Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Detox Symptoms


Black Sheep

Recommended Posts

Black Sheep Apprentice

I've been g.f. for just over 2 weeks now, and instead of feeling better, I've been feeling worse. I'm always tired, but this past week I've been so exhausted and out-of-it, sometimes it's literally hard to walk from one room to the next. Which is pathetic, as my house is only 700 s.f. And when I arrive in the next room I usually collapse on whatever piece of furniture I can! It's like when you're sick with the flu or something, and you're so exhausted and weak that it's all you can do to get out of bed to go to the bathroom. Then once you've staggered back to bed you fall in a heap and swear you won't move from that bed ever again! It's like that, only of course without the fever, aches, and other flu-like symptoms.

So this makes me wonder if, once someone cuts out gluten, can it cause some type of detox-like symptoms?

I've also wondered if perhaps I'm anemic, since I've heard that a gluten intolerance can cause people to not sufficiently absorb iron and B-12. I had a blood test done for this but don't have the results yet.

On the bright side, there are 3 symptoms I was having that have eased up quite a bit!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

There is a withdrawal period and it's normal. I didn't feel better until about 6 weeks into the diet. Dehydration is a huge problem for celiacs so make sure you are drinking lots of water. I also drink Gatorade because the natural electrolytes make me sick but you can try natural electrolytes from a health food store.

You might ask your doc to test your vitamin levels too.

Black Sheep Apprentice

Dehydration is a huge problem for celiacs so make sure you are drinking lots of water.

Ohmygosh, I was wondering why, up until about 4 days ago, I was always so thirsty! I've always been big on drinking lots of water; this is due to the dr.'s orders to my parents when I was 5 and had a terrible kidney infection. So I got used to drinking a lot of water, but I'd noticed that the last several years I've been drinking even more. Lately however, I haven't been nearly as thirsty.

So....does this mean that while I was still eating gluten, dehydration was always a threat, and therefore my body craved more water, so it wouldn't get dehydrated? And now that I'm not eating gluten, dehydration is no longer right around the corner, and that's why I'm not as thirsty all the time?

Or is dehydration still a threat?

sandsurfgirl Collaborator

Ohmygosh, I was wondering why, up until about 4 days ago, I was always so thirsty! I've always been big on drinking lots of water; this is due to the dr.'s orders to my parents when I was 5 and had a terrible kidney infection. So I got used to drinking a lot of water, but I'd noticed that the last several years I've been drinking even more. Lately however, I haven't been nearly as thirsty.

So....does this mean that while I was still eating gluten, dehydration was always a threat, and therefore my body craved more water, so it wouldn't get dehydrated? And now that I'm not eating gluten, dehydration is no longer right around the corner, and that's why I'm not as thirsty all the time?

Or is dehydration still a threat?

I went to a doctor who is somewhat of an expert on celiac and he said that I will have to consider dehydration one of my number one battles. I am on about week 9 of I the diet and have only been feeling a lot better since I took the dehydration very seriously. I have to front load my day with water and Gatorade mixed half and half with breakfast. If I don't get enough in the morning, I am dizzy, nauseous and tired. I drink water all day long and I don't let myself get to the point of feeling really thirsty if I can help it. I don't guzzle, but I just keep it with me and drink as often as I can.

The expert doc, was a total jerk, so I went back to my regular doc who doesn't know much about celiac but is at least nice to me. She is running a panel on my electrolytes, vitamin B12, D, and an iron panel to see how bad my electrolyte imbalance is, etc.

I got very sick from the natural electrolytes at first so I stuck with Gatorade. This week I tried the natural ones again with no problem so hopefully I can switch to them entirely soon. If my labs come up bad though, maybe my doc will give me a prescription. I don't know.

Some on here have recommended salt, but electrolytes are not salt. The electrolyte replacements do not even have sodium in them. You need the minerals that you are missing.

Thirst is not always the only indicator. By the time you feel thirsty you are past the point where you should be.

Go to the search function on here and look for threads about Withdrawal. Read past threads because there are long ones discussing all the different issues that come up in the beginning.

Black Sheep Apprentice

Oh, thanks so much for the help and advice! I'll do that search and see what I come up with.

