Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Would Love To Hear Your Stories...

momof4inla

Recommended Posts

momof4inla Newbie
momof4inla
Posted

What were your symptoms before you went gluten free?

What was your abdominal pain/cramping like? Was it severe every day? Did it come and go? Were some times more severe than others?

Did you notice a reaction immediately after eating gluten or did it linger in your system before making itself known?

I would just like to read more about other people's experiences. :)

I will be starting a gluten free diet and if it helps I will put my 4 year old on it as well to try it on her... she complains of belly aches and has alternating diarrhea/constipation as well.

It's nice to have something to compare ourselves with.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted

My only two symptoms about 8 years ago were unrelenting diarrhea (like getting up a few times a night and all day) and belly noises that sounded like wolverines were trying to fight their way out of my intestines! I had no pain at all. I only had the diarrhea for about 2 months before I saw a GI doc who treated me for giardia (parasites) while waiting for blood work. My blood work was so positive, my doc told me, that he didn't even recommend endoscopy. I went gluten free right then.

About a year later... I made beautiful (regular wheat) loaves of bread for a party (one of my fave things to do) and cut off a hunk, buttered it, and ATE it!! It was so danged good!! And guess what? NOTHING happened!! I was so excited and thought maybe I could "plan" a cheat from my gluten-free diet... maybe once a month. Well... the next time I tried it I was as sick as a dog... nausea, diahhrea. So... I've never eaten gluten intentionally since.

Middle daughter was diagnosed about 4 years later and youngest daughter was diagnosed this past fall. Oldest daughter is scarfing up all the gluten she can... ha. None of my siblings or any extended relatives have Celiac.

ravenwoodglass Mentor
ravenwoodglass
Posted

For a long time my upset tummy didn't have any pattern and could hit without warning at any time. Then for the last 5 years before I was diagnosed I would be sick every night, all night in addition after eating and in addition to all the other problems you see in my signature.

I was very hard to diagnose as I don't show up in blood work. After I was finally diagnosed my reactions from gluten were delayed reactions. I would have the neuro symptoms right away but the GI issues didn't become severe until 3 days after consumption. My allergist said this was common and one of the reasons we are sometimes hard to diagnose.

michelley65 Rookie
michelley65
Posted

As I havent been diagnosed with celiac(still waiting the results)I am without a doubt that I am gluten sensitive.My symptoms are bloating,gas and loose stools,and stomach noises that totally embarrass me because they are sooooo loud!Ive been having these symptoms for 5 or more years,along with a lactose intolerance.I get so bloated that I look pregnant!I also have muscle and jiont pain,and was just diagnosed with Fibromyalgia,dry skin,fatigue,and headaches(migraines)since I was 11...UGH!

momof4inla Newbie
momof4inla
Posted
  • Author

please keep them coming!

I was not sure if delayed reactions were typical!

Sometimes my cramping and pain and diarrhea are immediate (after I eat pasta) and other times it seems to come out of nowhere.

I googled celiac stories and read a few but this is better. For some reason I find this so interesting. A lot of times when I'm reading I'm thinking "me too!!!" :o

:lol:

So I just like to read about it. Thank you all.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,164
    • Most Online (within 30 mins)
      7,748
    VGL
    Newest Member
    VGL
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...