Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Gluten Free...Need Help


Phoebemom

Recommended Posts

Phoebemom Newbie

Hi everyone,

My daughter was recently put on a gluten free diet. She was exposed to gluten on Friday. Today is Wednesday. Could she still be having symptoms from gluten exposure. On Saturday she had a terrible tummy ache, and was quick to be in tears. Today, she is still very sensitive. She is five, but I'm wondering if anyone has any kids who become overly sensitive when they are exposed to gluten. Or is it because she is five. Or maybe both.

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Hello

Yes she still could be having issues with being exposed to gluten. I would try to keep her away from gluten in any form. If may be you find out that she is one of the super sensitive celiac people. everyone reacts different & the lasting effects vary greatly as well.....

blessings

mamaw

  • 2 weeks later...
mygfworld Apprentice

Welcome to the world of kiddos with Celiacs. I also have a 5 yr old celiac. She's had Celiacs for 3 yrs. She is Gluten free/casein free. She reacts differently to dairy than wheat. At least that is what we think. The only time she had a bad wheat reaction it involved vomiting and diahrea for a solid week - very scary for everyone. Off to the gastro which was a waste of money. And yes, durign that week she was attached to me constantly, cried often, lethargic, miserable, upset, etc. As you have heard everyone seems to react differently. Watch your child and try to notice what her reactiosn are like, how long they last, and what to expect.

Here is what happens to my 5 yr old. A typical mild reaction to cross contamination with wheat or dairy or a reaction to trace amounts of dairy usually last for 1 to 2 weeks. The first week is the worst. My bubbly happy child turns miserable. Peeing while sleeping happens quite a bit during reactions So much that I pack extra clothes in the car and at school when she is having a reaction. Crying over something she would never have even been upset about on a normal day. Extremely irritable. Rashes on feet and legs. Extremely clingy. Sleepy. Have I mentioned HYPER! I timed her once unable to stop talking or sit still for one solid minute over a four hour time period! Needless to say, although your child is hurting, you'll need a way to find patience because it is difficult for everyone. (I also tell the teachers when I think she is having a reaction, so they know why she is haivng a hard time at school.

For myself, when I have a reaction I notice extreme irritable moods, skin sensitivity, along with all the abdominal pain. It also takes the better part of a week or two before I start feeling decent again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    2. - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    3. - dsfraley replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    4. - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      14

      Diagnosed Marsh stage 3C in January 2026

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,555
    • Most Online (within 30 mins)
      7,748

    Sam25
    Newest Member
    Sam25
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Lactose intolerance is not necessarily to problem in the celiac community. Intolerance to the dairy protein casein can be the culprit as it is similar enough to gluten to cause cross reactivity in a fairly significant element of the celiac population. Oats and dairy are common cross reactors in the celiac community. Eggs, corn and soy are also common cross reactors but oats and dairy are the two big ones.
    • knitty kitty
      Thought I'd leave you the references: Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ "The early symptoms of TD are non-specific and may be easily attributed to any number of disease processes. Unrelenting or uncharacteristic fatigue, changes in mood with a tendency towards hyper-irritability and mood lability are common [4]. A sense of mental fuzziness and subtle decrements in memory are often reported, along with loss of appetite, sleep disturbances and/or gastrointestinal (GI) discomfort and dysmotility. Food intolerances and vomiting may develop as the deficiency progresses. Experimental [5] and case literature [6] suggest GI discomfort and dysmotility may be more prevalent early indications of TD than currently appreciated. A form of GI beriberi has been identified but is under-recognized [7]." and... Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/  
    • dsfraley
      Thank you for these thoughts, Knitty. Trents: Yes. I would say we are taking it relatively light on his belly because it's been upset, so no heavy/excessive dairy, but he has had some cheese here and there. Not high quantities, however, and tests were negative for lactose intolerance.
    • trents
    • knitty kitty
      Being low in Thiamine B1 can cause fingers and toes to be cold all the time.  Thiamine deficiency affects body temperature regulation and sleep/wake cycles.   Thiamine deficiency-induced disruptions in the diurnal rhythm and regulation of body temperature in the rat https://pubmed.ncbi.nlm.nih.gov/9804367/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.