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Psychological Impact Of Celiac


Don in Dallas

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Don in Dallas Rookie

Good Day!! I am in my 4th week of Gluten Free and things are finally beginning to improve. Still have the D and nausea but not as bad as in the beginning. I assume the tummy will get back to normal in time. What I wrestled with initially that I am beginning to give less energy to now, was the fact that bread, pasteries, pizza, etc. were off limits. I loved them all (and my weight 265 lbs showed it). Now, since the 1st of the year (before diagnosis) I have lost 25 lbs. and wearing clothes I haven't worn in years. Now that really makes me feel good.

I also think I am lactose intollerent as well. Had a bowl of gluten free cereal last week and was in the bathroom for hours. I have been reading the forums and find this is not unusual at all. There is a huge learning curve with this illness that I never thought about in the beginning. I do think however, that a gluten free life style, is going to have many more positives than negatives, now that I have gotten past the initial shock of the change in food habits.

I want to thank all of you who participate in this forum. It has been a life saver to read stories from others who have "been there, done that". It is making the journey much easier. I hope in time I can help each of you in someway as well......


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freeatlast Collaborator

Don, that is a very kind thing to say. I, too, wish I had more time to post recipes, etc., and I will when I'm finished with my master's. It's always healthy to give back. I find it keeps me on the right track :) Until then, take care of you and keep up the good work. I know you will since you're already seeing the benefits.

sandsurfgirl Collaborator

Welcome and good job on the weight loss!

I'm on week 6 now of the diet and just starting to feel more "normal." I still have digestive issues but not so bad.

I'm on a pretty simple diet. Most of us find in the beiginning we need to cut diary, soy, some people cut nightshades like tomatoes and potatoes and bell peppers. I also don't eat any gluten free substitutes right now because I can't digest them either. Xanthan gum and tapioca starch are not agreeing with me at the moment.

Most people seem to be able to add back in many if not all the foods they had to cut, even if it's in moderation. It will just depend on how you heal I guess.

Arrowhead Mills has a gluten free baking mix with no tapioca or xanthan gum that I make pancakes and a bread that has the texture of cornbread out of. You do need to make sure you're getting enough carbs to have that energy sustained all day long.

Good luck and keep coming back for support. I can't live without this board right now.

Lynayah Enthusiast

Good Day!! I am in my 4th week of Gluten Free and things are finally beginning to improve. Still have the D and nausea but not as bad as in the beginning. I assume the tummy will get back to normal in time. What I wrestled with initially that I am beginning to give less energy to now, was the fact that bread, pasteries, pizza, etc. were off limits. I loved them all (and my weight 265 lbs showed it). Now, since the 1st of the year (before diagnosis) I have lost 25 lbs. and wearing clothes I haven't worn in years. Now that really makes me feel good.

I also think I am lactose intollerent as well. Had a bowl of gluten free cereal last week and was in the bathroom for hours. I have been reading the forums and find this is not unusual at all. There is a huge learning curve with this illness that I never thought about in the beginning. I do think however, that a gluten free life style, is going to have many more positives than negatives, now that I have gotten past the initial shock of the change in food habits.

I want to thank all of you who participate in this forum. It has been a life saver to read stories from others who have "been there, done that". It is making the journey much easier. I hope in time I can help each of you in someway as well......

What a great attitude. As they say, "Attitude is everything." It is going to be great to have you as part of the forum. Welcome.

VioletBlue Contributor

For me in the beginning I had to take it one day at a time. I could not let myself think "I can never eat bread again." Instead it was "I'm not having bread today." He he, there are still sometimes days like that four years later. It's a coping mechanism. Get through today and worry about tomorrow tomorrow. Don't beat yourself over the head with "I can never".

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    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
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