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Are These "Detox" Symptoms?

isitreally

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isitreally Newbie
isitreally
Posted

A little background: I was diagnosed with a "gluten allergy" over a year ago, but didn't take all the precautions I should have because the word celiac was not used. I did, however make a great effort to get educated and stay gluten free at home.

This month, after more tests (mostly for me as my doctor doesn't see a difference between an intolerance and celiac - which I am now very grateful for)...I definitely have celiac.

Okay, now I am more than two weeks into a very strict gluten free diet, and have gone to great lengths checking every item I put in and on my body (and the entire family). I had already been taking magnesium, B's, D, folate, probiotics and fish oil as my doc had done a complete nutrition panel last year. I have also limited dairy and have been keeping a food journal. I have probably been eating the best I have ever eaten in my whole life.....

I have felt great emotionally and mentally, but physically I am very tired, have had severe breakouts on my face, and now multiple mouth ulcers - which I have never had in this amount at one time. I have also started itching all over the past couple of days. My skin is beginning to clear up, but the ulcers seem to be getting worse! Has anyone else had this happen? Is this a "normal" response to getting this junk out of my system? I can't seem to find any information on these responses after going gluten free....

(And thanks in advance for any help!)

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RiceGuy Collaborator
RiceGuy
Posted

There are many posts about being fatigued for awhile at first, and about other symptoms too. While I don't recall seeing reports of the set of things you're experiencing, it wouldn't surprise me.

But do keep in mind that sensitivities often increase once gluten-free, so you may need to cut other things from your diet for awhile. Dairy is one of the most common to cause problems, even though it hadn't before going gluten-free. The other top allergens are also prime suspects. Dairy, soy, corn, eggs, peanuts, tree nuts, and shellfish should all be considered.

Aside from that, I'm not sure what else to recommend. The B-complex you take should be the co-enzyme forms, and a separate methylcobalamin B12 sublingual tablet might help with the fatigue (5mg per day).

How about your iron status? An iron deficiency can also cause fatigue, as can other mineral deficiencies. The specific forms of all vitamin and mineral supplements is important, so you might want to look over everything to make sure you've got the best kinds.

ravenwoodglass Mentor
ravenwoodglass
Posted

Have you had any skin issues before? Even if not so bad? If so do you use iodized salt? If you do try a non-iodized for a bit and see if it helps.

  • 3 months later...
ellie-lynn Newbie
ellie-lynn
Posted

Isitreally: have you seen any improvement of your symptoms? I'm almost 4 months into my gluten-free diet and just in the last 3 weeks or so have developed acne (or something acne-like) and a lump in my mouth (not sure if it's an ulcer or what). I'm about 5 days into an elimination of dairy and eggs, and about 2 days into eliminating corn and soy. Also have switched the facial cleanser I use.

So far, no dramatic improvement, though my face is looking a little better than before I started. I've also tried to cut back on carbs and sugar, but it's hard to eliminate everything. I'm really bummed, because I had really been getting into the CF baking, and I'm afraid I'm going to have to give that up if it turns out to be a problem with carbs/sugar. :P

AlysounRI Contributor
AlysounRI
Posted

Isit:

Yeah, I am also going through the tiredness and face breakouts, which I very rarely have.

I think the face breakouts are the poison leaching out of my and the tiredness will pass. The tiredness has gotten better now, but at the end of the day, I still need an early night.

It will all pass!!

~Allison

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      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

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      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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