Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Casein


masterjen

Recommended Posts

masterjen Explorer

Early on in this going gluten-free process (now in week 5), I switched to lactose-free milk in case I am one of those who has become lactose intolerant because of being gluten intolerant. I also have not had soy beverages (again as a precaution). I think I've tolerated lactose-free milk well, but in the past couple of days I've been having a return of my previous rib discomfort (pressure, heaviness) with minimal chance I'm eating gluten (I've switched to eating only pure/whole food, and nothing processed or pre-packaged). This morning I intentionally had a glass of warm milk when I got up and nothing else, and within 1/2 an hour the rib discomfort started. Based on things I've read, I'm wondering if I may be reacting to casein. Is it possible to be reacting now and not in the initial couple of weeks, or did I perhaps just miss the signs of reacting to it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tictax707 Apprentice

Although I am not a doctor, I can tell you that when I first started being dairy free (a few years before my celiac diagnosis) the symptoms didn't make sense either. Sometimes dairy foods wouldn't bother me, and other times they would. Sometimes I could react in a short period of time (30 minutes or so), other times I would react hours later. From what I have read, dairy related foods aren't something we as humans are naturally set up to process (like all this wheat!). I would recommend cutting out the casein especially during this initial process simply to give your body time to adjust. No use harassing it with stuff that's hard to digest even if you might be able to. Best of luck!

Lgood22573 Rookie

I have antibodies to Caesin, I've been tested. I can tell you my symptoms are within 15 minutes of consumption, and it is intense joint pain. It is never "sometimes". It doesn't matter if it is a tiny bit of dairy or a moderate amount, the symptoms are always the same. So it's really hard to say either way, you just have to listen to your body. Lactose free or not, I still have intense joint pain. It's almost harder for me to give up the dairy than it is the gluten. I know the gluten is going to kill me, but the dairy just makes me miserable. Even dairy free cheese (still has caesin) sends me in agony. That is my reaction, so you might stay away for a while and then try one more time and see if you get the same reaction.

Welda Johnson Newbie

I have antibodies to Caesin, I've been tested. I can tell you my symptoms are within 15 minutes of consumption, and it is intense joint pain. It is never "sometimes". It doesn't matter if it is a tiny bit of dairy or a moderate amount, the symptoms are always the same. So it's really hard to say either way, you just have to listen to your body. Lactose free or not, I still have intense joint pain. It's almost harder for me to give up the dairy than it is the gluten. I know the gluten is going to kill me, but the dairy just makes me miserable. Even dairy free cheese (still has caesin) sends me in agony. That is my reaction, so you might stay away for a while and then try one more time and see if you get the same reaction.

Welda Johnson Newbie

I learned of my casein & whey intolerances the hard way. I ate soy cheese that I thought was safe because it was labeled "dairy-free." Then I endured the consequences, which in my case meant severe asthma. I had already eliminated all grains, all milk & dairy, egg whites, yeast, msg, and modified food starch from grain. Later I found Vegesoy non-dairy cheese, with no casein or whey, and the problem was solved. Now I search labels diligently for casein or whey or any of the above items. Hope you are able to learn what is causing your discomfort. Best wishes. Welda

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,066
    • Most Online (within 30 mins)
      7,748

    MamaMercedes
    Newest Member
    MamaMercedes
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.