Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These "Detox" Symptoms?


isitreally

Recommended Posts

isitreally Newbie

A little background: I was diagnosed with a "gluten allergy" over a year ago, but didn't take all the precautions I should have because the word celiac was not used. I did, however make a great effort to get educated and stay gluten free at home.

This month, after more tests (mostly for me as my doctor doesn't see a difference between an intolerance and celiac - which I am now very grateful for)...I definitely have celiac.

Okay, now I am more than two weeks into a very strict gluten free diet, and have gone to great lengths checking every item I put in and on my body (and the entire family). I had already been taking magnesium, B's, D, folate, probiotics and fish oil as my doc had done a complete nutrition panel last year. I have also limited dairy and have been keeping a food journal. I have probably been eating the best I have ever eaten in my whole life.....

I have felt great emotionally and mentally, but physically I am very tired, have had severe breakouts on my face, and now multiple mouth ulcers - which I have never had in this amount at one time. I have also started itching all over the past couple of days. My skin is beginning to clear up, but the ulcers seem to be getting worse! Has anyone else had this happen? Is this a "normal" response to getting this junk out of my system? I can't seem to find any information on these responses after going gluten free....

(And thanks in advance for any help!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

There are many posts about being fatigued for awhile at first, and about other symptoms too. While I don't recall seeing reports of the set of things you're experiencing, it wouldn't surprise me.

But do keep in mind that sensitivities often increase once gluten-free, so you may need to cut other things from your diet for awhile. Dairy is one of the most common to cause problems, even though it hadn't before going gluten-free. The other top allergens are also prime suspects. Dairy, soy, corn, eggs, peanuts, tree nuts, and shellfish should all be considered.

Aside from that, I'm not sure what else to recommend. The B-complex you take should be the co-enzyme forms, and a separate methylcobalamin B12 sublingual tablet might help with the fatigue (5mg per day).

How about your iron status? An iron deficiency can also cause fatigue, as can other mineral deficiencies. The specific forms of all vitamin and mineral supplements is important, so you might want to look over everything to make sure you've got the best kinds.

ravenwoodglass Mentor

Have you had any skin issues before? Even if not so bad? If so do you use iodized salt? If you do try a non-iodized for a bit and see if it helps.

  • 3 months later...
ellie-lynn Newbie

Isitreally: have you seen any improvement of your symptoms? I'm almost 4 months into my gluten-free diet and just in the last 3 weeks or so have developed acne (or something acne-like) and a lump in my mouth (not sure if it's an ulcer or what). I'm about 5 days into an elimination of dairy and eggs, and about 2 days into eliminating corn and soy. Also have switched the facial cleanser I use.

So far, no dramatic improvement, though my face is looking a little better than before I started. I've also tried to cut back on carbs and sugar, but it's hard to eliminate everything. I'm really bummed, because I had really been getting into the CF baking, and I'm afraid I'm going to have to give that up if it turns out to be a problem with carbs/sugar. :P

AlysounRI Contributor

Isit:

Yeah, I am also going through the tiredness and face breakouts, which I very rarely have.

I think the face breakouts are the poison leaching out of my and the tiredness will pass. The tiredness has gotten better now, but at the end of the day, I still need an early night.

It will all pass!!

~Allison

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.