Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Got Back Results Today

serenajane

Recommended Posts

serenajane Apprentice
serenajane
Posted

Just found out today for sure that I have celiac sprue. any suggestions on how to find a way to ease into gluten free

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

Cold turkey.

Clean out the kitchen of all the gluten and gluten contaminated stuff. i.e.peanut butter jar, jam, anything that has bread crumbs in it.

Don't go for any of the pre-made gluten free stuff at first. The taste and texture adjustment is easier after a few months. I like the gluten free pantry favorite sandwich bread mix. If you buy ready made bread toast or grill it.

Keep a food journal. It can help you track down hidden gluten or help you determine if you have any other food sensitivities or intolerances.

Find your favorite gluten fre snacks and junk food and keep your snacks on you at all times. It really sucks being hungry and having to hunt something gluten free down at first.

serenajane Apprentice
serenajane
Posted
  • Author

Cold turkey.

Clean out the kitchen of all the gluten and gluten contaminated stuff. i.e.peanut butter jar, jam, anything that has bread crumbs in it.

Don't go for any of the pre-made gluten free stuff at first. The taste and texture adjustment is easier after a few months. I like the gluten free pantry favorite sandwich bread mix. If you buy ready made bread toast or grill it.

Keep a food journal. It can help you track down hidden gluten or help you determine if you have any other food sensitivities or intolerances.

Find your favorite gluten fre snacks and junk food and keep your snacks on you at all times. It really sucks being hungry and having to hunt something gluten free down at first.

I was very hungry this morning looking high and low for anything gluten free to eat. It will take a while to get all the poison out of the cupboards but my husband is willing to do ths with me and my 5 year old son doesn't like much of anything already so adjusting him shouldn't be too crazy>

I need to find a cream soup recipe so i can make a few favorite casseroles. Any ideas?

Nightingale8472 Rookie
Nightingale8472
Posted

I was very hungry this morning looking high and low for anything gluten free to eat. It will take a while to get all the poison out of the cupboards but my husband is willing to do ths with me and my 5 year old son doesn't like much of anything already so adjusting him shouldn't be too crazy>

I need to find a cream soup recipe so i can make a few favorite casseroles. Any ideas?

I can't help you with the casseroles, and I know they say to stay away from the pre-packaged gluten free stuff, but I just have to recommend Pamela's cake mixes if you're having a sweets craving... better to find a good gluten-free treat than to lose your willpower and gluten yourself. I was totally craving cupcakes last night after wandering past one of those stupid cupcake specialty stores, and I went over to the Sprouts market and bought one of the Pamelas vanilla cake mixes. It was INCREDIBLE. So incredible that when I gave one to my dad he couldn't tell it was gluten-free. I couldn't tell it was gluten-free. It just tasted like CUPCAKE. I used the Duncan Hines frosting, since they confirm on their website that all their frosting is gluten-free. So yeah, this is one of the few gluten-free bready things that doesn't taste like a substitute (be very careful not to overcook or it gets overly chewy). Completely satisfied my cupcake craving. Take that, snooty specialty cupcake store!

Raleigh333 Newbie
Raleigh333
Posted

Hello,

Well welcome and congrats on your diagnosis. I was just officially diagnosed mid Jan. of this year after positive blood work results that and observable changes from my endoscopy last Friday. I feel like saying congrats just because of how many people don't know they have it. I was told I did not have it about 3 years ago after having positive blood work and a normal biopsy, so over the past few years i've been causing the damage and after getting a second opinion i'm finally told that yes, i do have Celiac's. It's difficult, and I ventured out to a restaurant today for the first time. I'm taking vitamins now and eating throughout the day and trying to eat more balanced meals. I try to plan my whole week of meals on the weekend and always try one or two more recipes at that time as well. I'm starting my own binder with the recipes that I do like from all of the recipe books.

Many recipe books have tables that show you how much of an alternate ingredient should be used in place of gluten ingredients. What type of ingredients are you looking for in the casserole? I have about 4 books I can look through to see the ingredients that are used. Xanthan or Guar gum are used a lot in what I see for use as thickeners in soups and sauces.

