Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Borderline Results?


psawyer

Recommended Posts

psawyer Proficient

Hi there, this is my first thread.

It is very nice meeting everyone.

Sorry we have to be here, but thank you for being here and this wonderful site.

Just a quick background, I will try not to bore ya!

I have been sick for like 10 years now. REally bad the past five. I have a horrible back that looks like a falling stack of wafers, I have active arthritis in my knees. I have been diagnosed as having severe fibromyalgia. I am on a lot of medications for pain.

I have always suffered from low iron. I can't ever get it up. I had to stop bothering to donate blood because I couldn't pass their test. My iron is always low, even with supplements. I have low potassium.

About 8 years ago I was tested for irritable bowel. The dr was concerned how I waffled from normal stool to diarreah. Then I cut back on sugar and it went away for the most part. For the past year and a half my digestive issues have gotten worse. The most recent is heartburn. Never been bothered except when prego. But I often have naseau(sp?) and I feel like I have been kicked in the gut. I have had pain in the lower abdomen in the morning that has had me curled in the fetal position. I have days where I just dont' feel like eating. Of course I dont' lose weight. Weight has always been an issue.

I had my thyroid go a little awry. But not enough to raise concern.

Other misc is periods of hair loss. Dry skin. Dry eyes. Fingernails have divets in them and I have never had to cut them because they break off. Extreme fatigue. Extreme pain.

My mother has suspected celiacs for some time now. I have been in denial. My step fathers mother has it. We even did walks for celiacs awarness some time ago. So my mother knows something about it. When H(husband) and I got married, we even had a gluten free cake made for her so she could have cake at our wedding.

So I finally got up the courage to tell my doctor about the stomache pain. He instantly suggest celiacs, and sent me for a test. He was concerned, he usually brushes anything off on the fibro. he told me to do the test on my way out. So I called him for the results today. He said he some of the numbers were off. He said my vit D was really low. Now I take vit D, 4,000 mg a day in fact. He said my celiac test was borderline. He wanted me to come into his office pronto. I told him I took vit D supplements. He said it wasn't enough. And that was the end of the convo.

I have had ten years of negative results. I am actually kinda stunned it even came back borderline. But from what I have been reading, I think there may be a pretty good chance that I have it. I am not willing to admit officially till doc says so. Just wondering what your thoughts were.

The big question for me is: I am on prednisone to control my pain. Prednisone is the only thing that can. It makes me feel better. My stomache problems lessen when I am on it. Can prednisone affect my results. Could it be making a positive borderline?

Thank you so much for any help and input. I hope everyone has a healthy, happy day.

This was posted by the member whom I am quoting, but for some reason the original post cannot be seen. I am posting this as a new thread so that the post can be seen.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nixie-nox Newbie

thank you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,893
    • Most Online (within 30 mins)
      7,748

    Sgp
    Newest Member
    Sgp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.