Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free And Dairy Free?


vintagegyrl

Recommended Posts

vintagegyrl Rookie

I just recently went gluten-free due to enterolab results. I know for sure one of my children needs gluten-free and the other 2 react to dairy, but not sure about vice-versa yet.

Does anyone eat dairy free and gluten-free? do you cut out everything that has a bit of milk or just main ingredient of milk?

;) Or did u find that gluten-free helped the dairy issue and now u can eat it?

THANKS!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star

I just recently went gluten-free due to enterolab results. I know for sure one of my children needs gluten-free and the other 2 react to dairy, but not sure about vice-versa yet.

Does anyone eat dairy free and gluten-free? do you cut out everything that has a bit of milk or just main ingredient of milk?

;) Or did u find that gluten-free helped the dairy issue and now u can eat it?

THANKS!

I spent my entire life thinking I was unable to handle dairy, didn't suspect gluten even though my mom has celiac disease. Doctors always made it seem so unlikely that I would have celac too, especially since I didn't react in the severe way she did. And we always thought my issue was dairy.

When I finally got tested and realized I had severe gluten problems if not also celiac disease, I went gluten free. I had Enterolab test casein too, and they said I was sensitive to it and to avoid it completely. So I did that for 6 or 7 months. I actually found it harder to avoid dairy than gluten! Anyhow, after that time away from dairy, I put a little bit of dairy back into my diet to test the waters and found I actually COULD handle modest amounts of dairy. So now I do have it, but I really limit it. As a minor ingredient in things, it doesn't bother me. A small bit of half and half in coffee doesn't bother me. A bit of cheese here and there is fine. But as I said, I'm careful, and I seem to do OK with it on that basis. A bowl of ice cream, for example, also yogurt, that's too much and I'll have problems with that amount.

AKcollegestudent Apprentice

There are a ton of threads on the subject of eating dairy free (also known as casein free) and gluten free--you might want to do a quick search.

But for me personally, going gluten free actually acerbated my issues with dairy. I went from no obvious issues (though I did, looking back, have symptoms) to breaking out in hives. And while you're healing from gluten, many go off of dairy for a while before adding it back in anyway.

I don't cook with any form of dairy--not butter, not milk, not cheese. Some on the board use ghee (clarified butter), but I've been leery about trying it, even if I can find it. I tried goat's cheese, since it looked like my issue was primarily cow based, but continued to have issues. (Though not hives.)

Karina's site, glutenfreegoddess.blogspot.com, has dairy free and gluten free recipes (most are also egg free).

Hopefully, that helps.

tarnalberry Community Regular

Lots of us are dairy free.

How dairy free you are depends on what your problem is. If you're lactose intolerant (common in the early stages of healing, before the villi have recovered), then it's avoiding milk, and/or taking a lactase enzyme when you have dairy. If you're casein intolerant, degrees of intolerance vary. Some people avoid any dairy strictly. I personally don't worry about something like butterfat in some chocolates or small amounts of butter in a recipe.

Lgood22573 Rookie

I am gluten free and dairy free (I'm intolerant to Casein). I found it much easier to give up the gluten than the dairy. How I love a chunk of cheese! All my recipes and casseroles I've been cooking for 20 years have dairy. It's not easy. I'm trying to find some good recipes for both and it's not easy. I cut out absolutely everything with any milk in it. I can tell if I ingest the tiniest bit of milk. I use Almond milk in my coffee, cereal, and when I was a "milk" taste. For cheese- I'm just bummed. All dairy free cheese that I've seen has Casein in it- even the soy cheese. Like I said- I just want some cheese! lol Good luck.

AKcollegestudent Apprentice

I am gluten free and dairy free (I'm intolerant to Casein). I found it much easier to give up the gluten than the dairy. How I love a chunk of cheese! All my recipes and casseroles I've been cooking for 20 years have dairy. It's not easy. I'm trying to find some good recipes for both and it's not easy. I cut out absolutely everything with any milk in it. I can tell if I ingest the tiniest bit of milk. I use Almond milk in my coffee, cereal, and when I was a "milk" taste. For cheese- I'm just bummed. All dairy free cheese that I've seen has Casein in it- even the soy cheese. Like I said- I just want some cheese! lol Good luck.

There are a couple of totally vegan cheeses, especially on the soy side of the equation. (Finding a decent rice cheese is one of those things I gave up on.) If I remember correctly, Galaxy was decent, though it's soy based. I can't eat it because of soy issues. Follow Your Heart's Vegan Gourmet cheeses (also soy) appear to be decent. And they too have no casein in them. The trick with finding truly dairy free cheeses is to look for vegan cheese.

And Turtle Mountain (Purely Decadent) has some awesome dairy-free, gluten-free ice creams. So does Good Karma (and theirs is soy free consistently, so I can eat them.)

vintagegyrl Rookie

Lots of us are dairy free.

How dairy free you are depends on what your problem is. If you're lactose intolerant (common in the early stages of healing, before the villi have recovered), then it's avoiding milk, and/or taking a lactase enzyme when you have dairy. If you're casein intolerant, degrees of intolerance vary. Some people avoid any dairy strictly. I personally don't worry about something like butterfat in some chocolates or small amounts of butter in a recipe.

I don't know which DD and DS are. How Do i find out? All I know is they have stool issues when consuming milk products like milk or ice cream. We let them have milkshakes, just to see and the problems came back. It took about a week to clear up in DD. I guess i just need to try different things. How do you differentiate between casein & lactose items?

I will check out the threads, thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kanney Newbie

I am dairy free and Gluten free. The Dairy issues didn't show up until I went gluten free. I don't know if I have issues with casein or lactose or both. I avoid all dairy. I have however discovered I can tolerate Goat cheese and sheep's milk cheese. A total blessing because I LOVE cheese and none of the soy or rice based cheese I could find worked for me. And I agree going diary free was way harder than being gluten free!

GFinDC Veteran

I don't know which DD and DS are. How Do i find out? All I know is they have stool issues when consuming milk products like milk or ice cream. We let them have milkshakes, just to see and the problems came back. It took about a week to clear up in DD. I guess i just need to try different things. How do you differentiate between casein & lactose items?

I will check out the threads, thanks!

If it is lactose intolerance you can give them Lactaid brand lactase pills when they eat dairy. Watch out for generic alternatives because some of them have gluten. Or give them Lactaid milk to drink. If they are ok then it is a lactose problem. If they still have issues it is more likely to be a casein problem. You can also take them to the doctor for a hydrogen breath test (for lactose intolerance). But that is more expensive and doesn't tell you any more. Another thing is hard cheeses are mostly lactose free. So if they can eat them ok that is another indicator it is probably a lactose problem.

Of course there is no reason they can't have both a casein and a lactose problem too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.