen.

3. Taken 3 weeks into gluten free diet. Swelling in face has obviously gone down but still there.

4. Taken 3 months into gluten free diet, I don't even look like the same person! The swelling in my face has gone down significantly. I don't know if there is more swelling or not as I have not been well for the last 19 years so it's possible....

Also I am able to wear my contacts that started bothering me 3 years ago. For three years, I've only been able to wear them on special occaions until now. My night vision is also better.

There is more, but honestly, I forget about the other symptoms unless I'm looking at a list because they've been gone so long!

I know that everyone has these stories but I am truly amazed how one food might be doing this to me! I truthfully think I also need to eliminate chocolate for a little while and that will be happening very soon!

On the down side, in the event that I accidentally consume gluten I am showing the gastrointestinal symptoms that have never shown themselves before such as feeling like the whole middle part of my body is on fire and painful constipation. This however, is only reinforcing my need to stay off of gluten.

I think I will keep referring back to my facebook pictures everytime I think that it might be ok to consume gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

The changes can be amazing. Glad you are recovering well.

still tiredofdoctors Rookie

I agree with Ravenwood Glass -- sometimes the changes ARE amazing. I think you may find, as time goes on, that you will recognize that more of these "subtle" side-effects of celiac resolve. Best of luck to you!

camprunner Apprentice

Thanks. I look forward to seeing more improvements. I've been sick to some extent for the last 19 years so this is very exciting.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,811
    • Most Online (within 30 mins)
      7,748

    doodlebubbles
    Newest Member
    doodlebubbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.