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Help! Is This Normal?


8Curvey8

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8Curvey8 Rookie

I've had bad luck with CC lately and my stomach has been all over the place since. I was finally better yesterday, eating very lightly and unprocessed foods, and decided to have a couple tator tots with dinner last night. This had my stomach and diarrhea going all night, and all cramps this morning. Is this normal?


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Wolicki Enthusiast

I've had bad luck with CC lately and my stomach has been all over the place since. I was finally better yesterday, eating very lightly and unprocessed foods, and decided to have a couple tator tots with dinner last night. This had my stomach and diarrhea going all night, and all cramps this morning. Is this normal?

Unfortunately, yes :( I get all weird for about a week after CC from a GI standpoint,then fatigue for longer. It's best to stick with whole, unprocessed foods after an episode. I've also had it come in waves- better for a day, worse for a day. I also have had old secondary intolerances come back after a glutening- especially dairy and nightshades.

8Curvey8 Rookie

Unfortunately, yes :( I get all weird for about a week after CC from a GI standpoint,then fatigue for longer. It's best to stick with whole, unprocessed foods after an episode. I've also had it come in waves- better for a day, worse for a day. I also have had old secondary intolerances come back after a glutening- especially dairy and nightshades.

I too can't have dairy and don't have it. How can you tell if you got gluten in you again, or if it's a relapse? I also feel really sick, like glutened again, and extremely dehydrated although I've been drinking water for 2 hours straight - is that normal too? I'm so confused!

Reba32 Rookie

where'd you get the tater tots? Were they frozen, or from a fast food place?

Either way, they were likely fried in the same fryer as breaded foods like chicken fingers or something.

Have a real potato instead.

Wolicki Enthusiast

where'd you get the tater tots? Were they frozen, or from a fast food place?

Either way, they were likely fried in the same fryer as breaded foods like chicken fingers or something.

Have a real potato instead.

I've

8Curvey8 Rookie

They were frozen, but I guess I just can't do anything slightly processed while healing. It's such a hard time knowing when your better enough to eat things you used to.

I've decided as I keep getting sick that I will go right back to the basic diet of brown rice, and start incorporating new foods one at a time. Right now I can't tell if somehow gluten is getting in me, or if it's from eating something that I'm too sensitive for. I'm 3 years gluten free but never been so sick, and can't figure it out!

sandsurfgirl Collaborator

There is a stomache virus going around. I thought I got glutened and then my kids both came down with it.


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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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