Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help - If I Dont Have Celiac...


blondebombshell

Recommended Posts

blondebombshell Collaborator

besides a food elimination diet, is there ANY valid test that i can have done to tell whether or not i have food intolerances and what they are? i keep getting hives on my legs only and i always thought it was related to that of gluten but 'apparently' i dont have celiac. years (since toddlerhood) of constipation, and for the past 2 years - the isolated hives, i definitely thought i had celiac. endoscopy was negative and bloodwork was too. but when i didn't ingest wheat after a few months, i actually 'felt' better. however, i would like to really get to the bottom of this once and for all.

any help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

You have already had a positive response to the elimination of wheat from your diet. That is a scientific diagnostic test. Sometimes you have to take what you can get for help with this or any disorder. You shouldn't have to feel that you need to justify why you can't eat wheat.

It seems to me that Celiac/DH/gluten intolerance have suffered some bad press. Too many people (doctors included) are considering it as a fad diet.

You can try allergy testing. It was very expensive for us. It proved my daughter is not "allergic" to anything. Allergy testing can not prove Celiac/DH.

There is genetic testing for the common genes associated with Celiac/gluten intolerance. It is not as accurate as the 98% they (Prometheus labs)say it is.(Especially if you fall in the 2% miss range.) Human error in handling the blood draw and sample is estimated at a 30% error rate.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to pilber309's topic in Related Issues & Disorders
      10

      Burning Sensation in the small intestine

    2. - pilber309 replied to pilber309's topic in Related Issues & Disorders
      10

      Burning Sensation in the small intestine

    3. - Threecents commented on Scott Adams's article in Winter 2026 Issue
      4

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

    4. - trents replied to pilber309's topic in Related Issues & Disorders
      10

      Burning Sensation in the small intestine

    5. - Avi Salmon posted a topic in Introduce Yourself / Share Stuff
      0

      Introduction

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,878
    • Most Online (within 30 mins)
      7,748

    Anne 1012
    Newest Member
    Anne 1012
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No, I meant two years ago when you had your most recent upper GI scope.
    • pilber309
      yes it was very notable during the pre diagnosis of coeliacs in fact it was all the time.
    • trents
      And you were experiencing this burning sensation back then?
    • Avi Salmon
      Hello everyone, I am a young adult living with both Celiac disease and achalasia. I am looking for some inspiration to start raising awareness for people with Celiac disease on instagram. Please reach out to me if you have any tips and ideas on what is important to share to the world. 
    • pilber309
      Last one was about 2 yrs ago nothing untoward was seen  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.