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Please Help ,Possible Celiacs?

Vixxy

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Vixxy Newbie
Vixxy
Posted

I was diagnosed with Psoriasis on my scalp at 15, also diagnosed at that time with juvenile arthritis and at 17 IBS. I have Selective Iga (no trace of levels) and severe anaemia (I get one IV every months as I cannot tolerate Iron orally), I am also low in Vitamin B12 so am being supplemented. In recent years I have experienced so much muscle weakness and being uncomfortable with my body/joints/muscles that the Drs were sure I had Lupus but the tests came back negative. They know I have not got fibromyalgia but cannot explain my symptoms and can

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passionfruit877 Apprentice
passionfruit877
Posted

I was diagnosed with Psoriasis on my scalp at 15, also diagnosed at that time with juvenile arthritis and at 17 IBS. I have Selective Iga (no trace of levels) and severe anaemia (I get one IV every months as I cannot tolerate Iron orally), I am also low in Vitamin B12 so am being supplemented. In recent years I have experienced so much muscle weakness and being uncomfortable with my body/joints/muscles that the Drs were sure I had Lupus but the tests came back negative. They know I have not got fibromyalgia but cannot explain my symptoms and can

elye Community Regular
elye
Posted

Welcome, Vixxy!

If you haven't already, check the lengthy list on this website of symptoms of gluten trouble - - almost every single complaint you have listed is there. For this reason, I would suggest that you tell your doctor you would like the complete celiac blood panel run:

tTg - IgA or tissue transglutaminiase IgA

AGA - IgG or Antigliadin IgG

AGA - IgA or Antigliadin IGA

Total IGA

(Think I got all the caps correct!) :rolleyes: I have met two celiac people in the last year who had their life-long skin rashes misdiagnosed as psoriasis, when it was really dermatitis herpetiformis - - the skin presentation of gluten intolerance/celiac disease. Another reason I would give you to be tested!

There can be false negatives, even if you are eating gluten when tested. If I were you and I got a negative, I would still try the gluten-free diet for a month at least and see what happens. Nothing to lose!

Good luck! :)

Beccels Rookie
Beccels
Posted

Hi Vixxy,

I am in a slightly similar boat to you ...

Here is me:

Anaemia (although ok now on oral supplements)

Vitamin deficiency B12 (ok now on oral supplements)

Selective Iga (Im not sure about this one but mine measures at 2, normal range being 0 - 20.

Sleep Problems (Its currently 3.30am! Need I say more! ha!)

Muscle Weakness (Sometimes it hard just to walk up the stairs)

Tiredness (I wake up feeling like I haven't slept)

Hairloss (I think I loose a lot of hair when I wash it)

Anxiety/Not Leaving home Much, depression, anger/irritable, cries easily (tick, tick and tick. Add agoraphobia)

Pale Skin (with big dark bags under my eyes)

Constant Feeling of no Energy (always thinking about my bed!)

Hard to Breathe Sometimes (Rearly, but I know what you are talking about)

Then just add migraine variants, and magnesium deficiency.

My Dr has stuck with me for years, and the whole gluten thing is a totally new investigation for us. We found I have one of the genes.

The only advise I can give you, is just stick with it. Just keep on searching and searching until you find a Dr who listens to you.

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  • Posts

    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

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      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
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      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

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