Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain After Diagnosis


mogal

Recommended Posts

mogal Newbie

Hello. I was recently diagnosed with Celiac and have been gluten-free for just 3 weeks.

I had no symptoms prior to diagnosis except for rapid weight loss and mild diarrhea which prompted many blood tests, colonoscopy, and eventually enterolab testing.

Otherwise, I felt strong, healthy and no gastro issues. I exercise, take my suppliments (vitD., fish oil in particular that are to be good for gluten-free folks)

Since I've been gluten-free, my hands are swollen, my body joints ache all day and my tummy is crampy or "off" several times a week.

Is this normal withrdrawl?

I felt sooo much better before! The joint aches are enough to make me go back to my pre-gluten-free diet.

Any ideas?

debi

  • 7 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hello. I was recently diagnosed with Celiac and have been gluten-free for just 3 weeks.

I had no symptoms prior to diagnosis except for rapid weight loss and mild diarrhea which prompted many blood tests, colonoscopy, and eventually enterolab testing.

Otherwise, I felt strong, healthy and no gastro issues. I exercise, take my suppliments (vitD., fish oil in particular that are to be good for gluten-free folks)

Since I've been gluten-free, my hands are swollen, my body joints ache all day and my tummy is crampy or "off" several times a week.

Is this normal withrdrawl?

I felt sooo much better before! The joint aches are enough to make me go back to my pre-gluten-free diet.

Any ideas?

debi

Just stick with the diet, and make sure you are really gluten free. It can take months to get better, as your body needs to settle down and stop making the anti-bodies to self that do the damage. The thing is, those antibodies don't turn off the instant you stop eating gluten. And if you get even a little bit of gluten, they kick back in until they have gotten rid of the offending protein, and part of your intestinal lining as well.

You'll see many posts here advising people to start the gluten-free diet by eating whole foods instead of processed foods. Processed foods are risky in some cases because the may have cross-contamination or have other ingredients added that can cause problems. Plus they usually have food coloring and preservatives that may not be good for your gut while it is healing.

Other foods to avoid are dairy and soy. Dairy because it often is hard for celiacs to digest at first, and soy because many of us have trouble with it.

If you cook all your meals from whole ingredients at home, you also don't have to spend lots of time reading labels in the store. Also, watch out for spice blends, medicines, and vitamins that may contain gluten.

MelindaLee Contributor

In addition to what GFinDC said, see if it is related to tomatoes or any of the other fruits in the nightshade family. I have often heard of that being related to athritis or joint issues. For me, after 3 weeks, my joint pain was gone and I went off my arthritis medication. But, if I mess up and get gluten, I notice it right away in my joint (among other non GI symptoms) Good luck and hang in there! :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

    2. - McKinleyWY replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Accuracy of testing concerns

    3. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

    5. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,246
    • Most Online (within 30 mins)
      7,748

    suek54
    Newest Member
    suek54
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Hi Im new to this game, so bear with me.  May through to December last year totally miserable, covered literally head to toe in the worst rash ever, itching like I just cant explain. After seven different medics told me just to "keep putting the cream on, whatever it is will go in the end" finally one lovely doc diagnosed dermatitis herpetiformis. Biopsy 6 weeks ago and Dapsone, which I seem to be tolerating OK so far.  The NHS is in permanent backlog so no result yet but just wanted to say hello to anyone else with this maddening condition.
    • xxnonamexx
      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
    • McKinleyWY
      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those who are just beginning the journey like me. Marilyn 
    • Scott Adams
      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.