I Need Help!

[glutenfreelab]

Hi my name is Sarah,

I got my celiac blood test which was the standard anti-tissue transglutaminase and total serum iga anti endomysial and it came back negative.

Here is my problem, I stopped eating gluten for approx. 2 months before the test and had been eating gluten for a week and a half when I got the test. I'm not sure if this affected my results.

For one thing my grandmother has celiac disease and many other intestinal problems.

When I eat gluten I get extreme pregnant like bloating, gas, cramps and constipation, I am more tired and irritable and sometimes depressive.

So my question is, do I start eating gluten again for a month, (which I now read is recommend by the canadian celiac association when taking the test), and take another blood test or do I go get tested for a gluten intolerance/allergy?

It really concerns me that my grandmother is celiac, my mother also exibits similar bloating and constipation to me but not as extreme. So should I be tested on the genetic level, I am afraid the specialist will not be willing to do a biopsy if my test is negative and I'll never figure this out.

Please some HELP, suggestions, would be really appreciated.

thxs

Sarah

[Wolicki]

Sarah

You weren't back on gluten long enough for it to show up. Here's the deal. You may have Celiac, and you may have gluten intolerance. Intolerance will never show up on a blood test or biopsy.

Do you need an official diagnosis in order to stay gluten free? IMHO, positive dietary response is a diagnosis. The fix for Celiac and intolerance is a life long gluten free diet.

Janie

[glutenfreelab]

Sarah

You weren't back on gluten long enough for it to show up. Here's the deal. You may have Celiac, and you may have gluten intolerance. Intolerance will never show up on a blood test or biopsy.

Do you need an official diagnosis in order to stay gluten free? IMHO, positive dietary response is a diagnosis. The fix for Celiac and intolerance is a life long gluten free diet.

Janie

Hey Janie,

I figured it wasn't long enough but I wasn't sure. I'm pretty sure I can just stop eating gluten and feel much better, but because of the nature of celiac disease versus an intolerance, I wanted to know if I have celiac because I may have more serious medical problems due to celiac. I know there are still loads of medical issues related to an intolerance but I just feel like I need to know. I've been eating gluten again in order to go visit my doctor and having been feeling terrible, and am having serious doubts about the necessity of putting myself through this.

Thxs for your help

sarah

[Wolicki]

Hey Janie,

I figured it wasn't long enough but I wasn't sure. I'm pretty sure I can just stop eating gluten and feel much better, but because of the nature of celiac disease versus an intolerance, I wanted to know if I have celiac because I may have more serious medical problems due to celiac. I know there are still loads of medical issues related to an intolerance but I just feel like I need to know. I've been eating gluten again in order to go visit my doctor and having been feeling terrible, and am having serious doubts about the necessity of putting myself through this.

Thxs for your help

sarah

Sarah

My doctor said the gluten challenge is barbaric and doesn't believe in it. I absolutely could not and would not do it, I was too sick on gluten. Many of the related disorders lessen or even disappear with a strict diet. I hope you feel better soon!

Janie