Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello All ...New Here !

Keith1970

Recommended Posts

Keith1970 Newbie
Keith1970
Posted

Just thought I would say hello.. !

I have been off gluten for about 2 months... and... it really sucks... but my symptoms have gotten better. I was constintly taking immodium etc all the time due to chronic diareah. My nephew went off gluten and was explaining it to me and so I thought I would give it a try. I have had a colonoscapy and been told for years it's just IBS ... but after a while it just kept getting worse. I am feeling better, and only have had to take some immodium a few times in the last cple of months which is great. I don't have insurance (company doesn't offer it) so my doc says before he does any tests he recommended I get insurance because it would be costly. But said that if staying off gluten was working, then to keep off it and see how I do.

Still trying to manage it... trying to not go to fast food joints now... :( ... and I am divorced, so being single and having this problem kinda sucks... not sure if there are man woman out there that would understand that i can't eat all the stuff most people can. Even having a beer or something along those lines I can't do....

well.. sorry for the long post.. hope to talk to some of you sometime !

Keith

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jackay Enthusiast
jackay
Posted

Keith,

Hi back to you. Just wanted to welcome you to this forum and let you know you are not alone.

I sympathize with you. At times I feel this really sucks and other times think I can handle it. Guess it all depends on how much sleep I get.

If staying off gluten helps, forget the tests.

As far as social situations go, they aren't too easy for me. I am married to a gluten eater. It is not easy and often I eat alone just to not have to watch my spouse eat whatever he wants. I go out to eat with friends occasionally and always eat before I go. I go for the socializing but it is awkward.

Two positives are that I joined some fitness classes and have a few friends that I walk with. It was good to finally find some activities that don't involve food.

Hang in there and hopefully things will get easier and better for you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,246
    • Most Online (within 30 mins)
      7,748
    Kathleen weber
    Newest Member
    Kathleen weber
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Hypothetical question about antibodies

      By Scott Adams · Posted

      No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi.  Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Inflammation and Menier’s disease link?

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Pablohoyasaxa
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Pablohoyasaxa · Posted

      Great  post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. 
    • knitty kitty
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By knitty kitty · Posted

      I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin.  The flushing is harmless and goes away the longer Niacin is taken.  The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters.  TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac.  People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies.  Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer.   I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters.  I avoid kelp (nori, seaweed) and crustaceans,  eggs, dairy products, and iodized table salt.   Niacinamide and Nicotinic acid are water soluble and harmless.  I'd much rather take Niacin than Dapsone with scary side effects.  
    • meghanf
      Airbourne products in same living house hold .

      By meghanf · Posted

      We have a gluten-free household. It's the least stressful option. No one else in my family has Celiac, but they are all extremely supportive. We don't even have Play-doh for this kids.
×
×
  • Create New...