Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Psychological Impact Of Celiac


Don in Dallas

Recommended Posts

Don in Dallas Rookie

Good Day!! I am in my 4th week of Gluten Free and things are finally beginning to improve. Still have the D and nausea but not as bad as in the beginning. I assume the tummy will get back to normal in time. What I wrestled with initially that I am beginning to give less energy to now, was the fact that bread, pasteries, pizza, etc. were off limits. I loved them all (and my weight 265 lbs showed it). Now, since the 1st of the year (before diagnosis) I have lost 25 lbs. and wearing clothes I haven't worn in years. Now that really makes me feel good.

I also think I am lactose intollerent as well. Had a bowl of gluten free cereal last week and was in the bathroom for hours. I have been reading the forums and find this is not unusual at all. There is a huge learning curve with this illness that I never thought about in the beginning. I do think however, that a gluten free life style, is going to have many more positives than negatives, now that I have gotten past the initial shock of the change in food habits.

I want to thank all of you who participate in this forum. It has been a life saver to read stories from others who have "been there, done that". It is making the journey much easier. I hope in time I can help each of you in someway as well......

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



freeatlast Collaborator

Don, that is a very kind thing to say. I, too, wish I had more time to post recipes, etc., and I will when I'm finished with my master's. It's always healthy to give back. I find it keeps me on the right track :) Until then, take care of you and keep up the good work. I know you will since you're already seeing the benefits.

Link to comment
Share on other sites
sandsurfgirl Collaborator

Welcome and good job on the weight loss!

I'm on week 6 now of the diet and just starting to feel more "normal." I still have digestive issues but not so bad.

I'm on a pretty simple diet. Most of us find in the beiginning we need to cut diary, soy, some people cut nightshades like tomatoes and potatoes and bell peppers. I also don't eat any gluten free substitutes right now because I can't digest them either. Xanthan gum and tapioca starch are not agreeing with me at the moment.

Most people seem to be able to add back in many if not all the foods they had to cut, even if it's in moderation. It will just depend on how you heal I guess.

Arrowhead Mills has a gluten free baking mix with no tapioca or xanthan gum that I make pancakes and a bread that has the texture of cornbread out of. You do need to make sure you're getting enough carbs to have that energy sustained all day long.

Good luck and keep coming back for support. I can't live without this board right now.

Link to comment
Share on other sites
Lynayah Enthusiast

Good Day!! I am in my 4th week of Gluten Free and things are finally beginning to improve. Still have the D and nausea but not as bad as in the beginning. I assume the tummy will get back to normal in time. What I wrestled with initially that I am beginning to give less energy to now, was the fact that bread, pasteries, pizza, etc. were off limits. I loved them all (and my weight 265 lbs showed it). Now, since the 1st of the year (before diagnosis) I have lost 25 lbs. and wearing clothes I haven't worn in years. Now that really makes me feel good.

I also think I am lactose intollerent as well. Had a bowl of gluten free cereal last week and was in the bathroom for hours. I have been reading the forums and find this is not unusual at all. There is a huge learning curve with this illness that I never thought about in the beginning. I do think however, that a gluten free life style, is going to have many more positives than negatives, now that I have gotten past the initial shock of the change in food habits.

I want to thank all of you who participate in this forum. It has been a life saver to read stories from others who have "been there, done that". It is making the journey much easier. I hope in time I can help each of you in someway as well......

What a great attitude. As they say, "Attitude is everything." It is going to be great to have you as part of the forum. Welcome.

Link to comment
Share on other sites
VioletBlue Contributor

For me in the beginning I had to take it one day at a time. I could not let myself think "I can never eat bread again." Instead it was "I'm not having bread today." He he, there are still sometimes days like that four years later. It's a coping mechanism. Get through today and worry about tomorrow tomorrow. Don't beat yourself over the head with "I can never".

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,183
    • Most Online (within 30 mins)
      7,748

    Bernadine
    Newest Member
    Bernadine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
    • Beverage
      Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. 
    • trents
      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
×
×
  • Create New...