Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

People Who Were Diagnosed And Feel Much Better


somersat

Recommended Posts

somersat Newbie

And think clearly and are not hungry all the time?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yes but it did take awhile. It was about 6 months before I noticed a real difference with energy but the stomach pain and constant D ended before that happened. My tummy issues resolved within a month, with some slip ups of course gluten wise. Even after 8 years I sometimes still get glutened but now it is only about once or twice a year.

I was sleeping better almost immediately, but I had been up every night in the bathroom in agony for 5 years before that.

My thinking got clearer within a couple months. I think sublingual B12 helped a lot with that and it also seemed to help my ataxia resolve.

I hope this is helpful. We don't get celiac symptoms overnight, it is usually a process that leaves us ill for months or years before we finally are diagnosed. We don't heal overnight either. It takes some time. How much time varies with the individual, the systems under attack by the antibodies and how gluten free the person is.

freeatlast Collaborator

And think clearly and are not hungry all the time?

Thanks!

Yes, that has been my experience. I'm still ADD, but now I have "episodes" not constant forgetfulness. When I started back eating wheat/gluten for three years between August 2005-August 2008, I WAS hungry all the time, gained 20 pounds, and had gas when I least expected it and couldn't control it sometimes. THAT was embarrassing.

Now, I can go back to skipping meals and not having to have snacks between all the time and do just fine :) After I went back on gluten free in August 2008, it took longer to get better than the first time when I was younger and didn't lose weight this time either. Then, last year I went on The Zone diet, stayed gluten free, and I lost weight and it got my system back in synch.

chasbari Apprentice

Things certainly aren't perfect yet but instead of dreading going to sleep....if I could, I now sleep easily. I used to feel like I could never have enough padding on the mattress to keep me from major discomfort (in fact it felt like my body really wanted to be six feet under.) We took the mattress cushion off as I have no pressure points like I used to. The hunger has calmed down considerably although it took time and a real sense of withdrawal for months to get to the point where it became manageable. A side benefit is that my rheumatoid arthritis eased considerably as well.. to the point where I can not only walk, I can now run and sprint. My hearing and vision problems settled down and even though I lost most of my body fat and have a hard time maintaining weight I never get cold anymore. Used to be I could never stay warm. There are still rough patches but nothing like my average day used to be.. just a gentle reminder to be grateful for the good days!

CS

tarnalberry Community Regular
People Who Were Diagnosed And Feel Much Better Do you sleep well, not obsess about food, and have lots of energy? And think clearly and are not hungry all the time?

Sleep well? Eh... I have restless leg, apparently independent of but worsened by low iron stores. Even when the iron is back up, there's still come RLS. It's better on meds, but I'm off meds due to pregnancy. With the meds, I'd say I sleep pretty darn well. Without them, I'd say I sleep well enough. (With the pregnancy in 3rd trimester... HAHAHAHA! I'm lucky if I get to sleep for seven hours in a night and only wake up sore and needing to pee three times a night. So, no, not well. :P )

Obsess about food? No, but I don't think I ever did. Well, I have been a fairly careful planner for a while - between wanting to lose weight many years ago (and needing to be very cognizant of my diet) and having reactive hypoglycemia. But I plan as best is possible, change plans if needed, and don't really obsess. Can you be more specific over how you obsess over food?

Have lots of energy? Eh, I have fibromyalgia separate from celiac (developed years after going Gluten-free Casein-free) so I'd never say I have lots of energy. (And again, with the pregnancy, I'm pretty much tired or exhausted most of the time. :P Can't really remember having a full bucket of energy for a whole day in ages. :D ) But different people have different natural levels of energy, regardless of how much they WANT to be able to do. I have a friend who is fairly go-go-go and always has something happening. Maybe she is often tired, but it certainly never seems that way. I know that I would never have been able to keep up with her. And I know people have commented that it seemed like I did an awful lot in the past, always on the go, but given the sorts of things I was doing, it wasn't all that energy draining for me. I also have had low testosterone levels for years - before the celiac diagnosis - and getting THAT treated definitely helped a lot as well. (No, my thyroid levels have never come back low, and they don't come back borderline low either. We keep an eye on them, but they continue to be fine as best we can tell.)

Think clearly? (Again, this is funny while pregnant, which essentially causes you to be drugged with endorphins at much higher blood levels than normal. :) Clear minded is NOT how I'd describe myself at the moment. :D ) I think that improving my sleep had FAR FAR FAR FAR FAR more to do with "thinking clearly" than the change in diet. I can't emphasize enough how enough GOOD QUALITY sleep makes a difference. You can get plenty of crappy sleep and still feel like a zombie (which I have had, thanks to the RLS).

Not hungry all the time? I find that hormone variations through my cycle affected my hunger levels more than being gluten free or not. And stress levels from general life. What makes the most difference to me to not be HUNGRY all the time is to eat properly balanced (in fat/carbs/protein) meals, to steady blood sugar levels.

A lot of people have had the changes you're looking for, but I think it's easy to think that the gluten-free diet will clear up everything, when a lot of these things are relative and have other causes that are common in our lives.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    5. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,213
    • Most Online (within 30 mins)
      7,748

    Isla M
    Newest Member
    Isla M
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.