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Gluten List For A Newly Diagnosed Girl


fitbunni

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fitbunni Newbie

I was recently diagnosed and I've been trying to compile a master list of ingredient names and products that I need to either avoid completely (wheat) or double check labels (toothpaste for example). Anyone know of a list like that anywhere? It would be nice to have with me when I go shopping.


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missy234 Newbie

I was recently diagnosed and I've been trying to compile a master list of ingredient names and products that I need to either avoid completely (wheat) or double check labels (toothpaste for example). Anyone know of a list like that anywhere? It would be nice to have with me when I go shopping.

Hello! I am also newly diagnosed and it has been so hard knowing what foods contain gluten and what ingredients actually contain gluten, it has been really overwhelming!! I found this website to be kind of helpful:

https://www.celiac.com/gluten-free/?index

At the bottom of the page it says "how to avoid gluten" and then there is a link that says "read more". Click on that and it continues with some more info.

I am definitely interested to see what everyone else responds because I still need help in this area!!!!

Lisa Mentor

I was recently diagnosed and I've been trying to compile a master list of ingredient names and products that I need to either avoid completely (wheat) or double check labels (toothpaste for example). Anyone know of a list like that anywhere? It would be nice to have with me when I go shopping.

Hello and Welcome! Check out the Forbidden List and the Safe List:

https://www.celiac.com/

In your first year, I would highly recommend www.CeceliasMarketPlace.com. Until you learn to read labels, this will be a great help.

fitbunni Newbie

thank you for your help. those lists were just what i needed.

  • 1 month later...
Bev111 Newbie

I was recently diagnosed and I've been trying to compile a master list of ingredient names and products that I need to either avoid completely (wheat) or double check labels (toothpaste for example). Anyone know of a list like that anywhere? It would be nice to have with me when I go shopping.

Bev111 Newbie

I was recently diagnosed and I've been trying to compile a master list of ingredient names and products that I need to either avoid completely (wheat) or double check labels (toothpaste for example). Anyone know of a list like that anywhere? It would be nice to have with me when I go shopping.

Just Google Gluten Free Foods and you will get tons of lists

LDJofDenver Apprentice

There are also grocery shopping guides out there to make your life WAY easier at the store.

They list mainstream products (Kraft, Heinz, Kroger, Hormel, etc.) by category (soups, chips, dressings, spaghetti sauce, etc.)

Gluten-Free Grocery Shopping Guides:

Open Original Shared Link

http://www.triumphdi...CFdVL5QodHR95Bw

There


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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