Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh My Poor Baby


mommaofthreebeans

Recommended Posts

mommaofthreebeans Rookie

Hi I am new here.

My 11 month old soon is allergic to wheat ( and soy, and rice, and eggs, oh joy) lol

My 4 yr old son had a biopsy done when he was 2, they said there was damage to his intestines but couldnt conclusively say it was celiac. ( which I am still confused about). But anyway, with my youngest's obvious reaction to all things wheat I have decided to just make the leap and have at least the kids and I go completely gluten free.

the baby was diagnosed with the allergies when i was breastfeeding, I was told that I was no longer able to breastfeed and adhere to his diet with us both staying healthy, so we switched to Alimentum (which he reacted to), and then we switched him to goat's milk, and with a more serious food screening we discovered he was not allergic to lactose so we switched to cows milk around 7 months coupled with iron drops.

The poor boy's excema is awful and so are his reactive rashes. Just glad to have found a place to learn from and get support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi Momma and Welcome!

I always marvel at the strength of mothers, when their children have special diet needs.

We have many moms who will share their experience with you. How long has your family been totally gluten free? Do your or the father, or grandparents have digestive issues? Twenty percent of first degree relatives can develop Celiac Disease.

Blunted villi is not conclusive for Celiac, but coupled with the rest of the family history, it may be likely.

I would put the entire family on a 100% gluten free diet for several months. I bet you would be surprised at the improvement.

C.com is full of useful information, with hundreds of moms who have walked in your shoes to guide you along. You have come to a great place.

mommaofthreebeans Rookie

thanks for the warm welcome I appreciate it!

My husband thought that I was overly worried about my oldest son, but now with the baby's allergies he is coming around. But of course he worried about cost.

nmlove Contributor

Welcome! If there's something positive to be said for kids on special diets, it's that they quickly adapt to it and also what great stuff there is out there now (products and info). Though I'll be the first to admit that some days I just want to throw in the towel...

I hope that your littlest one outgrows his allergies. And hopefully his eczema clears up soon. That's so hard for little ones. I'm nervous to introduce food to my baby as she's definitely reacting to some of what I eat through breastmilk. Just wondering though why they said you couldn't still breastfeed? I've had to cut out dairy/soy and doing well without it. And joy of joys, I was able to have chocolate for the first time since June a few weeks ago. Heaven!

taweavmo3 Enthusiast

If your husband is worried about cost, the diet can be done frugally with planning and organization. I'm a stay at home mom of four kids, and I feed us all gluten/dairy free for about $120 a week or less. And that includes a 10 year old who is quickly becoming and endless pit : )

I cook everything from scratch, and scour gluten free blogs for simple recipes. My gluten-free flour essentials are brown rice flour, white rice flour, potato starch, tapioca starch, and sorghum. Also, I try to sub guar gum (it's half the price) for xanthan gum in my baked goods....but not bread! You need Xanthan in bread I have found.

Is corn a problem for your kiddos? We do alot with corn tortillas, and I also make different things out of Maseca masa harina..it's dirt cheap, and I only mix it with water to make a dough. My kids favorite is to roll out the dough really thin, fry it up, then slather it with a butter sub and some cinnamon sugar. Tastes almost like a cinnamon roll!

Lunches are the hardest I have found....kids usually have a sandwich and fruit, or leftovers. Also, Angel Food ministries has an allergen box filled with kid friendly food like chicken nuggets, chicken tenders, etc. that is free of the top eight allergens.

I hope that helps some! If you need menu planning ideas or anything, just send me a message and I'd be happy to help. This board is a great resource, especially when you are just getting started. Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,665
    • Most Online (within 30 mins)
      7,748

    Christa Cook
    Newest Member
    Christa Cook
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.