Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Oats?


jello5

Recommended Posts

jello5 Apprentice

Hi All,

I am intolerant to all gluten. I am also sensitive to oats (thats what a naturapathic test showed, though they never seemed to bother me). I know there are "gluten free oats" out there (like Bobs Red Mill and others.) So, is it the actual oat that is gluten or does gluten get into the oats during processing. Very confusing. Would like my oatmeal back but not sure if it would do more harm than good. Any insights?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Hi All,

I am intolerant to all gluten. I am also sensitive to oats (thats what a naturapathic test showed, though they never seemed to bother me). I know there are "gluten free oats" out there (like Bobs Red Mill and others.) So, is it the actual oat that is gluten or does gluten get into the oats during processing. Very confusing. Would like my oatmeal back but not sure if it would do more harm than good. Any insights?

Gluten is the term that they tell us as a celiac patient to avoid as in wheat, rye, and barley. The scientific term for "true" gluten is the storage protein found in all grains. There is a specific one for each grain. Hordein--barley, gliadin/glutenin--wheat, and secalin--rye are the ones that are harmful if you have celiac or gluten intolerence. Mainstream oats are considered to be contaminated by wheat, hence the pure gluten free oats that are grown away from the offending grains, harvested on different equipment and processessed seperatly. Avenin(storage protein)--oats will, in approximatley 10-15% of celiacs, induce the same reaction and damage as those found in wheat, rye and barley (gliadin/glutenin, secalin, and hordein). There are storage proteins "gluten" in safe grains and you may find on a lable "corn gluten". I don't have the names of the proteins of the safe grains.

TrillumHunter Enthusiast

Also, to add to all the good info Roda gave you, it's best to avoid even gluten-free oats if you are recently diagnosed. They're something to be added cautiously after you've had a chance to heal.

ciavyn Contributor

I eat Bob Red Mill's Gluten Free Oats without issue. I cannot define how sensitive I am, but they've worked well for me.

modiddly16 Enthusiast

I can't eat oats at all. I've done several experiments with them and have gotten sick every time. I think it's just all about how you react. If you're newly diagnosed, I'd definitely wait a long time before you experiment with gluten free oats, just so your body is healed up a bit. I've been a celiac for 6 1/2 years and I just tested the gluten free oats out on myself starting this past summer. I miss oats but I enjoy spending my time out of the bathroom, so I gave it up :blink:

Roda Rising Star

I forgot to mention that I reacted badly the first time I ate gluten free oats approximately 7 months after going gluten free. That reaction was enough for me to never want to try them again. I was in so much pain I laid in a fetal position for a whole evening and then was constipated for 5 days. It was not pleasant. I'm jelous of those who can eat them. I really miss them. :(

jello5 Apprentice

Hi All,

I am intolerant to all gluten. I am also sensitive to oats (thats what a naturapathic test showed, though they never seemed to bother me). I know there are "gluten free oats" out there (like Bobs Red Mill and others.) So, is it the actual oat that is gluten or does gluten get into the oats during processing. Very confusing. Would like my oatmeal back but not sure if it would do more harm than good. Any insights?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.