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New To Celiac

JesLS

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JesLS Newbie
JesLS
Posted

Hi, my name is Jessica (call me Jes) and my daughter was recently diagnosed with celiac disease. This has been a long time coming. She is 11, almost 12, and weighed only 56 pounds...since being on the diet (maybe 6 weeks now) she has reached 62 pounds, which is a huge improvement! She was deficeint in her vit k, vit b complex, iron, and just didnt look healthy, she either had severe diarhea, or very constipated, and almost every meal upset her stomach. Finally, the dr ran some bloodwork and she had the antibodies for a gluten intolerance...im so very new to all of this. We are still experimenting with gluten-free foods, we are finding that this diet is so incredibly expensive, and it has proven to be a trial and error adjustment! Any advice to a new to gluten-free family would be great, especially on how to shop on a budget!

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Violet Ave Newbie
Violet Ave
Posted

I am new too! My daughter was also just diagnosed, although she is only a year old. I have already seen awesome improvements after just a few weeks gluten-free as well :) Well, I look forward to seeing what more experienced moms say!

Julie

macocha Contributor
macocha
Posted

new here too! welcome. the recipe and product forum is filled with great info :)

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    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Diagnosis and further testing Celiac

      By Redanafs · Posted

      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
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