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Questions - Please Help...hives Or Dh?


blondebombshell

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blondebombshell Collaborator

i have been battling this for about 2 years now; all of a sudden i woke up covered in small itchy hives from the waist down. my butt, thighs, CALVES, covered. i had constipation (for years - i'm talking for the last 10 i only go to the bathroom 1x a week). started to take some laxatives as per my doc, and my derm put me on antibiotics for acne.

WELL

went off the antibiotics, stopped laxatives...

all hell has broken lose. had an endoscopy and doc said i looked 'fine.' no evidence of celiac. i went gluten free and my hives went away. got pregnant, was able to eat whatever i wanted and life was great. now 11 months, post partum, it's all back. the bloating, the hives, the constipation. in fact the only time in my life i was ever 'regular' was when i was prego, lol!

ANY advice? i had blood work done (iga, igg?) and everything came back negative.

i dont want to give up hope.

ANY advice?


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mushroom Proficient

Are you on or off gluten? If you are on I suggest you go off :) It is quite possible to be non-celiac gluten intolerant; in fact for every celiac it is estimated by Dr. Rodney Ford that there are two to three gluten intolerants. It is possible that the hormonal changes of pregnancy gave you a "temporary vacation" from your gluten problems, just as for some people they precipitate celiac disease.

blondebombshell Collaborator

question. i stopped eating wheat for 2 days. tonight i had wheat; 3 hours ago and now i have new hives. would it happen like that? if taking it out for only 2 days then eating it again? would it cause new hives on my thighs?

mushroom Proficient

I would think the way to find out is to stop eating it altogether :) Potatoes give me hives and I don't eat them :) For me it takes bit longer, about 4-6 hours.

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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