Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free & Multiple Sclerosis?


GFDietitian

Recommended Posts

GFDietitian Newbie

So, wondering if anyone else out there is gluten free and has a diagnosis of Multiple Sclerosis??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

So, wondering if anyone else out there is gluten free and has a diagnosis of Multiple Sclerosis??

I was thought to have it for a long time but it turned out to be the celiac brain impact. All my MS symptoms resolved within a few months. The only thing that remains is balance issues, which are actually gluten ataxia, but those are still continueing to improve.

VioletBlue Contributor

I am like Ravenwood. Most of the neurological symptoms have gone away. My balance and vertigo issues are better after almost 4 years gluten-free but balance is still a problem in some circumstances.

I was thought to have it for a long time but it turned out to be the celiac brain impact. All my MS symptoms resolved within a few months. The only thing that remains is balance issues, which are actually gluten ataxia, but those are still continueing to improve.

orchid1 Newbie

So, wondering if anyone else out there is gluten free and has a diagnosis of Multiple Sclerosis??

i am a celiac but my sister and one of her friends had been diagnosed with MS over 10 years ago. several monthes ago i came accross an article in August edition of Scientic America which mentioned how rheumatoid arthritis. diabeties 1, celiac disease and MS (all being autoimmune diseases) have "leaky gut" syndrome in common. after several monthes of badgering they were convinced to try a gluten free, legume free, dairy free diet (basically that is the diet i am on because of legume, corn, rice, potatoe, sugar, red meat, poly fats, most oils and nuts intolernces) my sister's symptons stabalized and is condsidered in remission: her friend who, because of ataxia had gone from using a cane to using a walker and getting ready to use a wheelchair now walks without a cane or walker. she has also enjoyed recovery in several other areas. her pace of recovery has been nothing less than a miracle in her own words. she has also signed up as a voluteer for the CCSVI study being conducted by the local university

nutralady2001 Newbie

I have just met some-one whose sister has MS. The sister is on a gluten free diet and is adament that it helps .

jackay Enthusiast

I have a friend who has MS. How do I suggest a gluten free diet without being preachy? I really would like her to try it but I don't want her to think I am pushing gluten free down her throat.

ciavyn Contributor

I have a friend who has MS. How do I suggest a gluten free diet without being preachy? I really would like her to try it but I don't want her to think I am pushing gluten free down her throat.

Find a good article to show her, make the suggestion, and don't talk about yourself and your gluten issues. I'm sure she'll appreciate anything that might help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

I have a friend who has MS. How do I suggest a gluten free diet without being preachy? I really would like her to try it but I don't want her to think I am pushing gluten free down her throat.

_______________

Send her the url of this website. Some forms of gluten intolerance have neurological symptoms that match MS. Some of us, myself included, no longer need a cane to walk and have regained feeling in our hands and feet after going on a gluten free diet. I didn't have the stuff in the spinal fluid but I did have brain lesions called bright spots. Never a formal diagnosis after being told I probably had it, by many doctors. Did intensive internet research, found some sites saying diet helped certain kinds of arthritis and sometimes MS, tried the diet, figuring I had nothing to lose and it wouldn't hurt.

It won't be a miracle for everybody, but consider that it is now thought that 1 out of 100 people are celiac or gluten intolerant, and the majority are undiagnosed- likely because they didn't waste away but are showing other, baffling symptoms. I think a large number of people with "fibro" and gut issues and brain fog could be likely candidates, that haven't deteriorated to ataxia and numbness yet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      11

      gluten free cookie recipes

    2. - lmemsm replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      11

      gluten free cookie recipes

    3. - Sheila G. replied to Sheila G.'s topic in Related Issues & Disorders
      7

      No red meat

    4. - WOLINM replied to Charlie1946's topic in Related Issues & Disorders
      12

      Severe severe mouth pain

    5. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,905
    • Most Online (within 30 mins)
      7,748

    LisaH71
    Newest Member
    LisaH71
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Florence Lillian
      Peanut Butter cookies - on the crisp side.   approx 20 smallish cookies  1 C  plus 2 tblsp rounded. 'natural' peanut butter ( the kind you have to stir to blend the PB & oils)....  I know, it's a pain!! 1/2 c granulated sugar ....plus 2 tblsp dark brown sugar 1/4 c olive oil... plus 1 tblsp 1 large egg .....and 1 tsp vanilla 2 tsp cinnamon - optional but is yummy with the PB mix the above.  In another bowl mix the following dry ingredients: 1 cup brown rice flour  ( I use this  flour as it leaves no yucky after taste in my cookies & lb cakes..... and coffee cake, I buy it at the "Bulk Barn" here in Canada....... states side try health food stores??? I'm not sure where you can buy bulk food that also carries gluten free flours. 1/2 tsp baking soda.....1/4 tsp salt   (I use the pink sea salt) Mix well or sift, then mix with wet ingredients. heat oven to 350f, line baking sheet with parchment paper. Roll about 2 tblsp dough between your hands, place on cookie sheet and press down  with a fork.   The flatter the cookie the crispier it is.     Bake 13-14 min  When done leave on baking sheet till cool. Cheers, Florence   
    • lmemsm
      I know it's after the holidays, but it would still be fun to do a cookie recipe exchange on this forum.
    • Sheila G.
      I did talk to the nurse and she asked who told me no red meat.  I explained the person who called with the results of my blood work.  That was last week.  She told me the doctor was on vacation and would be back this week and she would talk to him and have someone call me this week.  I have not received a call yet.  I will call them back Monday as a reminder.
    • WOLINM
      Thanks for sharing the information. Vitamin is very important for our health.
    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.