Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Red Visible Blood In Stool


Martok42

Recommended Posts

Martok42 Rookie

There was bright red visible blood in stool, how worried should I be? There wants a TON but it wasn't just a little bit either. NOTE: I am only 14


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Martok.

I have had red blood in stool before also. Last time it was when I was still eating soy and got glutened. It always cleared up after I got over the glutening. This is something you should discuss with your parents though. It probably is a reaction to something in your diet. But it may be something a doc should look at also. The tests the doctors would do are an endoscopy and a colonoscopy. For an endoscopy they use a thin tube down the throat to check out the small instestine. In a colonoscopy they use a tube to check the large intestine (from the other end). They use anasthesia during the procedures so you don't feel anything. There is also a pill camera endoscopy that sometimes is used. The pill cam can't take biopsy samples though. I am not saying you need any of these tests, just mentioning them so you are aware of them. An endoscopy is done pretty often to check for celiac disease.

Do your parents help you with your gluten-free diet? If they want more info on it this is a great place for them to do research and ask questions. Lots of us follow a simple whole foods diet. We make our foods from scratch using meat, rice, veggies, etc., instead of eating processed foods like pot pies or frozen dinners etc.. Mission corn tortillas are good for wraps if you heat them up a little.

The thing about celiac is, it takes only a very small amount of gluten to make our bodies react. So if you are getting a little bit of gluten every day, you can be doing damage every day that can get worse over time. That's why it is important to make sure you aren't getting gluten, even cross contamination from your foods or meds or vitamins etc. Cross contamination is when gluten accidentally gets into a food that doesn't list gluten in the ingredients. Or say you use a jar of peanut butter that someone else used on a piece of gluten bread. If they put the knife from the gluten bread back in the peanut butter jar, then it will have traces of gluten in the peanut butter.

I'd like to suggest you avoid soy as well. Soy does cause some of us problems.

Martok42 Rookie

Good GRIEF your helpful. Unfortunately I have a doctors appointment tomorrow. I really don't want to go, but I am a minor. So alas I have no say whatsoever. I've talked with a gastrolologist. (Or however you say that) and she was amazed that a fourteen year old could stay off gluten as good as I am. Butt apparently not good enough. And having stuff stuck down my throat is a bit of a phobia for me... They don't put to sleep? :unsure:

GFinDC Veteran

Oh, well, most of the people who report on their endoscopy here say they didn't remember it at all. So yeah, they can put you out and wake you up after. That's good to see the doctor. I find it helpful to write down the symptoms I have been having and give that to the doctor. That way I don't forget something while I am there talking to them. You could also make a food journal, writing down what you eat each day and how you are feeling/symptoms. This can help you figure out foods that may be bothering you. For some of us though when our guts are irritated already, just about any food can cause a bad reaction.

Martok42 Rookie

Well the doctor tomorrow is just my family doctor who is going to refer me to a gastro-whatever. And my parents said that we can make an appointment for a couple weeks and I will try VERY hard to eat NOTHING with gluten and they said if I feel significant improvement, we don't have to go. They mainly just want to make sure it's not colon cancer or something dumb like that. I say that is dumb especially when you factor in the I have siblings with celiac it would make sense that I have it too. Then they say it's necessary and I say no it isn't then I get grounded.... that's how it goes any time the word 'doctor' come up....

GFinDC Veteran

Yep, a gastroenterologist. Your best chance to avoid gluten is to not eat anything that isn't cooked at home from whole foods. Foods like rice and veggies, home made soups, meats etc are good.

My younger brother had both celiac and Crohn's diesease. So it is possible to have more than just celiac. Lots of people with Crohn's do well on the celiac gluten free diet though, they kind of cross over in the diet area. Maybe the test would be worthwhile to just get it over with and know for sure?

Grounding isn't so bad. That would be a great time to catch up on homework right? :blink::D

Martok42 Rookie

Lol yeah, but I just can't stand anything to do with doctors! And dentists but that is for a different forum. :D

The way I see it is like this. It's my body, and If I think the diet isn't helping and something else is wrong, then I go see the gastro-whoever. But I DO think the diet is helping alot, I don't feel normal yet, but I've been in immense pain forever and now that has finally stopped! Doesn't that seem logical to you?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Lol yeah, but I just can't stand anything to do with doctors! And dentists but that is for a different forum. :D

The way I see it is like this. It's my body, and If I think the diet isn't helping and something else is wrong, then I go see the gastro-whoever. But I DO think the diet is helping alot, I don't feel normal yet, but I've been in immense pain forever and now that has finally stopped! Doesn't that seem logical to you?

Ya got a point there, if the diet is helping then it is most likely celiac. Or celiac and Chrohn's. Crohn's affects the large intestine, and people do say that red blood is from low in the GI tract, implying it is from the large intestine. They say black stool indicates bleeding in the small intestine, higher in the GI tract. I don't know if that is an absolute, or exact boundary type of thing myself. I think it is possible for red blood to come from the small intestine, but near the large intestine junction. that's just my thinking though, not anything from a doctor or research.

For the next couple weeks, you might want to avoid any processed foods and see if that clears it up. I have problems with soy for instance and it is in lots of processed foods. So I eat very little processed foods now. It's just much safer and easier to deal with eating if you don't have to worry about checking on lots of ingredients. You mentioned Caramellos's in another post. There is a possibility that dairy is causing you problems also. Dairy sure does a number on me. Could be a good time to give the dairy a pass and see if it helps. You would need to check with your parents on that though, and maybe take a calcium pill each day also.

Your parents have other children with celiac right? I imagine they know a thing or two about it then. I know when I was younger I thought I was smarter than my parents. Turned out I was way wrong, but it took me a while to understand that. I've been doing the gluten-free diet for a little over 2 years now. And I am still learning things about it and how my body reacts.

Here's a page with some info on intestinal function that might be interesting..

Open Original Shared Link

Martok42 Rookie

Oh I hate doctors. Especially my doctor, and my doctors nurse, I have met doctors I like, to bad mine are not those. This one tells me I don't need to go see a gastro-guy and that they want to the blood test anyway. :angry: I said don't you need to do that before someone goes on the diet, the imbecile (Who is just a nurse. I saw her because I hate my doctor and refused to talk to her. And to be honest she really doesn't want to talk to me either) said no you can do it if someone is on a gluten free diet. So now I'm probably going to get a false negative and they will all sorts of other crap and AAHGFHGHHGHGHGGGGHH!!! :angry: :angry:

See? A good reason for hatred. We went through this last year with sleep apnea. After an AWFUL sleep study and a TON of doctor visits my mom finally agreed with me and all that crap was not worth it. She claims this won't go down like that, but Am I the only seeing where this is going?

EDIT:Okay so celiac blood test has not come back yet, but the other tests show nothing, except I have a kidney stone :blink: Which I can't imagine that is going to be fun. :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.