Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello All ...New Here !

Keith1970

Recommended Posts

Keith1970 Newbie
Keith1970
Posted

Just thought I would say hello.. !

I have been off gluten for about 2 months... and... it really sucks... but my symptoms have gotten better. I was constintly taking immodium etc all the time due to chronic diareah. My nephew went off gluten and was explaining it to me and so I thought I would give it a try. I have had a colonoscapy and been told for years it's just IBS ... but after a while it just kept getting worse. I am feeling better, and only have had to take some immodium a few times in the last cple of months which is great. I don't have insurance (company doesn't offer it) so my doc says before he does any tests he recommended I get insurance because it would be costly. But said that if staying off gluten was working, then to keep off it and see how I do.

Still trying to manage it... trying to not go to fast food joints now... :( ... and I am divorced, so being single and having this problem kinda sucks... not sure if there are man woman out there that would understand that i can't eat all the stuff most people can. Even having a beer or something along those lines I can't do....

well.. sorry for the long post.. hope to talk to some of you sometime !

Keith

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jackay Enthusiast
jackay
Posted

Keith,

Hi back to you. Just wanted to welcome you to this forum and let you know you are not alone.

I sympathize with you. At times I feel this really sucks and other times think I can handle it. Guess it all depends on how much sleep I get.

If staying off gluten helps, forget the tests.

As far as social situations go, they aren't too easy for me. I am married to a gluten eater. It is not easy and often I eat alone just to not have to watch my spouse eat whatever he wants. I go out to eat with friends occasionally and always eat before I go. I go for the socializing but it is awkward.

Two positives are that I joined some fitness classes and have a few friends that I walk with. It was good to finally find some activities that don't involve food.

Hang in there and hopefully things will get easier and better for you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to shirlane's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Is AG1 safe for Celiacs??

      From their website I see "organic barley leaf powder" as an ingredient. Keep in mind that the gluten is in the kernel, and not in the leaves. https://drinkag1.com/about-ag1/ingredients/ctr
    2. Scott Adams
      - Scott Adams replied to chrish42's topic in Doctors
      1

      Doctors and Celiac.com

      Before the rise of social media we were well known by a lot of doctors and were recommended by many, especially our Safe & Forbidden Lists, but as doctors get younger and younger this is probably not happening as much as before.
    3. nataliallano
      - nataliallano replied to MagsM's topic in Related Issues & Disorders
      28

      Inflammation and Menier’s disease link?

      Thanks Scott I will definitely check my vitamins and minerals to see what I am missing so then I can supplement. I was very concern about my Meniers syntoms and i tryed to find some alive. Now im just realizing that my celiac is provably the root cause of my Meniers none of the 12 doctors I saw told me anything about this. This web site is so helpful...
    4. Wheatwacked
      - Wheatwacked replied to Betsy Crum's topic in Related Issues & Disorders
      5

      Chest pain from celiac

      Vitamin D deficiency can contribute to rib pain. Chest pain stemming from the ribs ccould be costochondritis, which involves inflammation of the cartilage connecting the ribs to the breastbone. This pain can range from mild to severe, potentially mimicking heart attack symptoms, and is often worsened by breathing or movement. Other potential causes include...
    5. Wheatwacked
      - Wheatwacked commented on Nicky2925NZ's blog entry in Nicky2025BZ
      2

      GLUTEN EASE TABLETS DONT WORK

      "Vitamin D, as an immune modulator, is known to regulate immune response and maybe implicated in disease pathogenesis or susceptibility of celiac disease. Components of the immune system, such as B-lymphocytes, T-lymphocytes, and dendritic cells, are influenced by the regulatory effects of Vitamin D ... Increasing evidence also suggests that Vitamin D deficiency...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,257
    • Most Online (within 30 mins)
      7,748
    Y2Kimberly
    Newest Member
    Y2Kimberly
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Is AG1 safe for Celiacs??

      By Scott Adams · Posted

      From their website I see "organic barley leaf powder" as an ingredient. Keep in mind that the gluten is in the kernel, and not in the leaves. https://drinkag1.com/about-ag1/ingredients/ctr
    • Scott Adams
      Doctors and Celiac.com

      By Scott Adams · Posted

      Before the rise of social media we were well known by a lot of doctors and were recommended by many, especially our Safe & Forbidden Lists, but as doctors get younger and younger this is probably not happening as much as before. 
    • nataliallano
      Inflammation and Menier’s disease link?

      By nataliallano · Posted

      Thanks Scott I will definitely check my vitamins and minerals to see what I am missing so then I can supplement. I was very concern about my Meniers syntoms and i tryed to find some alive. Now im just realizing that my celiac is provably the root cause of my Meniers none of the 12 doctors I saw told me anything about this.  This web site is so helpful, thanks to people like you we can get answers. 
    • Wheatwacked
      Chest pain from celiac

      By Wheatwacked · Posted

      Vitamin D deficiency can contribute to rib pain. Chest pain stemming from the ribs ccould be costochondritis, which involves inflammation of the cartilage connecting the ribs to the breastbone. This pain can range from mild to severe, potentially mimicking heart attack symptoms, and is often worsened by breathing or movement. Other potential causes include muscle strain, rib fractures, or even referred pain from other conditions.  It will also help to chose vegetables low in omega 6.
    • Scott Adams
      Hypothetical question about antibodies

      By Scott Adams · Posted

      Great question! Even if some individuals with celiac disease don’t experience immediate villi damage from occasional cross-contamination, it’s still strongly recommended to maintain strict avoidance of gluten. The immune response triggered by gluten can vary between individuals, and even small amounts may cause systemic inflammation or other symptoms, even if intestinal damage isn’t immediately detectable. Additionally, repeated exposure—even at low levels—could lead to cumulative harm over time. Strict avoidance of cross-contamination remains the safest approach to prevent long-term complications and ensure overall health. Everyone’s sensitivity differs, so working with a healthcare provider to tailor precautions is ideal.
×
×
  • Create New...