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Looking For A Dr In The Portland Or Area


justapurplerose

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justapurplerose Newbie

I went and saw and allergist who was unwilling to test me for celiacs because I have been gluten-free since Oct of 09. He did do arm prick that raised slightly and a blood test for wheat allergies only and that came back negative today... He's telling me that I am not allergic... I have classic symptoms of Celiacs and when I am accidentally "Glutened" it's bad enough that I miss work. I need to be diagnosed so I can get fmla and not lose my job over my illness. any help from you guys would be great

  • 1 month later...

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luvs2eat Collaborator

My daughter lives in Portland. She was diagnosed w/ celiac disease last fall... and since then her symptoms have escalated to the point where they've investigated interstitial cystitis and other crazy things. I think it was "celiac mommy" who recommended Dr. Char Glenn in Portland... an internist who specializes in celiac disease. Daughter has seen her and is also seeing a naturopath who says Dr. Glenn is the best. She's having more testing done (she had bloodwork and an eodoscopy to diagnose celiac disease) to see what the heck is going on... but she LOVES Dr. Glenn!

Thank you celiac mom for recommending her!!

celiac-mommy Collaborator

I saw Dr. Glenn yesterday, as a matter of fact! She is AMAZING!! She spent an hour with me, and the one thing I love about her the best is no matter what the issue, she tends to go for a 'natural' remedy first before she writes a prescription. I've been seeing her for 2 years now and I adore her!

luvs2eat Collaborator

You and my daughter (princesshungry on here) may run into each other sometime! I think she goes to see her today!! Thanks again!!

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    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
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    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
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