Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Other Strange Symptoms

flowerpower12

Recommended Posts

flowerpower12 Rookie
flowerpower12
Posted

I've been reading about symptoms from various places online and have also found I have even MORE symptoms than I thought before..just wondering if anyone else has had these maybe?

1. Dry skin

2. Mouth sores(I have only had one,it lasted about two days and my tongue swelled up)

3.Padding on feet?(I have noticed on the heel of my right foot when I press on it it's very tingly, is this a symptom?)

4. Although I do not really want to eat, I've noticed that I get random cravings for no reason..

5. My stomach also makes very strange noises anytime I eat or drink.

These are just some symptoms I'm not sure about, I've had many others that are much more common than these but I'm wondering if these may also add to that list?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

I had 2 and 4. Both are definitely symptoms. My mouth sores ended as soon as I went gluten-free. The random cravings are because your body is not getting the nutrients it needs. In fact, some malnourished people, including those with celiac, eat dirt or soft rocks because of those cravings for certain minerals. I did when I was a kid but I had no idea why.

richard

flowerpower12 Rookie
flowerpower12
Posted
  • Author

Also is left side pain a symptom?

or even kidney/liver area soreness?

newgfcali Rookie
newgfcali
Posted

...and I had 1, 3 and 5. There. That's the whole list.

Number 3 sounds like peripheral neuropathy, which is nerve damage. It can manifest as a numbness, tingling or even electric shock-like shooting pains. It typically attacks feet and hands, thus the "peripheral" name.

I think we probably all had number 5. The "grumblies" I call them. I used to dread being in a meeting after lunch (a whole wheat bread sandwich, of course) and my tummy would be playing a very loud tune for all to hear. Now after being gluten free for months, it's as quiet as a mouse. Quite a relief.

flowerpower12 Rookie
flowerpower12
Posted
  • Author

Yes it's quite embarrassing when your stomach decides to have its "grumblies"...

Number 3 isn't so much a numbness or pain, it just feels strange to me..

David in Seattle Explorer
David in Seattle
Posted

Yes it's quite embarrassing when your stomach decides to have its "grumblies"...

Number 3 isn't so much a numbness or pain, it just feels strange to me..

I'm in a similar situation, recent onset (little over a year) trying to figure out if it's celiac, IBD, etc. I have #3 to an extent. The bottom of my right big toe feels as if there's a layer of padding permanently attached to it when I walk, compared to the sensations of the other digits. Just slightly numb. Oddly, it's only like this in response to pressure, if you touch it in other ways, it feels normal/like the other toes.

flowerpower12 Rookie
flowerpower12
Posted
  • Author

This sounds gross but are bloody noses a symptom?

I read that earlier..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


newgfcali Rookie
newgfcali
Posted

Number 3 isn't so much a numbness or pain, it just feels strange to me..

Some people experience PN differently and describe it as feeling like you have a sock on your foot when you don't. You can feel your foot, but it's kinda "removed", not a direct sensation. Hard to describe -- does that make sense?

flowerpower12 Rookie
flowerpower12
Posted
  • Author

Some people experience PN differently and describe it as feeling like you have a sock on your foot when you don't. You can feel your foot, but it's kinda "removed", not a direct sensation. Hard to describe -- does that make sense?

Yes. Thank you that sort of helps me.

:)

txplowgirl Enthusiast
txplowgirl
Posted

Hi Moemoe,

I had the belly rumbles also and bloody noses when I was a kid. I could be sound asleep and wake up with my nose bleeding, reading a book, watching tv. Didn't matter what I was doing my nose would bleed. Sometimes upwards of 3 to 4 times a day, then it might skip a few days. Always was anemic, no matter how much iron they would give me. It made me sick, no matter how much iron or in what form. After 6 months of being gluten free I am no longer anemic after 38 years.

Also had the mouth sores as well as open sores on the top of my head for about 22 years, that would not go away no matter what kind of meds or medical shampoos the dr's gave me. 6 weeks after going gluten free they were gone and they stay gone unless I seriously gluten myself.

Do what testing you need to do, but if they come back negative, which they do about half the time, go gluten free anyway and I bet you will see a world of differnce.

Good luck to you.

Vicky

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

      I take both Benfotiamine and TTFD. You might want to start with the Benfotiamine for a few days and then add in the TTFD. You can look for NeuroMag (Magnesium Threonate). A magnesium glycinate is fine, too. Doctor's Best is a good brand. Don't take more than 300mg total per day of magnesium or it may have a laxative effect. Be sure...
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

      Life Extension Benfotiamine with Thiamine has 100MG of Ben and 25 of Thia..... Do you think this is the one I should take or Objective Nutrients Thiamax (TTFD) which has 100MG Thiamine. How much magnesium should I look for? I take the womens 50+ multivitamin since consumerlabs stated and tested that it has the right amount of vitamins and not too much for...
    3. Oliverg
      - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar. 2 hours later I was throwing up violently on my hands and knees over the loo. .horrendous stomach pains, My hair was wet fro...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

      Yes, do take your B Complex with Benfotiamine or Thiamax. Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day. Taking them too close to bedtime can keep you too energetic to go to sleep. The Life Extension Benfotiamine with Thiamine is Benfotiamine and...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,769
    • Most Online (within 30 mins)
      7,748
    Rayster
    Newest Member
    Rayster
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take both Benfotiamine and TTFD.   You might want to start with the Benfotiamine for a few days and then add in the TTFD.   You can look for NeuroMag (Magnesium Threonate).  A magnesium glycinate is fine, too.  Doctor's Best is a good brand.  Don't take more than 300mg total per day of magnesium or it may have a laxative effect.   Be sure to take the B Complex.  The Benfotiamine and TTFD will need the other B vitamins.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Life Extension Benfotiamine with Thiamine has 100MG of Ben and 25 of Thia..... Do you think this is the one I should take or Objective Nutrients Thiamax (TTFD) which has 100MG Thiamine. How much magnesium should I look for? I take the womens 50+ multivitamin since consumerlabs stated and tested that it has the right amount of vitamins and not too much for men and doesn't have BHT which has shown to cause liver cancer in animals. I was never big with multivitamins as well as doctors I just read when I was first going gluten free to take a multi but I think I will stop them and work on trying the super B Thia and Ben, Mag.  
    • Oliverg
      Glutened

      By Oliverg · Posted

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.