Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergy Testing


SGWhiskers

Recommended Posts

SGWhiskers Collaborator

I'm CONFUSED! I need your collective knowledge and experiences.

5 years ago, tested positive through blood tests for tree, milk, and egg allergies

1.5 years ago, tested positive for celiac

Today, skin scratch test says trees, weeds, cat allergies. The allergist says if I don't have hives, swelling, difficulty breathing, I don't have milk/egg allergies. (But I could still have intolerances and definately have celiac).

So, which kind of testing is the trump card? Blood over skin, skin over blood, or blood and skin added together?

And then allergy shots were given as an option for 3-5 years. I don't even know where to begin thinking about that.

Please share knowledge, reputable resources, personal experiences about allergy testing and allergy treatment.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

I went through some of the same feelings a year ago with kiddo and I when we were tested through a run of the mill allergist. By the grace of God, I came across a different allergist who has helped(and is helping) sort this all out alot. Old allergist didn't believe in dietary changes unless an anaphalactic reaction presented. New allergist is up on celiac disease, runs gene tests through Prometheus labs, does skin testing but with different protocol, runs comprehensive food panels and orders a form of elimination diet followed by reintroduction for those that show skin reaction. I think he would disagree with your allergist about the eggs and milk. The old allergist put everything on at once with skin testing. I passed out and they wiped it all off so we never knew what I reacted to. New allergist routinely puddles first, then pricks for those of concern, also starts with a few at a time or certain groups and waiting and watching before proceeding. Takes longer but is better. I highly recommend finding someone like this. Hope that gives you some direction and ideas for questions to ask. Kiddo has such a big environmental allergy load and strong reaction to some things that we have gone ahead with shots. We tried environmental control and nasal rinsing but it didn't make enough of a difference. Environmental control and nasal rinsing as well as being CF gives me alot of relief from nasal irritation(not enough but I'm still a work in progress)I trust our new allergist. We're on the same page so hopeful the shots will help kiddo. In the meantime, he is on meds as well. Poor kid said his food tastes so much better now! I had tests for milk last year-blood(egg-milk subfraction) and skin-neg. but this skin test this year was pos. for casein. I know I have problems with milk-just didn't know if it was an immune reaction for sure. I don't know if all skin tests are equal and I'm sure there are different blood tests for the foods.

SGWhiskers Collaborator

Thank you for sharing your experiences. I would love to hear from others. I don't like the hours that the allergist has for receiving shots, so I may be looking for someone else if I want to persue shots. I've eaten eggs twice now. I'm still reserving judgement on my reaction. Yum yum though. I hope your son is doing well with the shots. They don't sound like fun.

I really would love to hear from some other people about their expiences. I love getting multiple perspectives.

burdee Enthusiast

Skin tests only show how our skin reacts in contact with certain substances. Skin tests cannot diagnosed food allergies, because we do NOT put food under our skin when we eat. Only blood tests, which show whether our blood reacts to the presence of food proteins by producing antibodies, can diagnose food allergies. When we eat, we digest the food in our gastrointestinal system. Food allergies can be caused by IgE, IgG or IgA antibodies. The IgE antibodies usually cause immediate and sometimes life threatening reactions, like hives, swelling and difficulty breathing. Your second allergist may believe that all allergies are IgE or immediate reaction allergies. IgG and IgA mediated allergies are usually delayed, non-life threatening reactions to foods.

When I took the Enterolab tests for gluten intolerance, casein and soy allergy, I did a stool test, which looks for IgA antibodies to certain foods. That test diagnosed my dairy and soy allergies as well as gluten intolerance. Those test results matched my experience of excruciating intestinal cramps after eating any of those 3 foods.

2 years later I took the ELISA (enzyme linked immunosorbent assay) blood test for over 100 different foods. That blood test looked for IgG and IgE antibodies. The ELISA test diagnosed my egg and cane sugar allergies which matched my negative experiences with eggs and cane sugar. A year later (after I continued to have symptoms) I took the ELISA herb and spice test which diagnosed my allergies to vanilla and nutmeg. Those results also matched my experience of gastrointestinal pain after consuming those spices.

SUE

I'm CONFUSED! I need your collective knowledge and experiences.

5 years ago, tested positive through blood tests for tree, milk, and egg allergies

1.5 years ago, tested positive for celiac

Today, skin scratch test says trees, weeds, cat allergies. The allergist says if I don't have hives, swelling, difficulty breathing, I don't have milk/egg allergies. (But I could still have intolerances and definately have celiac).

So, which kind of testing is the trump card? Blood over skin, skin over blood, or blood and skin added together?

And then allergy shots were given as an option for 3-5 years. I don't even know where to begin thinking about that.

Please share knowledge, reputable resources, personal experiences about allergy testing and allergy treatment.

VioletBlue Contributor

I don't have any faith in allergy tests. The results can be open to interpretation. For me the best test is what happens when I eat something. If there's a negative reaction under different circumstances more than 3 times to any food I pay attention. My body doesn't react the exact same way to all foods, but I've gotten to know what a negative reaction feels like. I tend to think we're better off trusting and listening to our bodies than relying on tests.

missy'smom Collaborator

I have found the particular skin testing I had this time around to be very helpful. My allergist probably would agree that it's not the be all end all. It has given us some direction. He combines it with a dietary elimination/trial. After testing for around 80 out of 100 foods, I reacted to 26. Eliminated all of them and felt a great, unexpected improvement in digestion. My tummy felt absolutely nothing after meals! So calm. It was hard to get used to. Many people have noted that my color looks better, without knowing that I have made any changes. After keeping the reactors out for a good amount of time, we are re-introducing them one by one, one each week and noting what happens. I agree that we have to listen to and trust our bodies that's the bottom line but I'm also all for giving tests a try to give us direction so we don't have to figure everything out on our own all the time. I could never have figured out all those that I reacted to on my own and I may not have to keep all of them out but it may help me figure out which one or ones are the offenders and when I saw the list, I could see right away what was going on and it all made sense, so the overall picture wasn't just random, oddball results. All that being said, I have found it a challenge to nail down a DX for my issues with eggs(which I suspect) and dairy(which there's no question that I have, it's just a matter of why/what DX). I tried several types of tests for dairy and finally this recent skin test was the first one that was positive.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    5. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,211
    • Most Online (within 30 mins)
      7,748

    IvonneT
    Newest Member
    IvonneT
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.