Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Gluten Free...Need Help


Phoebemom

Recommended Posts

Phoebemom Newbie

Hi everyone,

My daughter was recently put on a gluten free diet. She was exposed to gluten on Friday. Today is Wednesday. Could she still be having symptoms from gluten exposure. On Saturday she had a terrible tummy ache, and was quick to be in tears. Today, she is still very sensitive. She is five, but I'm wondering if anyone has any kids who become overly sensitive when they are exposed to gluten. Or is it because she is five. Or maybe both.

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Hello

Yes she still could be having issues with being exposed to gluten. I would try to keep her away from gluten in any form. If may be you find out that she is one of the super sensitive celiac people. everyone reacts different & the lasting effects vary greatly as well.....

blessings

mamaw

  • 2 weeks later...
mygfworld Apprentice

Welcome to the world of kiddos with Celiacs. I also have a 5 yr old celiac. She's had Celiacs for 3 yrs. She is Gluten free/casein free. She reacts differently to dairy than wheat. At least that is what we think. The only time she had a bad wheat reaction it involved vomiting and diahrea for a solid week - very scary for everyone. Off to the gastro which was a waste of money. And yes, durign that week she was attached to me constantly, cried often, lethargic, miserable, upset, etc. As you have heard everyone seems to react differently. Watch your child and try to notice what her reactiosn are like, how long they last, and what to expect.

Here is what happens to my 5 yr old. A typical mild reaction to cross contamination with wheat or dairy or a reaction to trace amounts of dairy usually last for 1 to 2 weeks. The first week is the worst. My bubbly happy child turns miserable. Peeing while sleeping happens quite a bit during reactions So much that I pack extra clothes in the car and at school when she is having a reaction. Crying over something she would never have even been upset about on a normal day. Extremely irritable. Rashes on feet and legs. Extremely clingy. Sleepy. Have I mentioned HYPER! I timed her once unable to stop talking or sit still for one solid minute over a four hour time period! Needless to say, although your child is hurting, you'll need a way to find patience because it is difficult for everyone. (I also tell the teachers when I think she is having a reaction, so they know why she is haivng a hard time at school.

For myself, when I have a reaction I notice extreme irritable moods, skin sensitivity, along with all the abdominal pain. It also takes the better part of a week or two before I start feeling decent again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

    2. - Scott Adams replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Great Value Veggies cannot be trusted.

    3. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

    4. - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

    5. - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,442
    • Most Online (within 30 mins)
      7,748

    Peggy Vorell
    Newest Member
    Peggy Vorell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Known1
      My neighbor's mom was diagnosed with celiac disease 16 years ago.  She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals.  This evening she brought over 2 slices of Papa Murphy's gluten-free pizza.  It looks to be topped with chicken and spinach.  I asked, "aren't you concerned with cross contamination"?  She said no and apparently eats it on a somewhat regular basis. I found an old article here along with another thread pertaining to Papa Murphy's gluten-free pizza.  The article is quite old, so I do not think it holds much weight nowadays.  The thread I found was also a bit dated, but certainly more recent and relevant.  The information in the thread I found was a bit inconclusive.  Some said they trust Papa Murphy's gluten-free pizza and others were a big no way.  One person even took time to train their local franchise on how to ensure the pizza remains gluten-free without cross contamination. Anyway, being recently diagnosed as marsh 3c, I am currently working on week 3 or 4 in my new gluten-free journey.  I do not want to be rude and toss the pizza out, but I also do not want to have a reaction.  Since she has celiac and obviously ate much or at least some of the pizza, I am leaning towards eating the two slices for lunch tomorrow.  As this thread's title states, what would you do?  Would you eat it or toss it out?  I suppose I could also just give it back to my neighbor to polish off. I look forward to reading your thoughts. Thanks, Known1
    • Scott Adams
      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
    • trents
      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
      THANKS again!!!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.