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Celiac And Casein


masterjen

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masterjen Explorer

Early on in this going gluten-free process (now in week 5), I switched to lactose-free milk in case I am one of those who has become lactose intolerant because of being gluten intolerant. I also have not had soy beverages (again as a precaution). I think I've tolerated lactose-free milk well, but in the past couple of days I've been having a return of my previous rib discomfort (pressure, heaviness) with minimal chance I'm eating gluten (I've switched to eating only pure/whole food, and nothing processed or pre-packaged). This morning I intentionally had a glass of warm milk when I got up and nothing else, and within 1/2 an hour the rib discomfort started. Based on things I've read, I'm wondering if I may be reacting to casein. Is it possible to be reacting now and not in the initial couple of weeks, or did I perhaps just miss the signs of reacting to it?


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tictax707 Apprentice

Although I am not a doctor, I can tell you that when I first started being dairy free (a few years before my celiac diagnosis) the symptoms didn't make sense either. Sometimes dairy foods wouldn't bother me, and other times they would. Sometimes I could react in a short period of time (30 minutes or so), other times I would react hours later. From what I have read, dairy related foods aren't something we as humans are naturally set up to process (like all this wheat!). I would recommend cutting out the casein especially during this initial process simply to give your body time to adjust. No use harassing it with stuff that's hard to digest even if you might be able to. Best of luck!

Lgood22573 Rookie

I have antibodies to Caesin, I've been tested. I can tell you my symptoms are within 15 minutes of consumption, and it is intense joint pain. It is never "sometimes". It doesn't matter if it is a tiny bit of dairy or a moderate amount, the symptoms are always the same. So it's really hard to say either way, you just have to listen to your body. Lactose free or not, I still have intense joint pain. It's almost harder for me to give up the dairy than it is the gluten. I know the gluten is going to kill me, but the dairy just makes me miserable. Even dairy free cheese (still has caesin) sends me in agony. That is my reaction, so you might stay away for a while and then try one more time and see if you get the same reaction.

Welda Johnson Newbie

I have antibodies to Caesin, I've been tested. I can tell you my symptoms are within 15 minutes of consumption, and it is intense joint pain. It is never "sometimes". It doesn't matter if it is a tiny bit of dairy or a moderate amount, the symptoms are always the same. So it's really hard to say either way, you just have to listen to your body. Lactose free or not, I still have intense joint pain. It's almost harder for me to give up the dairy than it is the gluten. I know the gluten is going to kill me, but the dairy just makes me miserable. Even dairy free cheese (still has caesin) sends me in agony. That is my reaction, so you might stay away for a while and then try one more time and see if you get the same reaction.

Welda Johnson Newbie

I learned of my casein & whey intolerances the hard way. I ate soy cheese that I thought was safe because it was labeled "dairy-free." Then I endured the consequences, which in my case meant severe asthma. I had already eliminated all grains, all milk & dairy, egg whites, yeast, msg, and modified food starch from grain. Later I found Vegesoy non-dairy cheese, with no casein or whey, and the problem was solved. Now I search labels diligently for casein or whey or any of the above items. Hope you are able to learn what is causing your discomfort. Best wishes. Welda

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    • Scott Adams
      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
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      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
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      I agree with @trents, but thank you for bringing this up here!
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