Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergy Test Confusion?


JessicaHall

Recommended Posts

JessicaHall Rookie

Will an allergy test FOR SURE indicate a wheat/gluten allergy?

Is there a way that I could still have an allergy to certain foods if

the test comes back negative??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Will an allergy test FOR SURE indicate a wheat/gluten allergy?

Is there a way that I could still have an allergy to certain foods if

the test comes back negative??

Jessica, are you talking about an IGe moderated allergy by taking the ELISA test, or are you talking about testing for gluten/wheat intolerance by doing the celiac panel testing? It was not clear from your post. There is a difference between an allergy and an intolerance. If you are allergic to wheat, you may have an anaphylactic (life-threatening) response to it, or develop a contact dermatitis from touching it. If you are intolerant of it, you will develop an autoimmune response. The celiac testing measures the IGg response (autoimmune)

SLB5757 Enthusiast

Jessica,

My allergy tests were IGE Rasts for allergies. They first did skin testing and then followed it up by having blood drawn (IGE Rasts) just to be certain of my allergies.

The blood tests are to be more accurate. I can say however that I had numerous tests that were high positives, and I still consume the foods. If the food does not cause you allergic symptoms you can still have the food. There was no way I could eliminate wheat, rye, barley, oats, soy, corn, potato, tomato, all nuts, almost all fruits...etc from my diet. What I DO try to follow is a diet where I eat all meats that are lean, steamed veggies, rice, and I will rotate the "allergens" and try not to eat two in the same day. I will actually have corn one day...then potato another....etc, so that I only eat the allergen maybe every third day.

The only exception to this is that I NEVER eat wheat. Although the allergy is the same as the rest per the testing ( a high 4++), I never eat it. I have found if I eat even a little wheat - I will have major respiratory symptoms and labored breathing. I do not know if it is a more sever reaction because it is one of the top allergens or what. I just simply stay away from wheat because I cannot handle the "I can't breathe" feeling.

The celiac IGg testing if for a gluten intolerance and autoimmune response. I was negative for celiac but avoid wheat due to the allergy. My symptoms were nasal stuffiness and drainage, respiratory "hard to breathe" and sore throat feeling, and major distended stomach.

If you want to be certain if you have an allergy you need to have testing done (skin or RAST)by a reputable allergist, and you also need to be very aware of the reaction the food causes. You wouldn't want to eliminate say lettuce if you turned up positive and had no symptoms. At times if you are highly allergic to an environmental allergen then you can test positive to a food that is in the same "family". I for example have an extreme ragweed allergy. Because of this I show positive for lettuce and other things that don't give me too much trouble. The allergist can give you a list of "concomitant foods" which will show you what to avoid if you have a tree allergy, a ragweed allergy...etc. Typically the foods only have to be avoided in the season that the allergen is at its peak or highest.

Hope that helps a little...I am just a highly allergic individual so I have studied this quite alot.

sandsurfgirl Collaborator

Just like celiac testing, allergy testing can be so innacurate, especially with foods. My mother in law is an allergist and her opinion is that you should go by your symptoms. If you are positive and symptom free, then eat it sparingly. If you come up negative but know a food gives you symptoms consider yourself allergic and avoid it.

She also says the very best way to be sure is to do an elimination diet. If she could she would have all her patients do it, but getting them to adhere to any diet is next to impossible so it's not something she's had success with. Plus it's a pain. You have to go down to a short list of non allergenic foods and then add a new food every 4 days. It takes forever.

She has also said that even if you are allergic, your body can have a limit of what you can handle. You need to experiment with foods to see where your limit is between having symptoms and no symptoms.

Of course that does NOT apply to celiac disease because it's not an allergy and there is no limit. Whether or not you have symptoms gluten is poison to us, so the glutens don't count.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.