I'm a second year teacher and tutor after school twice a week. Mondays I bring all my food to school so it's not a bag every day that includes;-yogurt (not sure if i'm lactose intolerant yet-doesn't seem like it), certified gluten-free granola mix from whole foods, fresh salads for the beginning of the week and some frozen meals for the end of the week. Over the few weekends i've had i've made chicken cordon bleu, chili, veggie lasagna with rice lasagna...and i would freeze portions of that in containers and take them to school or have them for dinners as well. I've also enjoyed the 'Glutino' crackers, putting swiss or feta cheese with a tomato slice on top and broiling in the oven.

I hate the feeling of not knowing what to eat, and just in a month i've gotten much better at only taking 1 or 2 trips to the grocery store a week, and using the ingredients I buy in multiple recipes before they spoil...so I hope you develop your system and notice things getting easier as well. I made the 'monkey mix' that uses Chex cereal (may be good for the 5 year old-you can google "monkey mix' to see the recipe) and keep that in a sealed container if I need a quick snack. I'm not eating perfectly healthy, but I am eating more fruits and vegetables...and if having the snack to indulge in prevents me from tempting to cheat I feel like it's well worth it. Good luck! I'd love to share ideas.

Roda Rising Star
Roda
Posted

I was very hungry this morning looking high and low for anything gluten free to eat. It will take a while to get all the poison out of the cupboards but my husband is willing to do ths with me and my 5 year old son doesn't like much of anything already so adjusting him shouldn't be too crazy>

I need to find a cream soup recipe so i can make a few favorite casseroles. Any ideas?

I use health valley cream of mushroom, celerey and chicken. However they are not condensed so you may have to adjust the liquid.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

It looks like some of the labeling has changed since I bought it last. Call the company to be sure still. I'll send them an email and see what I can find out.

serenajane Apprentice
serenajane
Posted
  • Author

I use health valley cream of mushroom, celerey and chicken. However they are not condensed so you may have to adjust the liquid.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

It looks like some of the labeling has changed since I bought it last. Call the company to be sure still. I'll send them an email and see what I can find out.

Thank you so much i usually add milk to thin the soups a bit any way and a little mayo will maybe thicken it if needed

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
GFreeMurphy Newbie
GFreeMurphy
Posted

I recently changed endocrinologists (diagnosed with hypothyroidism about 2 years ago) and had to go through many blood tests checking on vitamin deficiencies, thyroid levels, and other causes of my ongoing fatigue. When I went to my endocrinologist to go over my blood results, he notified me that I have high levels of anti-tissue transglutaminase antibodies and in result low levels of vitamin d and b-12. Now, I have a consultation with a doctor who's going to perform a endoscopy. Extremely nervous because I'm graduating high school in June and I don't know how the diet is going to fit in with college life. It will definitely be tough!

So, my question is, can anybody tell me about the procedure and what you went through?

Thanks a lot,

Murph

  • 1 year later...
relay Newbie
relay
Posted

I registered just to reply to you. I was on this site researching gluten free diet as I am trying it out to see if it will help me. Blood test is negative but doc says try the diet anyway.

Listen, don't sweat the endoscopy. No big deal at all. Worst part of it is the iv! Seriously. I have had it done four times over the last few years. The drugs they give you basically knock you out and before you know it you will wake up VERY comfortable in the recovery room. There is no pain or any discomfort at all.

As far as the diet goes, don't think that far in advance. You will get all worked up over it. Start with what you are going to eat today and tomorrow and work from there.

Good luck!

I recently changed endocrinologists (diagnosed with hypothyroidism about 2 years ago) and had to go through many blood tests checking on vitamin deficiencies, thyroid levels, and other causes of my ongoing fatigue. When I went to my endocrinologist to go over my blood results, he notified me that I have high levels of anti-tissue transglutaminase antibodies and in result low levels of vitamin d and b-12. Now, I have a consultation with a doctor who's going to perform a endoscopy. Extremely nervous because I'm graduating high school in June and I don't know how the diet is going to fit in with college life. It will definitely be tough!

So, my question is, can anybody tell me about the procedure and what you went through?

Thanks a lot,

Murph

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.