Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help - If I Dont Have Celiac...


blondebombshell

Recommended Posts

blondebombshell Collaborator

besides a food elimination diet, is there ANY valid test that i can have done to tell whether or not i have food intolerances and what they are? i keep getting hives on my legs only and i always thought it was related to that of gluten but 'apparently' i dont have celiac. years (since toddlerhood) of constipation, and for the past 2 years - the isolated hives, i definitely thought i had celiac. endoscopy was negative and bloodwork was too. but when i didn't ingest wheat after a few months, i actually 'felt' better. however, i would like to really get to the bottom of this once and for all.

any help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

You have already had a positive response to the elimination of wheat from your diet. That is a scientific diagnostic test. Sometimes you have to take what you can get for help with this or any disorder. You shouldn't have to feel that you need to justify why you can't eat wheat.

It seems to me that Celiac/DH/gluten intolerance have suffered some bad press. Too many people (doctors included) are considering it as a fad diet.

You can try allergy testing. It was very expensive for us. It proved my daughter is not "allergic" to anything. Allergy testing can not prove Celiac/DH.

There is genetic testing for the common genes associated with Celiac/gluten intolerance. It is not as accurate as the 98% they (Prometheus labs)say it is.(Especially if you fall in the 2% miss range.) Human error in handling the blood draw and sample is estimated at a 30% error rate.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,162
    • Most Online (within 30 mins)
      7,748

    Carolyn harkless
    Newest Member
    Carolyn harkless
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.