Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dining In Residence Hall At College


K Lee

Recommended Posts

K Lee Newbie

My daughter, who has celiac disease,is a freshman in college and she is required by the university to eat in the cafeteria and purchase a meal plan. I have asked for a list of ingredients for their menu but have gotten no where. Has anyone else had to deal with this? One lady told me that "she needs to take charge of her own health". That is difficult to do when you do not have the tool which is as simple as a list of ingredients. I would appreciate any advice you can give me. She is also a vegetarian. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wildwood Apprentice

My daughter, who has celiac disease,is a freshman in college and she is required by the university to eat in the cafeteria and purchase a meal plan. I have asked for a list of ingredients for their menu but have gotten no where. Has anyone else had to deal with this? One lady told me that "she needs to take charge of her own health". That is difficult to do when you do not have the tool which is as simple as a list of ingredients. I would appreciate any advice you can give me. She is also a vegetarian. Thanks!

My daughter was a freshman last year. The cafeteria had good intentions, but my daughter got cc'd quite often. She ended up getting an apartment off campus this year. She misses dorm life, but is much happier with the control she has over her food. It really started to stress her towards the end of last year because she found she ate a salad with chicken on it day in and day out because it was the only meal she felt was safe. She did not feel well most of the time. I think it was because she did not have enough variety in her diet. I imagine it is much more difficult for your daughter being a vegetarian also! This year my daughter says she feels fantastic and she said it is a relief not to constantly be stressing about her food. Now she only stresses about homework, exams etc :lol:

ravenwoodglass Mentor

If your daughter has a formal diagnosis the residence hall needs to do one of two things, either make sure they can safely feed her or let her opt out of the meal plan and give her a way to cook for herself. For my DD that meant moving into senior housing her freshman year so she would have a kitchenette. Your school might allow her a frig and microwave in the room or move her to someplace that has someplace for her to cook. Celiac is covered under the ADA so don't let the school BS you into thinking she has to stay on the meal plan.

K Lee Newbie

If your daughter has a formal diagnosis the residence hall needs to do one of two things, either make sure they can safely feed her or let her opt out of the meal plan and give her a way to cook for herself. For my DD that meant moving into senior housing her freshman year so she would have a kitchenette. Your school might allow her a frig and microwave in the room or move her to someplace that has someplace for her to cook. Celiac is covered under the ADA so don't let the school BS you into thinking she has to stay on the meal plan.

Thank you so much for your reply, I was unaware that celiac falls under ADA rules. She does have a confirmed diagnosis. The University of Miami Office of Disability Services was the one who told me "she needed to get control of her own health" so they are useless. Did you have to deal with a specific office at your college? A nutritionist or counselor of some sort?

K Lee Newbie

Did the campus dininig service provide her with any special food? UM does not even have one single gluten free cold cereal to offer. I can appreciate how difficult it would be for them to cook gluten free for her. Do you think it would be unreasonable of me to ask them to purchase Amy's entrees to prepare on occasion? Thank you so much for your advice.

ravenwoodglass Mentor

Thank you so much for your reply, I was unaware that celiac falls under ADA rules. She does have a confirmed diagnosis. The University of Miami Office of Disability Services was the one who told me "she needed to get control of her own health" so they are useless. Did you have to deal with a specific office at your college? A nutritionist or counselor of some sort?

I would contact the dean's office, they should be able to guide you. My daughter knew when she applied, her entrance essay was even on dealing with celiac, so the college was all ready with her room in senior housing.

Chances are the college is not going to be able to accomodate her needs at the dining hall so she will need to be able to store and cook her own food. My daughter moved off campus after her freshman year to make things easier.

ciavyn Contributor

Just to report on my experience. I am an adult attending on-campus residencies to complete my graduate degree. I spoke directly with my advisor and the head of the cafeteria. The cafeteria was willing to do whatever they could to accommodate my needs. I told them what I could and couldn't have, the staff was made aware, and life went on. I was cc'd at least twice that week, though. So while their efforts were amazing, it's still a risk.

I think it's completely reasonable to ask them to provide specific foods as long as they aren't expensive, if they are going to require her to eat on campus. While she does need to "control her own health" to a certain degree, she has to find a way to get the college to work with her, or be allowed to eat on her own. Because of my experience, I will be eating off campus at my next residency. Everyone is wonderful,and I love the kitchen staff because they are so darn helpful, but getting sick is not my idea of fun.

I hope this works out for you. Keep talking to people until you reach the right person. That is what I did. Don't give up and feel frustrated. If they won't work with you, she may need to switch colleges. If money doesn't talk, I don't know what will.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,999
    • Most Online (within 30 mins)
      7,748

    Wendy Jo
    Newest Member
    Wendy Jo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.