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GFDietitian

Gluten Free & Multiple Sclerosis?

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So, wondering if anyone else out there is gluten free and has a diagnosis of Multiple Sclerosis??

I was thought to have it for a long time but it turned out to be the celiac brain impact. All my MS symptoms resolved within a few months. The only thing that remains is balance issues, which are actually gluten ataxia, but those are still continueing to improve.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I am like Ravenwood. Most of the neurological symptoms have gone away. My balance and vertigo issues are better after almost 4 years gluten-free but balance is still a problem in some circumstances.

I was thought to have it for a long time but it turned out to be the celiac brain impact. All my MS symptoms resolved within a few months. The only thing that remains is balance issues, which are actually gluten ataxia, but those are still continueing to improve.


"My mother always told me, it's okay to play with a man's mind

as long as you put it back where you got it when you're done with it."

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So, wondering if anyone else out there is gluten free and has a diagnosis of Multiple Sclerosis??

i am a celiac but my sister and one of her friends had been diagnosed with MS over 10 years ago. several monthes ago i came accross an article in August edition of Scientic America which mentioned how rheumatoid arthritis. diabeties 1, celiac disease and MS (all being autoimmune diseases) have "leaky gut" syndrome in common. after several monthes of badgering they were convinced to try a gluten free, legume free, dairy free diet (basically that is the diet i am on because of legume, corn, rice, potatoe, sugar, red meat, poly fats, most oils and nuts intolernces) my sister's symptons stabalized and is condsidered in remission: her friend who, because of ataxia had gone from using a cane to using a walker and getting ready to use a wheelchair now walks without a cane or walker. she has also enjoyed recovery in several other areas. her pace of recovery has been nothing less than a miracle in her own words. she has also signed up as a voluteer for the CCSVI study being conducted by the local university

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I have just met some-one whose sister has MS. The sister is on a gluten free diet and is adament that it helps .


Diagnosed Eczema 1964 aged 16 but with what I know now from research am sure it was Dermatitis Herpetiformis

Diagnosed Irritable Bowel Syndrome 1969 at age 21 but had it from age of 12 many painful episodes over the years( was probably Coeliac all along)

Diagnosed Hashimoto's Disease/Hypothyroid November 1994

Low B12 November 2006

Low B12 (still!) July 2007 Docs are happy with results just above low end of normal..*sigh*....still need to resolve it

Gluten free since October 2006 after failing gluten challenge

Diagnosed Hiatus Hernia and Los Angeles Grade A reflux via endoscopy October 2007

Diagnosed with Coeliac Disease via same endoscopy / biopsy October 2007 (took them long enough!) despite being gluten-free damage still evident although had been taking iron tablets for iron deficiency without realizing they contained gluten. Subsequent blood tests show :Positive Anti-Gliadin IgA EIA antibodies, Positive Endomysial antibodies ,Positive tTG IgA antibodies of 300 ("normal" range 0-15)

Auto-immune disease goes back at least 5 generations in my family (and counting) Mainly Type 1 diabetes and rheumatoid arthritis.

Number 1 Son has Type 1 diabetes ..diagnosed March 2007 at age 31, number 2 son aged 24 is A/I disease free so far ,daughter has lichen planus ( similar to psoriasis) diagnosed 2003 at age 17 am now wondering if it is DH but with flippancy of the young she won't get any testing done

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I have a friend who has MS. How do I suggest a gluten free diet without being preachy? I really would like her to try it but I don't want her to think I am pushing gluten free down her throat.

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I have a friend who has MS. How do I suggest a gluten free diet without being preachy? I really would like her to try it but I don't want her to think I am pushing gluten free down her throat.

Find a good article to show her, make the suggestion, and don't talk about yourself and your gluten issues. I'm sure she'll appreciate anything that might help.


Gluten free: Nov. 2009

Peanut and dairy free: Dec. 2009

Rediscovered dairy: March 2010 (in small quantities)

Peanuts added back: June 2010 (in small quantities)

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I have a friend who has MS. How do I suggest a gluten free diet without being preachy? I really would like her to try it but I don't want her to think I am pushing gluten free down her throat.

_______________

Send her the url of this website. Some forms of gluten intolerance have neurological symptoms that match MS. Some of us, myself included, no longer need a cane to walk and have regained feeling in our hands and feet after going on a gluten free diet. I didn't have the stuff in the spinal fluid but I did have brain lesions called bright spots. Never a formal diagnosis after being told I probably had it, by many doctors. Did intensive internet research, found some sites saying diet helped certain kinds of arthritis and sometimes MS, tried the diet, figuring I had nothing to lose and it wouldn't hurt.

It won't be a miracle for everybody, but consider that it is now thought that 1 out of 100 people are celiac or gluten intolerant, and the majority are undiagnosed- likely because they didn't waste away but are showing other, baffling symptoms. I think a large number of people with "fibro" and gut issues and brain fog could be likely candidates, that haven't deteriorated to ataxia and numbness yet.

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