Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Lectin Intolerance


Lisa79

Recommended Posts

Lisa79 Enthusiast

Just wondering if anyone has Lectin intolerance?

I have been gluten free for 10 months maybe now and I still have syptoms, which seem to be linked to nightshades, dairy, soy, have read quite a bit of info on Lectin Intolerance and think this maybe the problem.

Love to hear form anyone with Lectin intolerance.

Thanks

Lisa

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kathyh Newbie

Just wondering if anyone has Lectin intolerance?

I have been gluten free for 10 months maybe now and I still have syptoms, which seem to be linked to nightshades, dairy, soy, have read quite a bit of info on Lectin Intolerance and think this maybe the problem.

Love to hear form anyone with Lectin intolerance.

Thanks

Lisa

I've been struggling with lectin intolerance for several years. Just taking gluten-type foods out of my diet did not relieve all of the symptoms. When I follow my no-lectins-at-all diet, I have more energy and a lot of my symptoms go away. I have a good nutritionist who goes the extra mile helping find foods I can tolerate. Also a good naturopath.

There is some scientific research going on with this lectinism so keep researching yourself.

Maybe redo your food allergy panel. Sometimes it helps to visualize a 'Not Allowed' on paper to keep from eating that food. The blood diet can help but I'm not impressed with the anecdotal quality and the commercialism of the website/books.

Stick with whole foods - make your own soups, etc.

Watch out for hidden 'gluten's. They often put flour in with spices to keep them from caking. Look for whole spice grinders.

And, once in a while, have a 'not allowed' item. Mine is pizza (dairy,soy, wheat, etc!), but knowing I can have it every three months gives me some sanity.

Good luck,

Kathy

mushroom Proficient

Just wondering if anyone has Lectin intolerance?

I have been gluten free for 10 months maybe now and I still have syptoms, which seem to be linked to nightshades, dairy, soy, have read quite a bit of info on Lectin Intolerance and think this maybe the problem.

Love to hear form anyone with Lectin intolerance.

Thanks

Lisa

Hi Lisa:

Ever since your post I have been wondering about and reading about lectins. I gather it is possible to react to some but not all high-lectin foods?? Certainly I react to soy, corn and nightshades in a very negative manner, although now I have overcome my lactose intolerance, not dairy. I also tend to avoid legumes (I have a pantry full of beans and often find myself wondering why I avoid them; I believe it is a subconscious remembrance of bad reactions to them. For example, when I make my "taco-less" tacos, my husband has the refried beans but I don't :o And I used to love italian white bean salad but I never make it any more....and I never cook lentils any more. And yet I still get those nights when I am bloated with racing, erratic heart and absolutely miserable. Could it be the lectins? I am unable to associate the problem with any specific food and am wondering if it is food combinations or something else.

Would love to hear your thoughts.

CHARBEEGOOD Newbie

Interesting...I have a friend who is removing more and more foods from her diet and legumes is one of them. I never put it together with lectin however, am soy free and avoid soy lecithin at all costs. Like many I have gone lactose free which I found helpful. Thank goodness for Turtle Mountain Coconut milk products! Keep us posted I wish you luck and hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      348

      Terrible Neurological Symptoms

    2. - Aretaeus Cappadocia replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Digestive symptoms yet negative celiac screening

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

    4. - Scott Adams replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Digestive symptoms yet negative celiac screening

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,995
    • Most Online (within 30 mins)
      10,442

    Jody Booker
    Newest Member
    Jody Booker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I respectfully disagree, @Scott Adams.   Thiamine deficiency (and deficiencies in other B vitamins) can cause unintentional weight loss.  The body will use stored fat and muscle to provide energy in thiamine deficiency.  This results in muscle wasting, fat loss, fatigue, and difficulty putting on muscle mass.  Using stored fat and muscle for energy requires less thiamine than the amount of thiamine required to process carbohydrates.  Thiamine deficiency causes gastrointestinal Beriberi, a localized thiamine deficiency in the digestive tract, which results in dysbiosis, inflammation, and abdominal pain.  Carbohydrates can remain undigested in the intestinal system, which bacteria feed on, encouraging SIBO, and prompting dysbiosis, leaky gut, and inflammation.  Following a low carbohydrate Keto diet, like the AutoImmune Protocol diet, can help because it removes excess carbohydrates that the bacteria feed on.  SIBO can cause weight gain due to inflammational edema of the intestines (water retention in the tissues of the intestines), gas, and slowed transit times.  SIBO bacteria can absorb nutrients from your food before you can, resulting in additional deficiencies of other B vitamins and nutrients.   Thiamine deficiency is corrected with high dose Thiamine Hydrochloride, Benfotiamine and/or Thiamine TTFD (tetrahydrofurfuryl disulfide).  High dose thiamine in the form Benfotiamine has been shown to promote intestinal healing.  It improves "leaky gut".  High dose Benfotiamine will improve the gut microbiome in favor of beneficial bacteria.  Thiamine TTFD is beneficial for neurological issues.  Thiamine TTFD improves brain function and is beneficial for mental health issues such as depression and anxiety, and other neurological problems like Ataxia and Brain Fog.    Methylated (activated) B Complex vitamins help correct Thiamine deficiency because all eight B vitamins work together.  Vitamin C and the four fat soluble vitamins (A, D, E, and K) are needed as well.  Minerals like Magnesium, Calcium, Iron,  Potassium, and others may need to be supplemented as well.  Thiamine and Magnesium make life sustaining enzymes together.   Supplementing with high doses of Thiamine and other water soluble B vitamins will lower pain and inflammation, improve fatigue, improve muscle mass gain, as well as regulate the intestinal microbiome!  So, @Stegosaurus, you can get healthier while improving gut dysbiosis at the same time! References: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Dietary Vitamin B1 Intake Influences Gut Microbial Community and the Consequent Production of Short-Chain Fatty Acids https://pmc.ncbi.nlm.nih.gov/articles/PMC9147846/
    • Aretaeus Cappadocia
      You may know this already, but in addition to what you've described, you may also want to get a genetic test. About 1/3 of people have one of the genetic markers that are necessary (but not sufficient) for getting celiac. If your son is one of the 2/3 of people that don't have the marker then it is almost certain he does not have celiac. (The genetic test won't tell you if he has celiac, it can only tell you whether or not he is susceptible to getting celiac.)
    • JennMitchell79
    • Scott Adams
      That is really interesting, especially because it points to how the gut microbiome may still stay altered in celiac disease even after going gluten-free. The idea that a fiber like inulin could help feed beneficial bacteria and reduce inflammation is encouraging, although I imagine some people with celiac disease or other gut issues might still need to introduce it carefully depending on tolerance. It definitely feels like an area worth watching, because anything that could help support healing beyond just avoiding gluten would be valuable.
    • Scott Adams
      @Irishgirl5, it does sound possible for those numbers to fluctuate a bit, especially when they are near the upper end of normal, but ongoing symptoms still make it understandable that you are concerned. The fact that his tissue transglutaminase immunoglobulin A is still technically in range does not always make the picture feel any clearer, especially with tummy pain, nausea, constipation, and diarrhea still going on. Anxiety can certainly add to gastrointestinal symptoms, but I can see why you would not want to assume that explains everything. It sounds like keeping an eye on things and being cautious with diet changes makes sense, especially if symptoms continue. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.