Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Weakness


masterjen

Recommended Posts

masterjen Explorer

Hi,

I've been gluten-free for just over a month, and fortunately for me this has not meant a huge diet change, as I have never been much of an eater of bread, pasta and processed foods. However, in this past month I have been having two problematic issues:

1. frequent minutes-to-hours long episodes of muscle weakness. I've kept a log of when this occurs, and there is no consistent link to other factors (such as being hungry, having just eaten, over-exerting myself, having eaten certain foods, etc.).

2. frequent hours-long headaches that sometimes progress into full-on migraines (and prior to all this I have never even had headaches, let along migraines)

The weakness and headaches do not always occur together, but do probably 50-70% of the time.

Does anyone else have this? If so, what what kind of explanation were you given by your doctor? What helped you get better?

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LB1983 Newbie

I have had Celiacs for over two years. My diet had to change dramatically!!! I lost over 80lbs in 6 months. I have always been small..so when I got fat it was a shocker! I had celiacs my entire life but the loss of my dad triggered its bad self! I had severe atrophy for months after I went on the gluten-free diet! I could't do the smallest things like walk alot or get up n down. It got better after time and you have to push yourself...but not too hard. The headaches..well...I still have them!! I'm only 26 and I've had a rough 2 years. I have headaches...stomach pains...@ times due to the gluten-free diet. It's hard!! I was in nursing when i got so sick. The celiacs threw me into hypothyroid disease, irreg. heart beat, fibromyalgia, and non-specified lupus. It stinks....

quote name='masterjen' date='22 March 2010 - 07:43 AM' timestamp='1269272614' post='600090']

Hi,

I've been gluten-free for just over a month, and fortunately for me this has not meant a huge diet change, as I have never been much of an eater of bread, pasta and processed foods. However, in this past month I have been having two problematic issues:

1. frequent minutes-to-hours long episodes of muscle weakness. I've kept a log of when this occurs, and there is no consistent link to other factors (such as being hungry, having just eaten, over-exerting myself, having eaten certain foods, etc.).

2. frequent hours-long headaches that sometimes progress into full-on migraines (and prior to all this I have never even had headaches, let along migraines)

The weakness and headaches do not always occur together, but do probably 50-70% of the time.

Does anyone else have this? If so, what what kind of explanation were you given by your doctor? What helped you get better?

Thanks in advance!

Fozzie Newbie

I am also one month into this diet and I also experience muscle weakness and a low grade headache with brain fog. It is improving with the dieet and two 45 min walks per day. Tomorrow I am going for acupuncture hoping that it will improve my current state of health. hang in there. :rolleyes:

Reba32 Rookie

both the headaches and muscle weakness could be withdrawl type symptoms and your body healing and getting used to not being glutened on a daily basis. It could also be that you're not eating enough foods in general, and you may need to make sure you're getting enough calories to keep you going.

Take multi-vitimins. Eat whole natural foods as opposed to packaged manufactured foods. Take a magnesium supplement, make sure you're getting enough potassium (avocados, canteloupe, bananas...), and enough salt. Headaches and muscle weakness can also be caused by electrolyte/mineral imbalance. And drink water. Plain, clear, filtered water.

i-geek Rookie

both the headaches and muscle weakness could be withdrawl type symptoms and your body healing and getting used to not being glutened on a daily basis. It could also be that you're not eating enough foods in general, and you may need to make sure you're getting enough calories to keep you going.

Take multi-vitimins. Eat whole natural foods as opposed to packaged manufactured foods. Take a magnesium supplement, make sure you're getting enough potassium (avocados, canteloupe, bananas...), and enough salt. Headaches and muscle weakness can also be caused by electrolyte/mineral imbalance. And drink water. Plain, clear, filtered water.

Those were my first impressions, too: either not enough calorie intake or a nutrient deficiency. I find that if I don't eat a big enough lunch with enough fat and protein, I get headaches and sometimes I get the shakes. For me, it's usually a blood sugar crash and resolves when I increase food intake. In fact, I'd better eat a big meal tonight since I had salad and yogurt for lunch and I've got a pounding headache now (different from a gluten migraine, but still not fun).

Reba32 Rookie

yeah, if I haven't had enough to eat I get the shakes and muscle weakness. Particularly in my legs. And then I start to feel nauseous. If I don't allow myself to get hungry, I don't get these symptoms. And fasting blood sugar tests have all come up with blood glucose in the normal range. I usually have to eat every 3 hours or so.

  • 10 months later...
hanumandrea Newbie

Hello,

youve probably resolved your issue by now, but I wanted to add for the record:

I have experienced muscle weakness for the last 3-4 years if I do not eat enough protein. Just discovered my gluten intolerance a few months ago after 3 years of infertility and early onset osteoporosis. If I do not eat protein (in adequate amounts)at lunch and dinner, I get shaky and weak for 30 minutes to hours afterward. Fortunately I do not htink this is as severe as it is for some, but possibly related to malabsorption of protein. I look forward to learning more!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
Freesoul999 Newbie

Hi there :) I've been gluten free for about 2 years. Please take heed! This could save you years of heart ache! Often, when people switch from wheat.. they go to corn and rice. These are no good for you, and could very well be causing you muscle weakness, as they do me. Please go to www.marksdailyapple.com and click on 'success stories'. or google Mark Sisson. on top of that I'd be getting a fructose malabsorption breath test and an igG allergy test (210 foods test). If you need help finding info, drop me a line. Good luck!

p.s. my best friend is having amazing results with this, and when I eat like this I feel on top of the world.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.