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I Probably Have Celiac Disease... Did I Mention I Bake Bread From A Living?

TheGlutenFreeBaker

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TheGlutenFreeBaker Newbie
TheGlutenFreeBaker
Posted

I am 22 years old and have been suffering from migraines for over 10 years. About 5 years ago my older sister came to find out that she has has Celiac Disease. This changed her lifestyle drastically and I remember thinking to myself, man I am glad I don't have to go through that how AWFUL! Well recently I began talking to a Doctor who specializes in treating migraines in ways that would be a little more outside the box than your run of the mill neurologist. He told me that because Celiac is genetic and my sister has been diagnosed there is a good chance that I also have the disease. This was slightly upsetting for me since I love gluten rich foods, my family called me the pasta queen as a kid. But then the real blow came, he asked me what I do for a living, I am a baker. I am surrounded by bread 30+ hours a week. The reaction was that I would not be able to continue working in a bakery if I am gluten intolerant. What a heartbreaking thing to hear. My boss is my best friend, my job is the best job there is, oh and I got promoted last week. WHAT DO I DO?!

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Ahorsesoul Enthusiast
Ahorsesoul
Posted

Start your own gluten free bakery.

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

I was going to say the same thing...or help your current boss and best friend break into the gluten free market. It's a perfect fit!!

irish daveyboy Community Regular
irish daveyboy
Posted

I am 22 years old and have been suffering from migraines for over 10 years. About 5 years ago my older sister came to find out that she has has Celiac Disease. This changed her lifestyle drastically and I remember thinking to myself, man I am glad I don't have to go through that how AWFUL! Well recently I began talking to a Doctor who specializes in treating migraines in ways that would be a little more outside the box than your run of the mill neurologist. He told me that because Celiac is genetic and my sister has been diagnosed there is a good chance that I also have the disease. This was slightly upsetting for me since I love gluten rich foods, my family called me the pasta queen as a kid. But then the real blow came, he asked me what I do for a living, I am a baker. I am surrounded by bread 30+ hours a week. The reaction was that I would not be able to continue working in a bakery if I am gluten intolerant. What a heartbreaking thing to hear. My boss is my best friend, my job is the best job there is, oh and I got promoted last week. WHAT DO I DO?!

If you're diagnosed and still wish to work in your present job then

you need to check that as many safety features as possible are in place

machinery shrouded to prevent flying dust, extractors and wear a face mask.

after your shift finishes take a shower before putting on your street clothes and get your work clothes freshly laundered and sealed in plastic wrapping (most bakeries do this already)

Here's something for you to read on Bakers Asthma

Open Original Shared Link

Best Regards,

David

sandsurfgirl Collaborator
sandsurfgirl
Posted

Are you going to get blood and a biopsy? Since you are so gluten heavy right now, it would be the time to test. Don't go gluten free until you've had tests done. Then if they come up negative you can decide whether you want to try the diet and see if it works.

You are a tough position. I think that if you want to continue this career then you will have to do as was suggested and use many precautions to avoid the flying flour.

TheGlutenFreeBaker Newbie
TheGlutenFreeBaker
Posted
  • Author

I was going to say the same thing...or help your current boss and best friend break into the gluten free market. It's a perfect fit!!

I spoke to my boss about the possibility, or likley, chance that i have the disease today and he was almost instantly talking about how my condition would help light the candle underneath the bakery itself to begin traveling down the gluten free path.

thanks for the advice!!

TheGlutenFreeBaker Newbie
TheGlutenFreeBaker
Posted
  • Author

If you're diagnosed and still wish to work in your present job then

you need to check that as many safety features as possible are in place

machinery shrouded to prevent flying dust, extractors and wear a face mask.

after your shift finishes take a shower before putting on your street clothes and get your work clothes freshly laundered and sealed in plastic wrapping (most bakeries do this already)

Here's something for you to read on Bakers Asthma

Open Original Shared Link

Best Regards,

David

Thank you so much for the link i found it very interesting!! He thankfully already takes into consideration that i have other food allergies and makes a point to steer allergens away from me. What a great boss eh?

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TheGlutenFreeBaker Newbie
TheGlutenFreeBaker
Posted
  • Author

Are you going to get blood and a biopsy? Since you are so gluten heavy right now, it would be the time to test. Don't go gluten free until you've had tests done. Then if they come up negative you can decide whether you want to try the diet and see if it works.

You are a tough position. I think that if you want to continue this career then you will have to do as was suggested and use many precautions to avoid the flying flour.

I am planning on having my blood work done this week and moving on to the biopsy very soon. Thank you for the hint to not go gluten free till then, i know my sister wants me to start asap but i would hate to sway the test to a false negative.

sandsurfgirl Collaborator
sandsurfgirl
Posted

Your boss is amazing!

Since you have a deep understanding of how bread is made I bet you will make amazing gluten free breads. You'll have to share with us as you discover new recipes!

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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