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Are These "Detox" Symptoms?


isitreally

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isitreally Newbie

A little background: I was diagnosed with a "gluten allergy" over a year ago, but didn't take all the precautions I should have because the word celiac was not used. I did, however make a great effort to get educated and stay gluten free at home.

This month, after more tests (mostly for me as my doctor doesn't see a difference between an intolerance and celiac - which I am now very grateful for)...I definitely have celiac.

Okay, now I am more than two weeks into a very strict gluten free diet, and have gone to great lengths checking every item I put in and on my body (and the entire family). I had already been taking magnesium, B's, D, folate, probiotics and fish oil as my doc had done a complete nutrition panel last year. I have also limited dairy and have been keeping a food journal. I have probably been eating the best I have ever eaten in my whole life.....

I have felt great emotionally and mentally, but physically I am very tired, have had severe breakouts on my face, and now multiple mouth ulcers - which I have never had in this amount at one time. I have also started itching all over the past couple of days. My skin is beginning to clear up, but the ulcers seem to be getting worse! Has anyone else had this happen? Is this a "normal" response to getting this junk out of my system? I can't seem to find any information on these responses after going gluten free....

(And thanks in advance for any help!)


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RiceGuy Collaborator

There are many posts about being fatigued for awhile at first, and about other symptoms too. While I don't recall seeing reports of the set of things you're experiencing, it wouldn't surprise me.

But do keep in mind that sensitivities often increase once gluten-free, so you may need to cut other things from your diet for awhile. Dairy is one of the most common to cause problems, even though it hadn't before going gluten-free. The other top allergens are also prime suspects. Dairy, soy, corn, eggs, peanuts, tree nuts, and shellfish should all be considered.

Aside from that, I'm not sure what else to recommend. The B-complex you take should be the co-enzyme forms, and a separate methylcobalamin B12 sublingual tablet might help with the fatigue (5mg per day).

How about your iron status? An iron deficiency can also cause fatigue, as can other mineral deficiencies. The specific forms of all vitamin and mineral supplements is important, so you might want to look over everything to make sure you've got the best kinds.

ravenwoodglass Mentor

Have you had any skin issues before? Even if not so bad? If so do you use iodized salt? If you do try a non-iodized for a bit and see if it helps.

  • 3 months later...
ellie-lynn Newbie

Isitreally: have you seen any improvement of your symptoms? I'm almost 4 months into my gluten-free diet and just in the last 3 weeks or so have developed acne (or something acne-like) and a lump in my mouth (not sure if it's an ulcer or what). I'm about 5 days into an elimination of dairy and eggs, and about 2 days into eliminating corn and soy. Also have switched the facial cleanser I use.

So far, no dramatic improvement, though my face is looking a little better than before I started. I've also tried to cut back on carbs and sugar, but it's hard to eliminate everything. I'm really bummed, because I had really been getting into the CF baking, and I'm afraid I'm going to have to give that up if it turns out to be a problem with carbs/sugar. :P

AlysounRI Contributor

Isit:

Yeah, I am also going through the tiredness and face breakouts, which I very rarely have.

I think the face breakouts are the poison leaching out of my and the tiredness will pass. The tiredness has gotten better now, but at the end of the day, I still need an early night.

It will all pass!!

~Allison

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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