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Need To Be On Gluten To Have Blood Testing Done?

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RatPack Newbie
RatPack
Posted

My 19-month-old son has had frequent, loose stools and scaly rashes since I can remember. I always suspected some sort of food intolerance but wasn't incentivized to do anything until his most recent check-up showed that he went down and off his growth chart (he was under the 5% for weight and not much better for height). I decided on my own to put him on an elimination diet at the beginning of the year just to see what happened. His stools became solid and less frequent (2 a day rather than 5 a day). He also gained two pounds in 1

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Destiny Stone Rising Star
Destiny Stone
Posted

Hi, I am new to the forum,(thus the empty reply) but I work for Celiac.com & we have an autoreply that I thought would help you. For your review:

Celiac.com cannot offer any medical or dietary advice, other than to recommend that people with celiac disease should maintain a 100% gluten-free diet for life, and anyone who believes that their symptoms could be caused by celiac disease or gluten intolerance should be screened for it (we recommend that everyone be screened for celiac disease because its symptoms can range from none to almost any unexplained health problem--not to mention the fact that around 1 in 100 people actually have it and most never get diagnosed and treated).

Screening for celiac disease is a simple blood panel that includes these tests (please note that you should still be consuming gluten in order for the antibodies to be present):

Anti-endomysial antibody IgA (EMA)

Anti-reticulin antibody (ARA)

Anti-gliadin antibody IgA (AGA)f

Anti-Gliadin IgG (AGA)F

Anti-Tissue Transglutaminase (tTG) Antibodies

I hope this helps! Best wishes to you & your little guy. :)

tarnalberry Community Regular
tarnalberry
Posted

My questions for anyone out there with some knowledge of testing for celiac disease are:

1. Does my son need to go back on gluten to take the blood test? Please say no!

2. Should I have the blood test given prior to the visit with the GI?

3. Should I have him tested for the two celiac-related genes? My husband

mogal Newbie
mogal
Posted

Question for y'all.

I had the Enterolab Intolerance Test with a score of 33. My Dr., says she would like to have the celiac panel done to confirm Celiac Disease. I'm confused after reading all the posts on where to get the best test...I'm not sure how to determine that.

Quest Labs blood tests include only 3 of the 5 that you recommend. TTG, IGA and one of the Anti-Gliadin antibodies...(not sure which one). The cost is $273. I live in Kansas City and there's a Quest lab nearby.

LifeExtension Lab offers this for $99:

Deamidated gliadin IgA; tissue transglutaminase IgA; serum IgA quantitation.

Is there a better lab to get a broader spectrum panel or better pricing or ???

I'm new to all of this so not sure where to go to get the best test without breaking the bank. (limited health insurance coverage), yet still get the best panel.

Also, I have gluten-free for one month...how long do I need to be eating gluten for blood testing?

THANKS for your help.

debi

mommida Enthusiast
mommida
Posted

~You are testing for the damaging reaction for gluten in the body.

~Only have the blood test prior to the ped gastro appointment if the two doctors are on the same page and want the same panel drawn. The results should then be sent to both docs. The labs are somewhat determined by your health insurance.

~Genetic testing is still "new". Not as readily covered by insurance. Positive results can get a "probable" Celiac diagnoses, but not the "gold standard". Not every Celiac gene has been identified. The test can be said to be 98% accurate. Not good enough if you fall into the 2% the lab knows the are going to miss.

~Damage resulting from Celiac or DH destroys the villi which interfers with all nutrient absorbtion and digestion.

~There are so many differering opinions on how much gluten to be eating and how long before the test. Most say the amount should be at least a bread slice a day, and I don't know the best length of time to tell you. Ask your doctor, some say 2 weeks to 2 months. (it is said that one micron, about the size of a crumb, can cause a symptomatic reaction) Gluten challenges can be dangerous. My daughter was hospitalized for dehydration.

Good Luck. I hope you find you answers quickly and your healing is even quicker.

happygirl Collaborator
happygirl
Posted

And, there are newer/better tests in place of the AGA test: anti DGP

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      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

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      Inconclusive results

      By Wends · Posted

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
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      Inconclusive results

      By deanna1ynne · Posted

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
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