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Is A Nutritionist Needed ?


marycubs

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marycubs Rookie

Hi all-

I wonder if most of you found it helpful to go to a nutritionist / dietician after being diagnosed with Celiac ? I had a friend recommend one - and wonder if it is necessary or can I just find out the necessary information on this site and other web sites ?

My background: I recently received a confirmed diagnosis of having Celiac Disease. The GI doctor that did the endoscopy/biopsy stated that I had moderate to severe damage to the villa - the good news was I did not show a significant deficiency in Folate, Potassium, B12 or B6. I am, and have been, dealing with Iron deficiency anemia. He said I should just continue taking a good multi-vitamin. I also have liquid based iron pills that my other doctor gave me that I plan on continuing.

I am now just really learning what I need to change in my food intake and am hopeful to see some improvement in my health once I go gluten-free. (while the digestive problems have been difficult to deal with - the fatigue, no energy, and emotional ups & downs are the symptoms I find hardest to handle.)

thank you - :D

Mary


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tarnalberry Community Regular

It entirely depends on what nutritionist you find and how much knowledge you already have about gluten, food ingredients, and cooking in general. There's another active thread on the topic that you might want to check out for reference.

marycubs Rookie

Thank you - I found the thread. I guess I also thought a nutritionist may be able to assist me in the amount of additional vitamins/minerals I could take to help me feel better quicker.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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