Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rib Pain


AcrossTUnv.

Recommended Posts

AcrossTUnv. Newbie

Hello. I am new to Celiac/Gluten sensitivity. I became very ill for a year and a half and was given test after test! It wasn't until I told my Doctor that I was developing a rash and trouble breathing after eating that we decided to have a blood test for food allergies. I have many allergies including gluten and wheat. My OBGYN thought that I also had Celiac. My doctor would not do the test as he thought them to be wrong most of the time and hard to do. He also said I would be skinny as a stick, I had gained almost 40 pounds during my 1.5 years of medical tests. He also said I would just have to go gluten free any way. So I have not been diagnosed with Celiac. I have been really good at keeping away from gluten but last week I had a reaction I have not had since cutting off gluten. When I looked up these symptoms they seemed to meet the symptoms of a celiac response. (I am still very tired and weak so I am sorry if this information is elsewhere and I have just missed it) I am looking to you for your experience with such reactions in case it happens again. I had intense, 10 on the pain scale, rib pain, light hotheadedness, labored breathing, tiredness, and diarrhea. If anyone has tips to share on what to do if this happens I would love to have them. The ribs hurting was so bad. I'm used to the rest with the other allergies and not having a gull bladder. Is there any use in going to the ER when this happens? Should I insist on the Celiac testing?

Thanks in advance for all of your help!

Heather


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nora-n Rookie

Hi, that was a very stupid doctor.

also, only 5% of celiacs are under-weight at diagnosis, as oppsosed to 39% over-weght or obese.

The body lacks nutrients and fatty acids and swithes on a survival mode and grabs lots of things from the food and stacks them up in the body.

I have also heard from people who gained water weight due to severe malabsorption and too little proteins in teh blood.

I lost 20 kg after going gluten-free, and I just could not lose them before.

Of course you should have bene tested, both blood tests and biopsy.

as to your symptoms, I do not know, it is possible. All kinds of symptoms are possible.

You ahve been gluten free now, so the tests are gonna be negative since they test for the antibodies and one glutening does not cause positive tests.

You could go ahead and ask for the blood tests including the IgG type tissue transglutaminase and IgG type antigliadin tests, since they stay high much longer than the IgA versions of those tests. Maybe they are still elevated.

But if they are negative, this does not prove you are not celiac.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      14

      Related issues

    2. - sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews
      2

      Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level

    3. - Theresa2407 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Books about celiac

    4. - Known1 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Books about celiac

    5. - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      3

      Barilla gluten free pasta

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,471
    • Most Online (within 30 mins)
      7,748

    Rita Erickson
    Newest Member
    Rita Erickson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Did they ever tell you specifically which vitamins would interfere with which tests? Fermented pickles source of thiamine  and other B-vitamins, The fermentation process with lactic acid bacteria increases the nutrient value.   Colonies of beneficial bacteria can help crowd out the the bad SIBO. Have you had the rash biopsied for Dermatitus Herpetiformus?  Atopic Dermatitis and dermatitis herpetiformis share symtoms and atopic dermatitis patients have higher risk of dermatitis herpetiformis.  dermatitis herpetiformis is a symptom of Celiac diagnosis. When I had the carotid artery stent, the hospital put down "wheat allergy" for the food service.  I guess allergy puts the fear of god in them more than the misunderstood Celiac Disease.  Whatever keeps me alive in this world.   
    • Theresa2407
      You are correct.  Same place.  I have used their site for so long and have it bookmarked.  Still living in past.  Our support group was affiliated with them.
    • Known1
      Hmm, I think you mean the Gluten Intolerance Group®?  Their website is not gig.net.  Maybe it was at one point?  I am new to all of this, but did find their website here:  https://gluten.org/ Kind Regards, Known1
    • knitty kitty
      @Scott Adams, You're right about corn and wheat not sharing similarities in the 33-mer peptide segment of gluten.  Corn has a completely different peptide that causes an autoimmune reaction because it attaches to HLA-DQ8.  Casein in dairy shares with wheat similarities in the33-mer peptide chain. Sorry about the oversimplification.  Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/
    • Scott Adams
      I just want to mention that corn and wheat do both contain storage proteins (corn has zein, wheat has gliadin and other gluten proteins), and there are some small similarities in certain amino acid sequences. However, those similarities are not considered medically equivalent, and corn proteins do not trigger the autoimmune response of celiac disease in the vast majority of people with celiac. Celiac disease specifically involves an immune reaction to gluten peptides found in wheat, barley, and rye. Corn is classified as gluten-free because its proteins do not activate that same immune pathway in most individuals. Although corn intolerance is very real, the explanation about the proteins being the same is oversimplified to the point where it's not accurate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.