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Was Just Tested


simplyconfused

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simplyconfused Newbie

i was just hospitaliized for having acid reflux disease. ive had ard for over 10 yrs now and ive had 2 major surgerys to try and fix it. i had a tumor in my asophagus when i was 12 and at the age of 14 had another major surgery to remove the tumor again. well im getting off subject. i was having major pains i my stomach and chest and was hospitalized they went to do an endoscopy well i dont know why but they decided to go into my small intestine and take a biopsy. im scared that with all that is wrong with me so far that this is just going to push eerything over the edge. i havent gotten the results back yet but i have a feeling that i am going to be diagnoised with celiac disease. im already limited to what i can eat such as no milk products no citris and no tomatoes. im a huge pasta lover and i dont think ill be able to give it up. it makes me sick but im full blown italan and love it. im so confused on what to do. any help?


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tarnalberry Community Regular

keep eating pasta - but get the gluten free kind.

the diet is a major shift, but *once you get past the learning curve* it doesn't have to be that hard. you find the alternatives that work FOR YOU. and there are so many foods out there (which you probably haven't tried before, but could eat) that can taste excellent (even if they're not a substitute for what you know). take it one day at a time, and be patient with yourself. (and read lots of the posts here. :) )

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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
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    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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