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My Introduction


Sunny Side

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Sunny Side Newbie

I just wanted to introduce myself. My name is Theresa and I have been a member for quite a while. Although I haven't been active, I have been lurking. I was diagnosed with Celiac disease by biopsy and have been gluten free since May 2009. It has been challenging at times since I am the only one in the house on a gluten free diet. I have a husband and three children. I cook some meals completely gluten free and sometimes I cook separate meals for myself. I have my own pots and pans and plates and utensils, etc. I'm careful about crumbs and cross contamination, and I'm constantly washing my hands. Sometimes I wonder if gluten may still be sneaking it's way in to me some how since I am handling it so much. I feel well, it's just not easy being the only person in the house that's gluten free. Anyway, I just wanted to finally introduce myself. I've gotten a lot of information from this forum. I'm looking forward to getting to know you better.


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lizard00 Enthusiast

Welcome Lurker! :) It's nice to have you out of the shadows!!

jackay Enthusiast

I, too, wonder if gluten is sneaking it's way in to me. I am washing my hands a lot on shared towels. Whenever I am contacting food, eating or doing dishes, I wash my hands and use a paper towel for drying. If I need to do a few dishes, I use paper towels in the inside and a dishtowel on the outside. I use the dishwasher most of the time.

You say you feel well. Did you have symptoms before going gluten free?

I have so many food intolerances, that I don't know what is causing what symptom. I've read that it takes some people a long time to feel better. Could that be me? I question so many things each and every day. Paranoid? You bet I am!!!!!!

Sunny Side Newbie

lizard00, thank you for the welcome!

Jackay, before going gluten free I suffered from abdominal pain and distention. I'm feeling better although I still deal with the bloating. But not it's not as severe as it was. I also have heard it takes a long time to feel better, so I am hopeful. I hope you find relief soon too!

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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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