Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor Needed In Northeast Ohio


JulieC

Recommended Posts

JulieC Newbie

I strongly suspect I have celiac. I am a 40 year old female. Two weeks ago, I went to my GP and had a "blood test". I got a referral to a gastroenterologist. I then started a gluten-free diet. I was told today that the "blood test" was "negative". However, my digestive issues resolved within about 2-3 days of starting gluten-free and after about a week I got this incredible energy surge and feel better than I have for decades, perhaps ever. I had an upset abdomen again last night and today again and realized I screwed up the gluten-free with imitation crab. Whoops, now I know.

I'd like a gastroenterologist that is very knowledgable about celiac, as I am convinced myself but with a "negative blood test". If you can't tell, I am very sceptical that the appropriate test was run and/or interpreted correctly. In any case, my digestive system has been a hot mess for years and its about time I got it straightened out.

Symptoms, that have improved after two weeks of gluten-free: diarrhea (mixed with constipation), excessive foul gas, abdominal bloating//distention/pain, fatigue, irritability, anxiety, joint pain.

Thank you for your help!

Julie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chasbari Apprentice

I strongly suspect I have celiac. I am a 40 year old female. Two weeks ago, I went to my GP and had a "blood test". I got a referral to a gastroenterologist. I then started a gluten-free diet. I was told today that the "blood test" was "negative". However, my digestive issues resolved within about 2-3 days of starting gluten-free and after about a week I got this incredible energy surge and feel better than I have for decades, perhaps ever. I had an upset abdomen again last night and today again and realized I screwed up the gluten-free with imitation crab. Whoops, now I know.

I'd like a gastroenterologist that is very knowledgable about celiac, as I am convinced myself but with a "negative blood test". If you can't tell, I am very sceptical that the appropriate test was run and/or interpreted correctly. In any case, my digestive system has been a hot mess for years and its about time I got it straightened out.

Symptoms, that have improved after two weeks of gluten-free: diarrhea (mixed with constipation), excessive foul gas, abdominal bloating//distention/pain, fatigue, irritability, anxiety, joint pain.

Thank you for your help!

Julie

I find it well worth the drive to Alliance Ohio to see my Doc at Premier Health Associates:

Jean D. Dib, M.D. is the one who got me through my diagnosis. Love the man for his compassion and understanding. He was recommended to me by Denise Ramey who facilitates the local Celiac support group at Raisin Rack.

If it is OK to post a phone number I will (330)823-4000

He is the PCP and point man for a my team including my Gastro Dr. John Park also in Alliance.

Good luck with your search.

CS

  • 7 months later...
StacyA Enthusiast

I'm replying to bring this post back up - since I have the same question. Any good primary care doctors around Akron, Canton, Tallmadge, Kent areas that are familiar with the intricacies of celiac disease? (Not a GI doctor, unless s/he also understands the neurological and other problems that can occur.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,520
    • Most Online (within 30 mins)
      7,748

    Tara M.
    Newest Member
    Tara M.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.