Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does The Reaction Get Worse Over Time

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

I got glutened about two weeks ago now. When I first was diagnosed the gluten reaction would last 2-3 days. Now it seems to be lasting over a week. Is this normal? I had such bad depression a week later. It was just like the depression I got right after I was glutened in the past. I was really careful so I know I wasn't reglutened. Does it normally get longer over time? If it does this is just going to be even more awful.

Also do people drink soda/pop from dispensing machines? I'm pretty sure this is how I got glutened. I don't know if it was the pop or the glass or what. Can plastic have gluten in it? Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


The Glutenator Contributor
The Glutenator
Posted

I have definitely found the reaction gets worse with time. When I get glutinated now, the symptoms can be much more severe and last longer. Bummer! Though I haven't had a problem with pop machines, so maybe look for another source? Or if you are worried, consider wiping the can with alcohol (or hand sanitizer if you have it) and rinsing before having the drink.

Googles Community Regular
Googles
Posted
  • Author

Thanks for the info. It wasn't a pop machine that dispenses cans, it was a fountain drink dispenser. (couldn't think of the better name last time I posted.)

Ahorsesoul Enthusiast
Ahorsesoul
Posted

If the machine had a soda that contained gluten running in it, it could contaminate your drink. The glass, especially if it was plastic could be contaminated from being in contact with something with gluten. Was the pop you were drinking gluten free? I know some orange and root beers are not gluten free. I'd get sick if glutened root beer had been just dispensed right before I filled my glass.

Before going gluten free I felt terrible all the time with spikes of horrible gluten poisoning. I never felt good enough to know when it really ended. Being gluten free I feel better and I know how well I can feel. I think when I am glutened now, it is worse because I compare it to how well I felt gluten free. So yes, if you get glutened you will feel awful. Worse? Probably.

Just a thought. Corn syrup also could be making you sick. Have you kept a food diary?

dilettantesteph Collaborator
dilettantesteph
Posted

At first it seemed like my reactions were getting worse as I seemed to get sensitive to lower levels of gluten. Now, after 2.5 years, my reactions are getting much better. I'm not sure how much it has to do with my figuring out how to eat, but I get over the worst of my symptoms in a day now. It is so much better than lying in bed wishing I could die for a week!

  • 7 months later...
missingtortillas Rookie
missingtortillas
Posted

This is an older Topic but I have not learned how to use this forum just yet. I've noticed that I have reactions from Dr. Pepper when it's from the fountain machine at Circle K and from Barro's Pizza (I didn't there but my friends picked me up a Dr. Pepper at lunch). My reactions consist of my tummy painfully expanding and the feeling of not being able to take a deep breath. The feeling of not being able to breath right while having a conversation just like when I've had gluten.

They have the one size for 79cents but the lids are so hard to get out that you end up grabbing 5 at a time just to pull one lid out. I glance over at the hot dog machine and only imagine who got a hot dog first or who was eating chips etc. then touched all the lids in the front including the one I'm about to pick. I try to pull out 3, discard, then pull out 3 more and pick the center one. I don't think it works though because they all look like they've been smudged on the side from fingers. YUCK!

I just don't want it to be the Dr. Pepper itself because I'm addicted big time! Anyone have this problem?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.