Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

College


glutenfreejenny

Recommended Posts

glutenfreejenny Apprentice

Since I graduated from high school about 7 years ago I've been working on getting through college. I have several pretty serious food allergies and didn't know about my celiac disease until about a year ago, so it's been rough getting through school while working. I don't have health insurance so I've pretty much been on my own when it comes to learning how to deal with the food allergies and everything else. I have officially been diagnosed with celiac disease but I'm 100% certain I have it.

Although I've been gluten and allergy free for about a year, I still have times when I get sick. I work with children and have a roommate and even though I'm very cautious it just happens sometimes. My question is for anyone who has been through college or has any advice for how to communicate with my teachers about everything.

We have a VERY strict homework and project policy. Unless you have a doctors note for the teacher saying you were there or the hospital you can't hand in anything late or retake exams. I was wondering if anyone knows how most colleges deal with this. I was diagnosed with my food allergies several years ago, so I can probably have the doctor give that information. The problem is when I get sick I don't usually go to the emergency room or doctor since I don't have health insurance. (don't worry if it's serious I go to the ER). With my food allergies I find that taking Benedryl and resting for at least a few hours is what seems to help. With gluten it's 3 days in bed resting, no way around it This becomes a huge problem when dealing with homework and getting to class.

I think I posted a question about this a few months ago and people didn't understand what the problem was. I think a few people asked me why I was getting sick so much that it would bother my school work. I should say my other allergies include soy and corn and I'm very sensitive to them. I pretty much don't eat ANY processed foods, but I can break out into hives when I touch them. I've done everything I can to be healthy and I think that I deserve to go to school and deserve help getting through it, I just don't know how I can go about getting that help.

Thanks. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AKcollegestudent Apprentice

See, we have a health center on campus, and on the really bad days, I go there so if I have to miss class or ask for an extension, I can honestly point and say "went to health center". I've also gone to the Dean's office more than once and explained what was going on.

If I were you, I'd go to my dean or the disability office to talk to them. But I suspect that we're coming from two different types of colleges--I go to a tiny liberal arts college where it's very hard to be anonymous and if we miss classes, professors notice and talk to us about it. What's applicable to me may not be for you.

glutenfreejenny Apprentice

See, we have a health center on campus, and on the really bad days, I go there so if I have to miss class or ask for an extension, I can honestly point and say "went to health center". I've also gone to the Dean's office more than once and explained what was going on.

If I were you, I'd go to my dean or the disability office to talk to them. But I suspect that we're coming from two different types of colleges--I go to a tiny liberal arts college where it's very hard to be anonymous and if we miss classes, professors notice and talk to us about it. What's applicable to me may not be for you.

Thanks I'm glad that it has worked for you. I got to a semi-big "art" school so there's a lot of projects and presentations and they are very strict, if you miss it you miss it. However, there is someone who I've heard about that can tell your teacher to give you a makeup if you show them a doc note, etc. Maybe I can go talk to them and see if I can show them my allergen info and come to them whenever I have an outbreak.

I'm going to talk to a school counselor next week and I'm hoping opening up to them will help. Hopefully they can help me talk to the right person.

I think a lot of my problem is I hate being sick. And I hate using it as an excuse. So I don't ask for help and then when I get in over my head I have no one to help me. Guess I have to ask for help.

AKcollegestudent Apprentice

I'm "lucky" because the damage was so severe by the time we caught it that I have to ask for help sometimes. And the deans, gods help them, had had me in their office way too often by the time we figured out what was wrong. If I hadn't been at the point where I could not function without narcotics when we figured out what was going on, I don't think I would have ever gotten over the issue of asking for help. Because, like you, I'm not a fan of saying, "Look, today's been terrible; I can't sit up because of side effects from a med, and even I could, I'm having an allergic reaction to something else. Can I turn this in in a couple days, please?"

But when I have to, I grit my teeth and either tell a shrink, the deans, or one of the docs at the health center.

Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,916
    • Most Online (within 30 mins)
      7,748

    Cassr
    Newest Member
    Cassr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Pamela Kay
      Glad this helped. There are lots of alternative breads out there, so someone has likely made some sort of paleo bread with no grain. And if you bake, experiment with some of the alternative flours to see what you can come up with. If you commit to the gluten-free diet 100%, you may want to do a bit of research on some of the tricker aspects of getting gluten out of your diet, such as cross contamination in the home kitchen (pots and pans, cutting boards, toaster, airborne flour). Don't feel you have to do everything at once, or let this overwhelm you. I've always said that going gluten free is a process, not a moment. The reason I mention this is that, if you think you are gluten-free, but still having symptoms, you may realize that even minute amounts of gluten cause a reaction for a while. Let me know if you have any questions.  Pam
    • Scott Adams
      The doctor was correct--if you are gluten-free the blood panel for celiac disease will not work, you would need to go on gluten challenge in order to be tested. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      It could, but it could also mean that gluten still not being fully eliminated. It's important to get a celiac disease blood panel to help figure this out. For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions that can cause damaged villi:    
    • jeffpine
      Some Mod asked me about blood tests. Dr said no need, nowhere to go as I am gluten-free alreay. He threw around terms like: TTG  2P DQH. not sure if it relates to gluten-free but he removed a polyp in 2022 and will recheck in 27. so my conclusion is that I am mostly gluten-free but not strict. Much obliged, Jeff
    • Cilla Panagiotidis
      When the small intestine does not heal, does that indicate refractive celiac
×
×
  • Create New...