I love this place! :)

  • 2 years later...
Keshavdas Apprentice

I went to a doctor who is somewhat of an expert on celiac and he said that I will have to consider dehydration one of my number one battles. I am on about week 9 of I the diet and have only been feeling a lot better since I took the dehydration very seriously. I have to front load my day with water and Gatorade mixed half and half with breakfast. If I don't get enough in the morning, I am dizzy, nauseous and tired. I drink water all day long and I don't let myself get to the point of feeling really thirsty if I can help it. I don't guzzle, but I just keep it with me and drink as often as I can.

The expert doc, was a total jerk, so I went back to my regular doc who doesn't know much about celiac but is at least nice to me. She is running a panel on my electrolytes, vitamin B12, D, and an iron panel to see how bad my electrolyte imbalance is, etc.

I got very sick from the natural electrolytes at first so I stuck with Gatorade. This week I tried the natural ones again with no problem so hopefully I can switch to them entirely soon. If my labs come up bad though, maybe my doc will give me a prescription. I don't know.

Some on here have recommended salt, but electrolytes are not salt. The electrolyte replacements do not even have sodium in them. You need the minerals that you are missing.

Thirst is not always the only indicator. By the time you feel thirsty you are past the point where you should be.

Go to the search function on here and look for threads about Withdrawal. Read past threads because there are long ones discussing all the different issues that come up in the beginning.

This is really helpful for me. Before getting the celiac diagnosis - my doctor was always saying I was dehydrated. I never knew whether he was right or not. I've be gluten free for about 4 or 5 weeks now and feeling terribly exhausted and my heart palpitations (which were gone) have come back and they leave me feeling weak, spaced out and anxious as hell. The thing always was - that I had no thirst and over the last bunch of months I've been keeping a couple of liters of Gatorade around the shop and drinking it all during the day. But since being off gluten, my appetite is less and also as a side-effect - trying to drink enough fluids makes me feel ridiculously bloated. I feel like I have to make a choice between drinking enough fluids and eating enough food. I really hope this is going to change soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Cat M's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Weakly positive DGP IgA

    2. - Cat M replied to Cat M's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Weakly positive DGP IgA

    3. - trents replied to Cat M's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Weakly positive DGP IgA

    4. - Wamedh Taj-Aldeen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Positive TTG antibody and negative EMA antibody

    5. - dominiqueccms posted a topic in Coping with Celiac Disease
      0

      Old to diagnosis


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,564
    • Most Online (within 30 mins)
      7,748

    Appajandk
    Newest Member
    Appajandk
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      By the way, you need to repost those numbers in your first post and add the reference ranges. Different labs use different reference ranges so the test scores by themselves aren't very helpful, especially when the values may be borderline positive. It would need to be in a new post window as the edit function times out quickly such that you can't go back and make changes to the original. What symptoms do you have? What has led you to investigate the possibility of having celiac disease?
    • Cat M
      I ate two pieces of toast each morning for three weeks prior to testing. The rest of the day I ate whatever. I am going to increase the gluten for four weeks and ask my doc to retest. I did read that false positives are possible, so I think it’s reasonable to retest. But I am very new to this, so not feeling confident.
    • trents
      Welcome to celiac.com, @Cat M! Were you consuming generous amounts of gluten for a significant period of time (weeks/months) before the blood draw and test results you posted? I ask because you say you would like to be retested after consuming gluten for a few weeks. Current guidelines for the gluten challenge call for the daily consumption of at least 10g of gluten (the amount found in about 4-6 slices of wheat bread) for at least 2 weeks. But I would go for longer than that to be sure, say 4 weeks. Testing is invalid when people have been gluten free or even skimping on it.
    • Wamedh Taj-Aldeen
      I recently reviewed a patient with a positive tissue transglutaminase (tTG) antibody but negative endomysial antibodies (EMA). The patient is asymptomatic, and duodenal biopsies—taken while on a normal gluten-containing diet—were reported as normal. Given the discordant serology and absence of histological changes, I understand that the probability of coeliac disease is low. However, I would appreciate your guidance on the following: Is routine follow-up required in such a case? What is the risk of progression to overt coeliac disease in the future? Would HLA DQ2/DQ8 typing be useful here to help guide long-term management or exclude the diagnosis confidently? I would be grateful for your thoughts.
    • dominiqueccms
      I was diagnosed with celiac in 2019 but was never told how serious this all could be! I have not taken this diet serious due to it being brought to me as optional if you get sick deal with it or go gluten free! I would like to know how to stick to a gluten free diet fully worried I’ve already caused to much damage 
×
×
  • Create New...